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This research aims to understand dementia perceptions among Bangladeshi individuals in the UK, exploring barriers to diagnosis and communication. The study uses qualitative synthesis and interviews to fill gaps in literature and improve practice.
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Understanding dementia among UK Bangladeshi PhD Student: Muhammad Hossain Supervisors: Dr Ann Dewey, Dr Yohai Hakak, Dr Karan Jutlla NICE clinical guideline 42
Outline of talk • Aims and objectives • Research questions • Background and context • Gap in the literature • Research design • Qualitative synthesis • Semi-structured in-depth interviews • Progress so far • Things still to do
Aims and objectives • Part one: • Qualitative research synthesis • Explore South Asian people’s experience • Explore informal and formal carers views Part two: • Explore Bangladeshi people’s experience • Explore the cultural and religious issues
Research questions • What are the understanding of dementia among Bangladeshi people with and without dementia? • Attitudes among families and carers • Barriers to diagnosis • Barriers to communication • Improving practice
Background and context Number of people with dementia in the UK At present 821,884people By 2025 1 million people By 2051 1,735,087 people • 11, 000 to 15, 000 estimated people with dementia from BME groups • No estimated numbers from South Asian groups • Predicted the numbers will rise quickly
Gap in the literature • More US based studies than UK • A hidden problem for a hidden population • Few UK based studies among South Asian • Generalization • No studies among Bangladeshis
Research design • Part one overview: • Meta-aggregation: A pragmatic approach • Comprehensive search of the literature • QARI appraisal tool • Gaps in the literature • Lines of action
Research design • Part one overview (continued): • Focussed research question using the acronym PICO • Develop Search Strategy • Searching for the Evidence • Selecting Studies • Critically Appraising Studies • Data Extraction • Data Synthesis
Research design(continued) • Part two overview: • Primary research- Qualitative research • Data collection: Semi-structure interviews • Sampling • Recruitment • Data analysis
Progress so far • Review protocol written • Comprehensive literature search • EPPI-Reviewer 4 database setup • Made contacts with potential collaborators • Presented research poster in several seminars and conferences including ESRC in the UK
Things still to do • Ethics approval • Qualitative interviewing training
If you would like to take part, please contact us: • Muhammad.Hossain@port.ac.uk • Tel: +44 (0)23 9284 4461 This Project will finish by 2016. • Thank you!