Patient awareness campaigns 2013-14
1 / 20

So far this year... - PowerPoint PPT Presentation

  • Uploaded on

Patient awareness campaigns 2013-14 What’s happened, what’s coming up and how you can get involved Daniel Spiers – NIHR Clinical Research Network Communications Manager. So far this year. Mystery shopper. Campaign I Mystery shopper. Background Clinician-based approach Hugely successful

I am the owner, or an agent authorized to act on behalf of the owner, of the copyrighted work described.
Download Presentation

PowerPoint Slideshow about 'So far this year...' - sai

An Image/Link below is provided (as is) to download presentation

Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author.While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server.

- - - - - - - - - - - - - - - - - - - - - - - - - - E N D - - - - - - - - - - - - - - - - - - - - - - - - - -
Presentation Transcript
So far this year

Patient awareness campaigns 2013-14What’s happened, what’s coming up and how you can get involvedDaniel Spiers – NIHR Clinical Research Network Communications Manager

So far this year
So far this year...

Mystery shopper

Campaign i mystery shopper
Campaign IMystery shopper


  • Clinician-based approach

    • Hugely successful

    • Over 630,000 patients participated during 2012-13

    • 99% per cent of Trusts now support clinical research

  • BUT patients often unaware of research unless they are approached (Source: CRN OnePoll consumer survey 2012)

  • We decided to explore how research was being promoted locally, within Trusts

The mystery shopper initiative
The mystery shopper initiative

  • 40 Trusts, 82 sites

  • November/December 2012, results published January 2013

    • Can patients find information about clinical research in the places they would expect to look? (according to consumer survey)

    • Are patients signposted appropriately when they do ask?

What we found
What we found

  • 91% of sites did not have any information on clinical research activity in the places patients are most inclined to look (eg reception, notice-boards, electronic screens, leaflet displays)

What we found1
What we found

  • Nearly half of all receptionists told the mystery shopper that research was “not something we do” and directed the shopper to another organisation, or had no suggestion

Support for trusts post shopper
Support for Trusts post-shopper

  • “We do clinical research” brochure: outlines existing and new materials to help Trusts to raise patient awareness about research

    • Resources can be branded with Trust logo

    • Some things paid-for, some free

    • Can be ordered online

    • Examples of good practice and a check-list

Impact short term
Impact (short-term)

  • 20 Trusts looking to do their own investigation: survey available to replicate if wanted

  • Trusts are making use of online ordering – 1600 items ordered and growing

  • Many supportive calls and comments from research nurses and clinicians across the country; including social media comments/group activity

  • Clinical Research Network equivalent in Wales looking to replicate our survey in all their research-active sites

Links to resources
Links to resources

  • Mystery shopper results. Report available at:


  • Mystery shopper questionnaire available at:


  • “We do research” brochure of support materials


  • Online ordering facility for research awareness materials



Campaign II

Only 21% of patients feel very confident of asking clinician about research (NIHR CRN OnePoll consumer survey 2013).

International Clinical Trials day 2013 campaign, the NIHR decided to address this through “OK to ask”.

This campaign is aimed at patients, medical professionals and the public. Everyone can get involved and help spread the word that it's OK to ask about clinical research.

What happened social media
What happened:Social media

A bit more detail
A bit more detail


  • Teasers/announcements

  • Created a specific hashtag to measure and track activity

  • Encouraged retweets to raise awareness and demonstrate support

So far this year


  • Pointed patients to the facebook page to share their questions and experiences

  • Shared videos and photographs with a patient audience

  • Encouraged support through likes, comments and shares



So far this year

  • Campaign III

  • Research changed my life

  • Research profile is often science based

  • But human aspect is key

  • Research changes lives – human stories

  • 20 case studies

  • Campaign will champion the significance of research to ….individuals and its impact on health of the nation

Things you can do right now
Things you can do right now

  • “Like” the CRN page on facebook

Things you can do right now1
Things you can do right now

  • “Like” the CRN page on facebook

  • “Like” the NIHR OK to ask page on facebook

  • Follow @NIHRCRN on twitter

  • Follow @OfficialNIHR on twitter

  • Sign up for the CRN patient awareness e: newsletter and help us take “OK to ask” forward

Thank you email daniel spiers@nihr ac uk

Thank you Email: