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OPTN/UNOS Patient Affairs Committee

OPTN/UNOS Patient Affairs Committee. Spring 2013 Update . Ongoing Committee Initiatives. Waitlist patient notification materials review Patient Information Letter Quick Reference Guide OPTN: http://optn.transplant.hrsa.gov/resources/professionalResources.asp

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OPTN/UNOS Patient Affairs Committee

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  1. OPTN/UNOS Patient Affairs Committee Spring 2013 Update

  2. Ongoing Committee Initiatives • Waitlist patient notification materials review • Patient Information Letter • Quick Reference Guide • OPTN: http://optn.transplant.hrsa.gov/resources/professionalResources.asp • Transplant Pro: http://transplantpro.org/resources/professional-resources/ • DEQ – monitoring impact of patient notification webinar on compliance

  3. 2010 vs 2012 – Patient Notification Survey Results Post-Education 2010 2012

  4. Ongoing Committee Initiatives (cont.) Teen Adherence Project (TAP) • Review of Current Resources • Contacted programs involved in current research in the area of teen adherence • Dr. Diana Shellmer, PhD - Psychologist with UPMC • Curriculum Development • Define Adherence Education • Develop resources based on identified gaps

  5. Ongoing Committee Initiatives Teen Adherence Project (TAP) • Review and identify teen adherence and transition educational resources and practices • Develop professional education on teen adherence and transition based on effective practices

  6. New Committee Initiatives Organ-Specific What Every Patient Needs to Know • Identify patient and family education needs by organ • Review Patient Services Line database

  7. Questions? • Laura EllsworthCommittee Chairlaura.ellsworth@ppVotesNW.org • NameRegionemail address • Freda WilkinsUNOS Committee Liaisonfreda.wilkins@unos.org

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