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Connecting Science to People. Janet S. Austin, Ph.D. Director, Office of Communications and Public Liaison National Institute of Arthritis and Musculoskeletal and Skin Diseases National Institutes of Health. Connecting Science to People. Communication Objectives.

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connecting science to people

Connecting Science to People

Janet S. Austin, Ph.D.

Director, Office of Communications and Public Liaison

National Institute of Arthritis and Musculoskeletal and Skin Diseases

National Institutes of Health

connecting science to people1
Connecting Science to People

Communication Objectives

  • Make medical research personally relevant
  • Serve as trusted source of health information
  • Explain NIH’s role in medical research
slide4

NIH Resource:

Other NIH Web Sites

http://medlineplus.gov

http://clinicaltrials.gov

slide5

Connecting Science to People

NIAMS Mission

  • The mission of the National Institute of Arthritis and Musculoskeletal and Skin Diseases, a component of the U. S. Department of Health and Human Services’ National Institutes of Health, is to support:
  • research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases,
  • the training of basic and clinical scientists to carry out this research, and
  • the dissemination of information on research progress in these diseases.
slide6

Connecting Science to People

“Our research belongs ultimately to the

American people, for whom we serve as

stewards in improving the public's

health.”

Stephen I. Katz, M.D., Ph.D. NIAMS Director

what ocpl does
What OCPL Does
  • Web management
  • Communications support
  • Clearinghouse contract management
  • Multicultural health communications
  • Web content management
  • Publications
  • Feature writing
  • Media liaison
  • Inquiry response
  • Outreach
  • Public liaison 
ocpl staff
OCPL Staff
  • Writer-editors
  • Public affairs specialists
  • Health educators
  • Public liaison officer
  • Web manager
  • Information assistants
  • Support staff
  • Project officers
points of service
Points of Service
  • NIAMS Office of Communication and Public Liaison (OCPL)
  • NIAMS Information Clearinghouse
  • NIH Osteoporosis and Related Bone Diseases~National Resource Center
publications production and dissemination
Publications: Production and Dissemination
  • Handouts on Health
  • Questions and Answers series
  • Fact Sheets
  • Special publications (e.g., Progress and Promise)
  • Easy-to-read, bilingual, and Spanish publications
  • Information packets
  • Newsletters: Shorttakes, IRPartners, E-Blast
public liaison
Public Liaison
  • Outreach to constituency groups
  • Contact for constituent referral for Members of Congress
  • Liaison to NIAMS Coalition
  • Public contact for policymatters
web content management
Web Content Management
  • Web design
  • Web policy
  • Information updates
  • Technology issues
  • Inquiry response
  • Content
information development and dissemination
Information Development and Dissemination
  • Guiding Principles:
  • Provide culturally appropriate, audience-specific educational materials written in plain language
  • Routinely review and revise existing materials
  • Facilitate rigorous review of NIAMS materials by the scientific and lay communities
  • Work collaboratively with other NIH/DHHS organizations, voluntary and professional groups, and universities and medical centers in developing materials
  • Effectively use intermediaries for distribution, including faith- and community-based organizations, NIAMS partners, the Federal Consumer Information Center, and health professionals
slide15

What is Arthritis and Rheumatic Disease?

  • Rheumatic diseases involve the muscle, joints, and bones. There are over 100 rheumatic diseases.
  • Arthritis literally means joint inflammation.
  • Many rheumatic diseases cause inflammation of joints and also muscle, bones, and other supporting structures.
slide16

Diagnosing Arthritis

  • Early diagnosis and treatment is important.
  • Diagnosis can be difficult because some symptoms and signs are common to many different diseases.
  • It may take more than one office visit for the doctor to make an accurate diagnosis. 
slide17

Treating Arthritis

Treatment Goals:

  • Relieve pain
  • Control inflammation
  • Slow down or stop joint damage
  • Improve well-being and ability to function
  • Prevent disability
slide18

Ways to Treat Arthritis

  • Lifestyle changes
  • Medications
  • Surgery
  • Complementary and alternative medicine and nutritional supplements
slide19

Lifestyle changes

  • Healthful diet and weight control
  • Exercise
  • Rest and relief
  • Non-drug pain relief
slide20

Healthful Diet and Weight Control

  • An overall nutritious diet is important
  • Weight loss can reduce stress on weight-bearing joints
  • Limit or avoid consuming alcohol
  • A dietitian can help
exercise
Exercise
  • Reduces joint pain
  • Helps maintain healthy weight
  • Increases flexibility, muscle strength, cardiac fitness, and endurance
  • Ask a doctor or physical therapist what exercises are best for you
rest and relief
Rest and Relief
  • Learn your body’s signals on when to stop or slow down
  • Rest helps reduce joint inflammation and fights fatigue
  • Short breaks better than prolonged time in bed
  • Splints or braces can take pressure off joints
  • Assistive devices helps reduce joint stress
non drug pain relief
Non-Drug Pain Relief
  • Relaxation, distraction, visualization exercises
  • Heat and cold treatments
  • Massage
  • TENS
slide24

Medications

Analgesics(pain relievers)

Nonsteroidal Anti-Inflammatory Drugs (NSAIDs)

Biological response modifiers

Corticosteroids

Disease-Modifying Antirheumatic Drugs (DMARDs)

Hyaluronic acid products

questions to ask your doctor or pharmacist
Questions to Ask Your Doctor or Pharmacist
  • How often should I take this medicine?
  • Should I take this medicine with food or between meals?
  • What side effects might occur?
  • Should I take this medicine with the other prescription medicines I take?
  • Is this medication safe considering other medical conditions I have?
surgery
Surgery

Surgery is used to:

  • Reduce pain
  • Improve the affected joint’s function
  • Improve ability to perform daily activities

Things to consider

  • Level of disability
  • Intensity of pain
  • Age
  • Occupation
  • Level of interference with the patient’s lifestyle
complementary and alternative therapies
Complementary and Alternative Therapies

Ongoing research on therapies for people with osteoarthritis:

  • Acupuncture
  • Nutritional supplements
    • Glucosamine and chondroitin sulfate
    • Vitamins D
    • Green tea
slide28

NIAMS Arthritis Research

OAI

CARRA

NARAC

NIAMS IRP

osteoarthritis initiative oai
Osteoarthritis Initiative (OAI)
  • A Public-Private Partnership
  • Funded by 7 NIH Components, the FDA and several pharmaceutical companies
  • Includes 4,800 participants at risk for developing knee OA
  • GOALS:
    • To create research resources to aid in the identification and evaluation of biomarkers for OA
    • To further drug development and improve public health
north american rheumatoid arthritis consortium narac
North American Rheumatoid Arthritis Consortium (NARAC)
  • A multicenter group that seeks to identify RA susceptibility genes
  • Recent discoveries include the identification of susceptibility genes common to people with RA and lupus, and identifying a new RA susceptibility gene region
childhood arthritis rheumatology research alliance carra
Childhood Arthritis & Rheumatology Research Alliance (CARRA)

NIAMS supports many CARRA studies, including:

  • Trial of Early Aggressive Therapy in Juvenile Idiopathic Arthritis
niams intramural research program irp
NIAMS Intramural Research Program (IRP)
  • NIAMS Community Health Center

(Cardozo area of Washington, D.C.)

  • NIAMS Pediatric Rheumatology Clinic
  • NIAMS Cartilage Biology and Orthopaedics Branch
  • NIAMS Arthritis and Rheumatism Branch
slide33

For more information

www.niams.nih.gov/health_info

slide34

2 AMS Circle

Bethesda, MD 20892 - 3676

Phone: 301-495-4484

Toll Free: 877-226-4267

Email: NIAMSInfo@mail.nih.gov

http://www.niams.nih.gov/health_info

NIAMS

Information Clearinghouse

slide36

Why Are Healthy Bones Important?

  • Strong bones support us and allow us to move
  • Bones are a storehouse for vital minerals
  • Strong bones protect our heart, lungs, brain and other organs
slide37

Osteoporosis

  • Osteoporosis is defined as a skeletal disorder characterized by compromised bone strength predisposing to an increased risk of fracture.

Osteoporosis Prevention, Diagnosis, and Therapy. NIH Consens Statement 2000 March 27-29; 17(1): 1-36.

slide39

Prevalence

  • In the United States 8 million women and 2 million men have osteoporosis
  • An additional 34 million Americans currently have low bone mass
  • One out of two women and one out of four men aged 50 years and older will suffer an osteoporosis-related fracture in their lifetime
slide41

Osteoporosis risk factors that you cannot change

  • Gender – risk is greater for women
  • Age - the older you are, the greater your risk
  • Body size - Small, thin-boned women are at greater risk.
  • Ethnicity - Caucasian and Asian women are at highest risk. African American and Hispanic women have a lower but significant risk.
  • Family history - Fracture risk may be due, in part, to heredity.
slide42

Osteoporosis risk factorsthat you can change

  • Sex hormones - Abnormal absence of menstrual periods (amenorrhea), low estrogen level (menopause), and low testosterone level in men.
  • Anorexia nervosa - increases risk
  • Calcium and vitamin D intake - A lifetime diet low in calcium and vitamin D.
  • Medication use - Long-term use of glucocorticoids and some anticonvulsants and others.
slide43

Osteoporosis risk factorsthat you can change

  • Physical Activity - An inactive lifestyle or extended bed rest tends to weaken bones.
  • Cigarette smoking - Cigarettes are bad for bones as well as the heart and lungs.
  • Alcohol intake - Excessive consumption increases the risk of bone loss and fractures.
slide45

Medications

  • Bisphosphonates - Bisphosphonates slow the bone breakdown process. Healthy bones are in a state of continuous breakdown and rebuilding. As you get older, and especially after menopause when your estrogen levels decrease, the bone breakdown process accelerates. When bone rebuilding fails to keep pace, bones deteriorate and become weaker. Bisphosphonates basically put a brake on that.
  • Raloxifene - Raloxifene is in a class of medications called selective estrogen receptor modulators (SERMs). Raloxifene prevents and treats osteoporosis by mimicking the effects of estrogen (a female hormone produced by the body) to increase the density (thickness) of bone.
  • Calcitonin - Calcitonin is a medicine that slows the rate of bone loss and relieves bone pain.
  • Teriparatide - Teriparatide contains a synthetic form of natural human hormone called parathyroid hormone (PTH). It works by causing the body to build new bone and by increasing bone strength and density (thickness).
  • Estrogen/Hormone Therapy
slide46

Universal Steps for Strong Bones

  • A diet rich in calcium and
  • vitamin D
  • Regular weight-bearing activity
  • Healthy lifestyle
slide47

Calcium

  • Food sources are recommended
    • Dairy products
    • Fortified foods
    • Green vegetables
  • Supplements are often necessary
slide49

Vitamin D

  • Necessary for the absorption of
  • calcium
  • Synthesized in skin on exposure to
  • sunlight or ingested in foods such as
  • egg yolks,fish, liver, or supplements
  • Fortified milk, cereals and orange
  • calcium
slide50

Vitamin D: The Sunshine Vitamin

  • According to National Osteoporosis Foundation, usually 10-15 minutes exposure of hands, arms and face two to three times a week (depending on one's skin sensitivity) is enough to satisfy the body's vitamin D requirement.
slide51

Physical Activity

  • Weight-bearing (walking, stair climbing, dancing)
  • Tai chi – enhances muscle function and balance
  • Avoid exercises that involve:
    • Forward flexion of the spine
    • Bending from the waist
    • Twisting or jerking the spine
  • Keep one foot on the ground
slide52

NIAMS-funded

  • Osteoporosis Research
slide59

2 AMS CircleBethesda,  MD 20892-3676Phone: 202–223–0344Toll Free: 800–624–BONETTY: 202-466-4315Fax: 202-293-2356Email:NIAMSBoneInfo@mail.nih.govWebsite:http://www.niams.nih.gov//bone/

NIH ORBD~NRC