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Implementing California’s Fatal Child Abuse and Neglect Surveillance (FCANS) Program . Steve Wirtz, Ph.D. Epidemiology and Prevention for Injury Control (EPIC) Branch California Department of Health Services Presentation for: American Public Health Association 129th Annual Meeting
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Implementing California’s Fatal Child Abuse and Neglect Surveillance (FCANS) Program • Steve Wirtz, Ph.D. • Epidemiology and Prevention for Injury Control (EPIC) Branch • California Department of Health Services • Presentation for: • American Public Health Association • 129th Annual Meeting • Atlanta, GA • October 23, 2001
Problem Statement Creating Solutions Fatal Child Abuse and Neglect Surveillance (FCANS) Program Challenges Next Steps Outline of Presentation Handout Contact: swirtz@dhs.ca.gov; Handouts are available by hyperlink from the online abstracts
Brief background of CDR in California Description of the FCANS program Focus on: Case definitions - child abuse and neglect (CAN) Data collection form for all child deaths Examples of case reviews Challenges for local, state and national Next steps Plan for Oral Presentation
Problem Statement • CAN is a serious societal problem • Fatal CAN is the most extreme consequence • The true incidence of fatal CAN is not known • Serious limitations with existing data sources in California for counting CAN fatalities • Better/more detailed information is needed • Prevention of all types of childhood injuries would benefit from detailed case information
Child Maltreatment Injury Pyramid for California, 1996-8 • CAN Fatalities (135-152) • Serious and Severe Hospitalization (438-525) • CAN Incidences (182,000) • Reported CAN (463,000) • Unreported Cases Prepared by DHS EPIC Branch from Reconciliation Audits, 1996-7, OSHPD Hospital Discharge Data, 1997-8, and DSS Preplacement Preventive Services for Children in California Annual Statistical Report, 1996.
Why focus on Fatal CAN? • Fatal CAN is often difficult to identify • Definitions • Identification • Investigations • Detailed information on contributing causes & circumstances is often not available • CAN fatalities are not systematically reported or documented in statewide data systems
Fatal Child Abuse and Neglect by Data Source, California 1990-1998 152 135 Number Source: CA DHS Death Records, 1990-8; CA DOJ Homicide Files, 1990-8 & CACI 1991-78 Prepared by CA DHS EPIC Branch, 11/00; ** CACI slope NE 0 (p=.03)
Fatal Injuries < 1 Homicide Suffocation Drowning MVT-Occupant MVT-Unspecified Fatal Injuries 1-4 Drowning Homicide MVT-Pedestrian Pedestrian-Other MVT-Occupant Top Five Injury Causes for Children Under Five, California, 1999
Creating Solutions in California • Local Child Death Review Team (CDRT) formed without mandate or funds in 1980-90’s • CDRTs mixed criminal justice and public health approaches • State focused initially on CAN • State authority protected information sharing • State expanding to public health perspective
Child Death Review Teams (CDRTs) in California • First team started in Los Angeles, 1978 • Multi-disciplinary, multi-agency review team • Teams now exist in nearly every county (56) • Case selection criteria (e.g., all child deaths 0-17 years; Coroner cases only) • Retrospective or concurrent multi-agency review during investigations
California State Child Death Review Council (SCDRC) • Legislation established SCDRC in 1992 • Coordinate and support state and local CDRT efforts • Provide training for CDRTs • Establish data tracking system for CAN fatalities (e.g., Reconciliation audits) • FCANS Program authorized as of July 2000 through legislation and budget allocation
Description of FCANS Program • Functions under auspices of SCDRC as authorized in California Penal Code • Implemented by EPIC Branch of California Department of Health Services • Primary purpose is to collect standard data on CAN-related child deaths • Local CDRTs are reimbursed for data on a fee-for-case basis • Promote prevention at local and state levels
FCANS Data Collection Form for CDRTs • Identifying information • Matrix for classifying • Death investigation information • Background information • Cause and circumstance of death • Intentional • Unintentional • Conclusions from review • Recommendations and actions
Sample Cases from FCANS • Use overheads to display FCANS forms • Case #1 - Suspected child abuse homicide • Case #2 - Unintentional injury case
Value of Child Death Review Process • Improved local handling of CAN deaths • Improved local protocols and practices • Improved state surveillance • Changes in state legislation and agency regulations • Increased focus on preventable and unintentional deaths
Next Steps • Support, (fund), and train local CDRTs • Improve Management Information System • Standardize CAN definitions • Expand reviews to all preventable and unintentional deaths • Improve process for developing recommendations and taking action • Network with other state CDR programs • Link with CDC’s national surveillance efforts