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GOALS AND PERSPECTIVES OF THE BILATERAL PROGRAMME ON

INTEGRATION OF DATA AND SYSTEMS BETWEEN MEDICAL STRUCTURES IN HUNGARY AND ITALY Italian – Hungarian bilateral project on health informatics 2000 – 2003, Registration Number: I-7/1999. Dr. Franceso Sicurello , sicu@itba.mi.cnr.it. Dr. Pál Simon , templar.bt@chello.hu. C.N.R I.T.B .

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GOALS AND PERSPECTIVES OF THE BILATERAL PROGRAMME ON

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  1. INTEGRATION OF DATA AND SYSTEMS BETWEEN MEDICAL STRUCTURES IN HUNGARY AND ITALY Italian – Hungarian bilateral project on health informatics 2000 – 2003, Registration Number: I-7/1999. Dr. Franceso Sicurello,sicu@itba.mi.cnr.it Dr. Pál Simon,templar.bt@chello.hu C.N.R I.T.B. ISTITUTO DI TECNOLOGIE BIOMEDICHE SEGRATE (MILANO) TEMPLAR Partnership Company TEMPLAR CNR – ITBA - Epidemiology and Medical Informatics Unit, Milan Templar Partnership Company, Budapest GOALS AND PERSPECTIVES OF THE BILATERAL PROGRAMMEON THE INTEGRATION OF DATA AND SYSTEMS BETWEEN MEDICAL STRUCTURES IN HUNGARY AND ITALY PROJECT COORDINATORS: 1

  2. INTEGRATION OF DATA AND SYSTEMS BETWEEN MEDICAL STRUCTURES IN HUNGARY AND ITALY Italian – Hungarian bilateral project on health informatics 2000 – 2003, Registration Number: I-7/1999. CNR – ITBA - Epidemiology and Medical Informatics Unit, Milan Templar Partnership Company, Budapest The chapters of the presentation • The objectivesand thehealth professional ideas that founded the Italian – Hungarian bilateral programme [from the referencesare linked: 1, 2, 3, 5] 1Pál Simon M.D. Ph. Sc., László D. Molnár M.D., Béla Juhász: Portable Electronic Patient Record with special database functions (PATREC): preparation of the health card system application.Health Cards ’99 Congress, Milan, 5-7 october 1999, Proceedings: pp. 74-79. • The short history and theresults of the Italian – Hungarian bilateral programme [from the referencesare linked:4, 6, 7, 9] 2Pál Simon: Multifunctional Smart Doctor Card MSDC. Smart Card Italia – 2000. IV Conference-Exhibition on Smart Cards: technologies and Applictions. December 12, 2000, University Bicocca, Milan. 4B. Righetti (Scientific Attaché Italian Embassy, Budapest):Cooperation programs in health informatics between Italy and Hungary. @ITIM 2001 Conference, 23-24 September, 2001 Palermo. 7 Smart cards access technology to secure information systems and (interactive) services.Workshop 23-24 May 2002 Budapest, IST Co-ordination Point of the Ministry of Education, Research and Development Division, Templar Partnership Company. • About the further plans: a proposed common system-model variant 3Pál Simon M.D. Ph. Sc., Dénes Kellner, László Békési M.D., István Loványi, István Schiszler M.D.:Portable Patient Record Model (PPRM) for the introducing of smart card system and preparation of the interactive database network.MEDINFO 2001 London, September 2-5 2001. Poster, proceedings 252 – 8. 5SMART CARDS AND THE BACKGRUOND SYSTEMS.Conference on the tasks defined by the eEurope and eEurope + initiatives. June 28 – 29 2001 Budapest. Proceedings, Senior editor: Dr. Pál Simon. [from the referencesare linked:8, 10] 6Advanced Course on medical Informatics, Bio-Informatics and Statistical Software. Course CNR LITA Palace Milano, May 13-17. Course Coordinator: Francesco Sicurello, Faculty: Pál Simon professor and researhcer Templar Partnership Company. 8 Dr. Francesco Sicurello, Dr. Pál Simon, Dr. Patrizia Magretti (Ms), Ágota Medgyesi (Ms):The Goals and the Perspectives on the common research and development work about the Italian – Hungarian bilatreal programme. MIE 2002 G Surjan at all (eds) IOS Press 2002, Proceedings: 143-147 pp. • Conclusions and perspectives 9Towards Telemedicine and Health Informatics Cooperating Network between Italy, Hungary and Central-East European Countries. Workshop in the frame of MIE 2002 Budapest (Congress Centre University of Sciences, Room G, August 28). Chairmen: Benito Righetti (Scientific Attaché of Italian Embassy in Budapest) 10The theme market for young health informatics professionals.Coordinators: Dr. Pál Simon and Dr. Francesco Sicurello. Workshop7 in the framework of the XVIIth Medical Informatics Europe. MIE 2002 Budapest 2

  3. INTEGRATION OF DATA AND SYSTEMS BETWEEN MEDICAL STRUCTURES IN HUNGARY AND ITALY Italian – Hungarian bilateral project on health informatics 2000 – 2003, Registration Number: I-7/1999. CNR – ITBA - Epidemiology and Medical Informatics Unit, Milan Templar Partnership Company, Budapest Theobjectivesand thehealth professional ideasthat founded the Italian – Hungarian bilateral programme To collect themedical data bank networks from different services for common interactive use; To collect the problem-oriented portable medical record structures for the analysing of quality control and controllingonindividual and on population level; To prepare the realisation of the high-speed networks and databases, the multifunctional smart card systems. The modern health information system has to provide information about the care-needs of the population and the patients, the immaterial and material conditions of health care, the functioning ofthehealth care process and has to analyse the outcome of care, to evaluate the efficiency of care and to compare original needs and changing demands. 3

  4. INTEGRATION OF DATA AND SYSTEMS BETWEEN MEDICAL STRUCTURES IN HUNGARY AND ITALY Italian – Hungarian bilateral project on health informatics 2000 – 2003, Registration Number: I-7/1999. CNR – ITBA - Epidemiology and Medical Informatics Unit, Milan Templar Partnership Company, Budapest The main milestonesof the Italian – Hungarian bilateral programme The organization and the realisationof theSmart Cards and the Background Systemsa conference in Budapest on 28-29 June, 2001 2nd@ITIM Conference inPalermoon 23-25 September, 2001: the survey of the Italian and Hungarian projects on telemedicine, patient record structuresand healthcards systems The collaboration in the organisation of the eSmart Card info day in Budapest on 23-24 May, 2002 with IST Hungarian Co-ordination Point The organisation of the workshops‘The theme – market for young health informatics professionals’‘Telemedicine Copertaing Network between Itlay, Hungary CEE Countries’, ‘NEUROWEB’in the framework of MIE 2002 4

  5. INTEGRATION OF DATA AND SYSTEMS BETWEEN MEDICAL STRUCTURES IN HUNGARY AND ITALY Italian – Hungarian bilateral project on health informatics 2000 – 2003, Registration Number: I-7/1999. CNR – ITBA - Epidemiology and Medical Informatics Unit, Milan Templar Partnership Company, Budapest About the further plans: a proposed common system-model variant The goal is to develop the prototype of a model system which provides the individual on-line patient follow-up in an interactive way - patient-oriented organising concept supports medical activities and their evaluation - quality-oriented organising concept offers real-time services to the management of the department and the institute - management-oriented organising concept on the GOVERNMENTAL LEVEL REGIONAL LEVEL MEDICAL WORKING PLACE 5

  6. INTEGRATION OF DATA AND SYSTEMS BETWEEN MEDICAL STRUCTURES IN HUNGARY AND ITALY Italian – Hungarian bilateral project on health informatics 2000 – 2003, Registration Number: I-7/1999. CENTRAL DATABASE PILOT DATABASE COMPETENCE & CONTRIBUTION TRANSACTIONS CENTRAL DATABASE PILOT DATABASE CNR – ITBA - Epidemiology and Medical Informatics Unit, Milan Templar Partnership Company, Budapest GOVERNMENTAL LEVEL Set of portable patient records Competence controlling, separating of deficient competence, contribution Health Insurance Competence SYSTEM SERVICES: INDIVIDUAL INFORMATION FOR THE PATIENTS (COMPETENCE SERVICES, CONTRIBUTION – EMPLOYMENT BALANCE) SYSTEMATIC DECISION MAKING INFORMATION FOR THE MANAGEMENT(THE HEALTH INSTITUTES, HEALTH INSURANCE, GOVERNMENTAL ORGANS) CENTRAL REVENUE OFFICE CONTRIBUTION REGISTER 6

  7. INTEGRATION OF DATA AND SYSTEMS BETWEEN MEDICAL STRUCTURES IN HUNGARY AND ITALY Italian – Hungarian bilateral project on health informatics 2000 – 2003, Registration Number: I-7/1999. DATABASE OF MEDICAL WORK PLACE PATIENT CARD PATIENT CARD P ADT OUTPUT ADT INPUT P DOCTOR CARD DOCTOR CARD POS TERMINAL HEALTH CARE – MEDICAL - ACTIVITIES ANAMNESIS, STATUS, INVESTIGATIONS, DIAGNOSIS, THERAPY, QUALITY CONTROL, CONTROLLING CNR – ITBA - Epidemiology and Medical Informatics Unit, Milan Templar Partnership Company, Budapest REGIONAL LEVEL SYSTEM SERVICES: MANAGEMENT-ORIENTED AND PATIENT-ORIENTED INFORMATION (FROM PORTABLE RECORDS TO PROBLEM-ORIENTED PORTABLE RECORDS) Health insurance competence control activating preliminary health status Certifying of health care results, quality control and controlling PORTABLE PROBLEMORIENTED RECORD COMPARISON BETWEEN ORIGINAL CARE AND MEDICAL PROTOCOLS: QUALITY CONTROL DIRECT AND INDIRECT COSTS OF CARE: CONTROLLING INDIVIDUAL FOLLOWING INFORMATION ABOUT THE HEALTH CARE ACTIVITIES Qualification of health care and health status Certifying of health care and health insurance competence 7

  8. INTEGRATION OF DATA AND SYSTEMS BETWEEN MEDICAL STRUCTURES IN HUNGARY AND ITALY Italian – Hungarian bilateral project on health informatics 2000 – 2003, Registration Number: I-7/1999. PATIENT RECORD FIELDS ADMINISTRATIVE IDENTIFICATION PERSONAL IDENTIFICATION, ADDITIONAL INSURANCE, SPECIAL INSTRUCTIONS RISC FACTORS RISK CATEGORIES, QUALIFICATION OF RISC EMERGENCY DATA BLOOD GROUP, CONGENITAL DISEASES, ACQUIRED DISEASES, ALLERGY, PERMANENT DRUGS, IMMUNISATION, RADIATION THERAPY HEALTH CARE LEVEL ID NUMBER OF CARE, IDENTIFICATION OF CLINICS, IDENTIFICATION OF WARD DOCTOR HEALTH CARE ACTIVITY DIAGNOSIS, DIAGNOSTICS, SURGERY, SURGEON, THERAPY QUALITY CONTROL, CONTROLLING FINAL DIAGNOSIS OF PATIENT, CLASSIFICATION OF THE OUTCOME OF DISEASES, QUALIFICATION OF THE PATIENT’S STATUS, QUALIFICATION OF THE PATIENT BY NEEDS OF PERMANENT CARE, TOTAL PATIENT’S BILL (detailed and total), CHARGE OF CARE FROM HEALTH INSURANCE (pay by DRG) PATIENT RECORD FIELDS ADMINISTRATIVE IDENTIFICATION PERSONAL IDENTIFICATION, ADDITIONAL INSURANCE, SPECIAL INSTRUCTIONS RISC FACTORS RISK CATEGORIES, QUALIFICATION OF RISC EMERGENCY DATA BLOOD GROUP, CONGENITAL DISEASES, ACQUIRED DISEASES, ALLERGY, PERMANENT DRUGS, IMMUNISATION, RADIATION THERAPY HEALTH CARE LEVEL ID NUMBER OF CARE, IDENTIFICATION OF CLINICS, IDENTIFICATION OF WARD DOCTOR HEALTH CARE ACTIVITY DIAGNOSIS, DIAGNOSTICS, SURGERY, SURGEON, THERAPY QUALITY CONTROL, CONTROLLING FINAL DIAGNOSIS OF PATIENT, CLASSIFICATION OF THE OUTCOME OF DISEASES, QUALIFICATION OF THE PATIENT’S STATUS, QUALIFICATION OF THE PATIENT BY NEEDS OF PERMANENT CARE, TOTAL PATIENT’S BILL (detailed and total), CHARGE OF CARE FROMHEALTH INSURANCE (pay by DRG) MEDICAL WORKING PLACE Portable Patient Record QUALITY CONTROL OF HEALTH CARE, QUALIFICATION OF HEALTH STATUS PATIENT RECORD FIELDS ADMINISTRATIVE IDENTIFICATION PERSONAL IDENTIFICATION, ADDITIONAL INSURANCE, SPECIAL INSTRUCTIONS RISK FACTORS RISK CATEGORIES, QUALIFICATION OF RISK EMERGENCY DATA BLOOD GROUP, CONGENITAL DISEASES, ACQUIRED DISEASES, ALLERGY, PERMANENT DRUGS, IMMUNISATION, RADIATION THERAPY HEALTH CARE LEVEL ID NUMBER OF CARE, IDENTIFICATION OF CLINICS, IDENTIFICATION OF WARD DOCTOR HEALTH CARE ACTIVITY DIAGNOSIS, DIAGNOSTICS, SURGERY, SURGEON, THERAPY QUALITY CONTROL, CONTROLLING FINAL DIAGNOSIS OF PATIENT, CLASSIFICATION OF THE OUTCOME OF DISEASES, QUALIFICATION OF THE PATIENT’S STATUS, QUALIFICATION OF THE PATIENT BY NEEDS OF PERMANENT CARE, TOTAL PATIENT’S BILL (detailed and total), CHARGE OF CARE FROM HEALTH INSURANCE (pay by DRG) Portable Patient Record CONTROLLING, COST BENEFIT OF HEALTH CARE Problem-oriented record types QUALITY CONTROL OF HEALTH CARE, QUALIFICATION OF HEALTH STATUS Problem-oriented record types CONTROLLING, COST BENEFIT OF HEALTH CARE CNR – ITBA - Epidemiology and Medical Informatics Unit, Milan Templar Partnership Company, Budapest PROBLEM-ORIENTED PORTABLE RECORDS ON A WORKSTATION OF MEDICAL WORKING PLACE DATA BASE CONSTRUCTION ON A WORKSTATION OF MEDICAL WORKING PLACE THE SEPARATION AND RECLASSIFICATION OF THE DATA ON HEALTH CARE PROCESS DATA OF THE HEALTH CARE EPISODES IN THE PATIENT RECORDS DIAGNOSTICS DATA, CHANGING OF DIAGNOSIS DIAGNOSTICS DATA, CHANGING OF DIAGNOSIS DIAGNOSTICS DATA, CHANGING OF DIAGNOSIS CLASSIFICATION OF MEDICAL INDICATION CLASSIFICATION OF MEDICAL INDICATION CLASSIFICATION OF MEDICAL INDICATION DATA ABOUT THE OUTCOME OF CARE DATA ABOUT THE OUTCOME OF CARE DATA ABOUT THE OUTCOME OF CARE DATA OF DIRECT COST OF CARE DATA OF DIRECT COST OF CARE DATA OF DIRECT AND INDIRECT COST OF CARE 8

  9. INTEGRATION OF DATA AND SYSTEMS BETWEEN MEDICAL STRUCTURES IN HUNGARY AND ITALY Italian – Hungarian bilateral project on health informatics 2000 – 2003, Registration Number: I-7/1999. the differences in the material and immaterial conditions of the health care network; the differences in thehealth insurance systems; the status of the information and communication technology; the situation of the education and the scientific-research activities in health informatics; the economic situation. CNR – ITBA - Epidemiology and Medical Informatics Unit, Milan Templar Partnership Company, Budapest Conclusions and perspectives Circumstances influence the realisation of this commonmodel: The perspectives are:to continue the realisationof the similar health informatics model in the medical working place level of health care system in the framework of the further bilateral cooperation 9

  10. INTEGRATION OF DATA AND SYSTEMS BETWEEN MEDICAL STRUCTURES IN HUNGARY AND ITALY Italian – Hungarian bilateral project on health informatics 2000 – 2003, Registration Number: I-7/1999. CNR – ITBA - Epidemiology and Medical Informatics Unit, Milan Templar Partnership Company, Budapest Bibilography (selection): 1Pál Simon M.D. Ph. Sc., László D. Molnár M.D., Béla Juhász: Portable Electronic Patient Record with special database functions (PATREC): preparation of the health card system application.Health Cards ’99 Congress, Milan, 5-7 october 1999, Proceedings: pp. 74-79. 2Pál Simon: Multifunctional Smart Doctor Card MSDC. Smart Card Italia – 2000. IV Conference-Exhibition on Smart Cards: technologies and Applictions. December 12, 2000, University Bicocca, Milan. 3Pál Simon M.D. Ph. Sc., Dénes Kellner, László Békési M.D., István Loványi, István Schiszler M.D.:Portable Patient Record Model (PPRM) for the introducing of smart card system and preparation of the interactive database network.MEDINFO 2001 London, September 2-5 2001. Poster, proceedings 252 – 8. 4B. Righetti (Scientific Attaché Italian Embassy, Budapest):Cooperation programs in health informatics between Italy and Hungary. @ITIM 2001 Conference, 23-24 September, 2001 Palermo. 5SMART CARDS AND THE BACKGRUOND SYSTEMS.Conference on the tasks defined by the eEurope and eEurope + initiatives. June 28 – 29 2001 Budapest. Proceedings, Senior editor: Dr. Pál Simon. 6Advanced Course on medical Informatics, Bio-Informatics and Statistical Software. Course CNR LITA Palace Milano, May 13-17. Course Coordinator: Francesco Sicurello, Faculty: Pál Simon professor and researhcer Templar Partnership Company. 7Smart cards access technology to secure information systems and (interactive) services.Workshop 23-24 May 2002 Budapest, IST Co-ordination Point of the Ministry of Education, Research and Development Division, Templar Partnership Company. 8Dr. Francesco Sicurello, Dr. Pál Simon, Dr. Patrizia Magretti (Ms), Ágota Medgyesi (Ms):The Goals and the Perspectives on the common research and development work about the Italian – Hungarian bilatreal programme. MIE 2002 G Surjan at all (eds) IOS Press 2002, Proceedings: 143-147 pp. 9Towards Telemedicine and Health Informatics Cooperating Network between Italy, Hungary and Central-East European Countries. Workshop in the frame of MIE 2002 Budapest (Congress Centre University of Sciences, Room G, August 28). Chairmen: Benito Righetti (Scientific Attaché of Italian Embassy in Budapest) 10The theme market for young health informatics professionals.Coordinators: Dr. Pál Simon and Dr. Francesco Sicurello. Workshop7 in the framework of the XVIIth Medical Informatics Europe. MIE 2002 Budapest 10

  11. INTEGRATION OF DATA AND SYSTEMS BETWEEN MEDICAL STRUCTURES IN HUNGARY AND ITALY Italian – Hungarian bilateral project on health informatics 2000 – 2003, Registration Number: I-7/1999. CNR – ITBA - Epidemiology and Medical Informatics Unit, Milan Templar Partnership Company, Budapest Togetherfor the not beyondfar-away future! Thank you for your attention ! 11

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