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Carers Research Partnership

Carers Research Partnership. Carers Research Partnership Building on Success. Carers Research Partnership. Milestones for the Carers Research Partnership. Getting started. Feb 1999 : 1st Meeting Dec 2000 : Application to Lloyds TSB Foundation

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Carers Research Partnership

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  1. Carers Research Partnership Carers Research Partnership Building on Success

  2. Carers Research Partnership Milestones for the Carers Research Partnership Getting started Feb 1999 : 1st Meeting Dec 2000 : Application to Lloyds TSB Foundation April 2001 : Funding from Lloyds TSB Foundation Oct 2001 : Appointment of P/T Administrator (Peter Blackledge)

  3. Carers Research Partnership Milestones for the Carers Research Partnership Consolidating Feb 2002 : Grant from GUHT Endowments (Carer involvement orthopaedic patients) Sept 2002 : Scottish NHS Research Day (Involving patients and carers in research design) March 2002 : MS Carers’ Research Feedback Oct 2002 : Start orthopaedic research project Nov 2002 : Funding from Carers Strategy Monies

  4. Carers Research Partnership Milestones for the Carers Research Partnership The Future? March 2003 : Application to PPP on Carers Health March 2003 : Proposal to MacMillan (Carers Project)

  5. Carers Research Partnership The Context 1999 Strategy for Carers in Scotland 2000 Joint Futures for Carers Project (Coalition of Carers in Scotland/Carers Scotland) 2001 Patient Focus & Public Involvement (Scottish Executive) 2002 Community Care and Health (Scotland) Act - Carer’s assessment in own right - Carer information strategies

  6. Carers Research Partnership Main aims of the Carers Research Partnership • To provide a forum to: • share ideas and information • collate and disseminate relevant research findings • identify gaps in research and set priorities for new work • seek funding to profess new research to meet needs • ensure relevant and appropriate information

  7. Carers Research Partnership Objectives for Lloyds TSB 1 Timely dissemination of relevant research to carers and carer organisations 2 Systematic methods for engaging with carers to determine research priorities 3 Obtain funding for at least one jointly developed research project 4 Ensure research findings available to inform health & social care strategies for carers 5 Facilitate communication through . . . . - website: www.rgu.ac.uk/carers - bulletins - annual report

  8. Carers Research Partnership Steering Group • Aberdeen City Council Social Work Department • Age Concern • VSA Carers Centre • Carer and cared for • Grampian University Hospitals NHS Trust • Grampian Primary Care NHS Trust • The Robert Gordon University

  9. Carers Research Partnership PPP Application PPP Older People Programme (defer entry to hospital or long term care) Title: Carers Count : Identifying carers’ health needs, involving them in health and social care decision making and improving support services

  10. Carers Research Partnership Aims • to identify appropriate methods of maintaining the health of carers • to make recommendations on how infrastructures, processes and practices within health and social care can be designed to best meet the health needs of carers

  11. Carers Research Partnership Premise If carers of older people can be supported so as to maintain their own health, they are more likely to be able to support the person they care for and so avoid or delay hospitalisation or admission to long term care

  12. Carers Research Partnership Main Activities • Carry out survey of carers support workers • Set up network of all organisations with an interest in carers’ health & carers’ involvement in healthcare decision making • Survey of health living centres/networks in Scotland (42) initiatives with focus on carers • Investigate use of helplines by carers, eg NHS 24, The Samaritans, MS Society • 50 one-to-one interviews with carers • Focus groups with health & social care professionals

  13. Carers Research Partnership Approach Action - Research • data collection, analysis and interpretation Guiding principles • increase knowledge and understanding • achieve improvements in practice

  14. Carers Research Partnership The Future 5th Anniversary : February 2004

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