Enhancing Healthcare Access for People with Learning Disabilities: Progress and Future Goals

1. My healthy life Helen Mycock – Mencap Health programme manager

2. What we’ve achieved - national

3. 3 BIG ISSUES Primary careGeneral hospital care Specialist healthcare

4. ‘Getting it Right’ 3 year campaign

6. Getting It Right – update • 200 organisations signed up to charter • 193 in England , 6 in Wales and 1 in Northern Ireland • In England this broke down into: • 78 out of the 175 NHS General Hospital Trusts ( 44.5%) • 62 out of the 146 Primary Care NHS Trusts ( 42.5%) • 21 out of 56 Mental Health / Learning Disabilities NHS • Trusts (37.5%) • 7 out 10 SHA’s ( 70%) • 6 out of the 12 Ambulance Trusts (50%) • 5 Medical colleges • 10 non-NHS organisations

7. Concerns remain • Almost half (46%) of doctors say that people with learning disabilities receive a poorer standard of healthcare • Almost third of nurses (33%) had personally witnessed a patient with Learning Disabilities being treated with neglect or lack of dignity • Nearly 4 out of 10 doctors and third of nurses went as far as saying that people with Learning Disabilities are discriminated against (Mencap, Getting it right survey, June 2010)

8. 6 Lives Progress Update (2010) • More still to do on reasonable adjustments, particularly round changing clinical practice • Implementation of the Mental Capacity Act is still a concern

9. Getting It Right – what next ? • Which health organisations are not signed up ? Why ? • Need to ensure local stakeholders and users / carers are equipped to hold organisations who have signed up to the charter to account • Considering extending revised version to GP Consortia and practices • Implementation of 2 key projects in which ‘Getting It Right’ has had a key part in securing funding

10. HSCVF – Getting It Right ….from the start • 3 year programme • Working with 4 Clinical commissioning groups across England • 20 volunteers each area ( 10 volunteers with a learning disability and 10 volunteer supporters) • Review of current position and offer of further self assessment particularly focussing on reasonable adjustments • Bespoke training and input according to local needs – some GP focussed and some community healthcare focussed • Schedule of data collection – qualitative and quantitative • External evaluation and dissemination • Impact upon policy and practice : • Opportunity to influence commissioning under new arrangements and shape local health watch • Support implementation of DES for annual health checks, equalities act and ‘big society’ ideals • Dissemination of outcomes for widespread impact across UK

11. Simply health – general hospital road shows • One off funding from Simply Health ( health insurance company) • Road shows within general hospital settings • Showing DVD ‘Freddie’s story’ • Information , resources and workshops • Sign up to Getting It Right Charter and local accountability • Hospital passport • Mental Capacity Act • Impact upon policy and practice • Support implementation of equalities duty and Mental Capacity Act • Widespread sharing of good practice • Maintaining charter pledges and commitments

12. Health programme –where it fits • Community Action • Campaigns and policy • Part of wider interconnected national support team based upon evidence of needs and to deliver beneficial and innovative outcomes which support Mencaps strategic goals : • Children and young peoples programme • Families and inclusive communities • Inclusion support • Leisure and positive activities • Inspire Me • Raising Your Game • NOFAS ( National Organization on Fetal Alcohol Syndrome) • Learning products

13. My Healthy life priorities 2011/12 • Continue to improve access to and the quality of primary health care by: • implementing HSCVF project • GP / clinical commissioning group sign up to primary care focussed GIR charter • Utilising ‘ my healthy life’ outcomes in ‘what matters to me’ quality checks within Personal Support Services • Partnership working to support / contribute to research • Provision of a Health hub to share good practice/ outcomes • Continue to improve care and safety in general hospitals by: • Implementing simply health programme • Agree and promote a standard hospital passport • Further promotion and sign up to GIR charter • Support / contribute to research • Sharing with partners as members of the health and human rights project • Share good practice on health hub and potentially host A2A national network website • Improve safety , access to and quality of specialist healthcare including mental health services ( see next slide for details)

14. Specialist Healthcare (including access to Mental health care) • Winterbourne review – support implementation of recommendations. • Influencing specialist and local commissioning • Decrease in out of area placements • Increase in personalised local commissioning and specialist community support • Support / contribute to research • Review of and potential to up date Green light tool kit ( in partnership with IHAL ) to help improve access to mental health services ( in primary and secondary care)

15. NHS bill 2011 – moving forward We must ensure progress is not lost: • Health checks and HAPS • Using health self assessment framework • Data and choice and control • PMLD and specialist commissioning • Local Healthwatch

16. Any questions