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Alternating Hemiplegia of Childhood Foundation 2 nd Annual NC 5K Run & 1.5 Mile Walk PowerPoint Presentation
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Alternating Hemiplegia of Childhood Foundation 2 nd Annual NC 5K Run & 1.5 Mile Walk

Alternating Hemiplegia of Childhood Foundation 2 nd Annual NC 5K Run & 1.5 Mile Walk

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Alternating Hemiplegia of Childhood Foundation 2 nd Annual NC 5K Run & 1.5 Mile Walk

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  1. Alternating Hemiplegia of Childhood Foundation 2nd Annual NC 5K Run & 1.5 Mile Walk Corporate Sponsor Info

  2. An extremely rare neurological disorder • Bouts of temporary paralysis lasting minutes, hours, even days & moving from one side of the body to the other • Severe learning, gross, and fine motor skill development impairment • Permanent, currently incurable and essentially untreatable(but we are making strides to change that!) What is Alternating Hemiplegia of Childhood?

  3. WHAT IS THE AHC FOUNDATION (AHCF)? • A combination of the International Foundation for Alternating Hemiplegia of Childhood (IFAHC), founded in 1993, and the Alternating Hemiplegia Foundation (AHF), founded in 1995. The AHCF is a non-profit, tax exempt organization run by parents of children with AHC. • WHAT IS THE MISSION OF THE AHCF? • Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals. • Secondarily, we strive to promote proper diagnosis, educate health care professionals, the public and related organizations, encourage the worldwide exchange of information and advance the development of an international database of all AHC patients. History of AHC Foundation

  4. SIGNIFICANT RECENT EVENTS • August, 2010 Rolesville, NC resident Jeff Wuchich becomes AHCF President. • November, 2010 Won $250,000 in Pepsi Refresh Contest • January, 2011 funded critical full genome sequencing research project aimed at getting to the root cause of AHC • June, 2011 Launched new Logo & Website • July, 2011 Conducted 1st Annual Family Meeting in 3 years (held here in Raleigh, NC) History of AHC Foundation (Cont.)

  5. WRAL Story (November, 2010) http://www.wral.com/news/local/video/8692102/#/vid8692102 News & Observer Article July, 2011 http://www.northraleighnews.com/2011/07/23/8994/grant-allows-rolesville-charity.html YouTube Video (3 min) "Determination Bears Hope" http://www.youtube.com/watch?v=4F3qk9qT-tU Why Raleigh Businesses Should Care

  6. Goal : $50,000 • To fund the next phase of research on the heels of Pepsi Project • To further research into treating the physical, developmental, & behavioral symptoms of AHC • To identify the likely thousands of undiagnosed cases of AHC through awareness campaigns Goal & Purpose for Event

  7. Expected: 500 Participants • Local support from Rolesville Elementary School from Matthew’s popularity • SAS Community has been very supportive • Strong ties to church communities Expectations

  8. SATURDAY, SEPT. 22, 2012 Event Details

  9. Title Sponsor $5,000 • Title position on event banner • Name as Title sponsor on all run communications • Logo on Website • Logo on run T-shirt • 5 event registrations • Display at the registration area Corporate Sponsorship Levels

  10. Walk Sponsor $2,500 • Second position on event banner • Logo on Website & on run T-shirt not to exceed size of the Title sponsor • Recognition in event press release • 5 event registrations • Display at the registration area Corp. Sponsorship Levels (Cont.)

  11. Kilometer Sponsor $1,000 • Third level position on event banner • Place sign at kilometer mark (Need Approval) • Logo on Website & on run T-shirt not to exceed size of the Title sponsor • Recognition in event press release • 2 event registrations Corp. Sponsorship Levels (Cont.)

  12. Couch Potato Sponsor $250 • You don’t have to run! • Name on the sponsor banner • Listed on website Corp. Sponsorship Levels (Cont.)