IDR affinity group. IKFC update April 6, 2012. Motivations/principles . A forum and community of interest for building, enhancing and using Integrated Data Repositories (IDRs) for Biomedical Research.
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A forum and community of interest for building, enhancing and using Integrated Data Repositories (IDRs) for Biomedical Research.
Defining “Integrated Data Repository” as a large-scale data resource making available data from the full array of systems in a biomedical enterprise, including clinical systems, life sciences (genomics / proteomics), research, billing, registries, clinical trial systems, and more – for secondary use.
Focused on practice, problems and progress in advancing range of research uses cases for IDR’s, including but not limited to hypothesis testing, cohort development, genome / phenome matching, genome-wide association studies (GWAS), development of quality measures, and general population based studies.