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BioSense: Using Health Data for Early Event Detection and Situational Awareness. September 2005 Lynn Steele Senior Advisor Coordinating Office for Terrorism Preparedness & Emergency Response Detailed to BioSense National Center for Public Health Informatics

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biosense using health data for early event detection and situational awareness

BioSense: Using Health Data for Early Event Detection and Situational Awareness

September 2005

Lynn Steele

Senior Advisor

Coordinating Office for Terrorism Preparedness & Emergency Response

Detailed to BioSense

National Center for Public Health Informatics

Centers for Disease Control and Prevention

summarize
Summarize
  • Concept of “Health Situational Awareness”
  • BioSense Clinical Connections Priority - Vision and Approach
  • Clinical Data of Interest
  • Benefits of Participation
  • Legal Authorities
  • Funding
cdc s health protection goals
CDC’s Health Protection Goals

Healthy People in Every Stage of Life:

All people, and especially those at greater risk of health disparities, will achieve their optimal lifespan with the best possible quality of health in every stage of life.

Healthy People in Healthy Places:

The places where people live, work, learn, and play will protect and promote their health and safety, especially those at greater risk of health disparities.

People Prepared for Emerging Health Threats:

People in all communities will be protected from infectious, occupational environmental, and terrorist threats.

Healthy People in a Healthy World:

People around the world will live safer, healthier, and longer lives through health promotion, health protection, and health diplomacy.

slide5

Public Health Information Network - Preparedness

  • Early Event Detection and Situational Awareness
  • Outbreak Management
    • Connecting Lab Systems
  • Partner Communications & Alerting
  • Countermeasure & Response Administration

Federal Health Architecture

National Health Information Network

early event detection and situational awareness
Early Event Detection and Situational Awareness
  • Great promise in using health related data, analysis, and visualization for initial event detection
  • Established value in public health decision makers knowing:
    • Is there really something going on?
    • Where is it?
    • How big is it?
    • Is it spreading?
    • Is our response working?
  • Situational awareness needs exist at the local, state, and federal levels
west nile 1999

3

Epi investigation started

2

Unreported

Number of cases

cases

1

Reported

cases

0

8-Aug

15-Aug

22-Aug

NYC DOHMH – Marci Layton

Date of Admission

West Nile - 1999

Clinical care data can be supportive of many information needs – even after initial event has been detected

initial event detection vs situational awareness
Initial Event Detection vs. Situational Awareness
  • Similar data sources – situational awareness emphasizes health care data (including hospital utilization)
  • Similar data types – situational awareness emphasizes clinical diagnoses over chief complaints
  • Similar analytic approaches – situational awareness emphasizes visualization over alerting
  • Slightly different use cases
situational awareness use cases
Situational Awareness Use Cases

Use case:

  • An environmental sensor in a major city detects anthrax. Is it a real event? A real threat?

Need:

  • Visualize trends in severe respiratory illness and skin lesions
situational awareness use cases10
Situational Awareness Use Cases

Use case:

  • Patients are presenting to a hospital emergency department with symptoms of acute atypical liver toxicity. Is this a new disease threat?

Need:

  • Review similar case presentations occurring elsewhere, assess if numbers are increasing, determine other clinical attributes
situational awareness use cases11
Situational Awareness Use Cases

Use case:

  • An outbreak is in progress affecting several large cities
    • What locations are affected within each jurisdiction?
    • Are numbers increasing? Decreasing?
    • Is outbreak spreading to new areas? How rapidly?

Need:

  • Visualize illness pattern changes using geospatial mapping, temporal charting, broader graphical views across jurisdictions
biosense real time clinical connections
BioSense Real-time Clinical Connections

Vision

  • Provide situational awareness for suspect illness and possible disease cases before, during, and after a health event
  • Help confirm or refute the existence of an event, monitor its size, location, and rate of spread

Approach

  • Real-time delivery of emergency room and acute care data from hospitals to BioSense
  • Electronic “views,” analytics, and reports for national, state, and local public health, hospital, and government officials
biosense system
Currently, the BioSense system provides analytics and geographical displays of data to assist in early event detection

CDC staff review data on a daily basis (BioIntelligence Center)

BioSense System
priority
Priority

Real-time data from acute care settings

  • Emergency room diagnoses, lab orders and results, ICU diagnoses, other clinically descriptive data
  • Real-time streaming data from hospital data networks to CDC
  • Views, analytics, reports, and data available to state / local public health

2005- sentinel hospitals in at least 10 large cities

2006 - sentinel hospitals in at least 21 additional cities

2007 & beyond– additional volunteer hospitals throughout US

hospital recruitment
Hospital Recruitment

Hospitals as Phase 1 data sources will be prioritized

  • Large metropolitan area
  • High-volume ED
  • Health systems with multiple hospitals
  • Existing hospital IT (i.e. ED system)
  • Timeliness of data
  • Support of local public health
  • Existing data/reporting relationships with CDC
implementation concepts
Implementation Concepts
  • Effort to be coordinated with local and state public health for early event detection, situational awareness, outbreak characterization
  • Real-time data connections of existing clinical diagnostic and health information required
  • Industry-accepted standards to be applied in the coding and transmission of data
  • Funding available to address incremental costs of hospital / health system participation
  • Data feed from the hospital can be split to provide data to CDC and local public health simultaneously
connection models
Connection Models

Direct Connection

1

State / Local

Public Health

Hospital or Healthcare

System Data

Hospital /

Healthcare System

Dual Submission

2

State / Local

Public Health

State / Local

Public Health

Hospital or Healthcare

System Data

Hospital /

Healthcare System

clinical data of interest
Clinical Data of Interest

Primary Target Data Types

  • Hospital Resources and Utilization
  • Patient Demographics (obvious identifiers removed)
  • Diagnoses and Procedure Codes
  • Chief Complaints / Symptoms / Vital Signs
  • Discharge Disposition
  • Orders (Lab, Radiology, Pharmacy)
  • Laboratory Results
value to public health
Value to Public Health
  • Simultaneous access of health data by all levels of public health decreases delays in recognition of a problem
  • Neighboring jurisdictions have more information
  • A national system means broader data availability possible by combining local and national sources
  • A step in the right direction for establishing a foundation for electronic reporting
  • Increased capacity for biosurveillance using existing clinical and diagnostic real-time data from hospital information systems
value to hospital healthcare system
Value to Hospital / Healthcare System
  • By using existing data for public health purposes, providing a window on community health status
  • Reducing information that needs to be relayed via phone calls to local public health
  • CDC BioSense analytics and surveillance reports available to hospital / health system
  • Funding available can advance hospital technical activities needed for standards-based data extraction, transmission, and linkages
  • Participation can support interoperability with local public health, and advance development of electronic health record activities
legal basis for clinical data shared with public health
Legal Basis for Clinical Data Shared with Public Health

“ The Secretary…shall provide for the establishment of an integrated system or systems of public health alert communications and surveillance networks between and among

  • Federal, State, and local public health officials;
  • Public and private health-related laboratories, hospitals, and other health care facilities…”

*United States Code Annotated Currentness:

  • Title 42. The Public Health and Welfare
  • Chapter 6A. Public Health Service (Refs and Annos)
  • Subchapter II. General Powers and Duties
  • Part B. Federal-state Cooperation
health insurance portability and accountability act hipaa
Health Insurance Portability and Accountability Act (HIPAA)

Pursuant to 45 CFR §164.512(b) of the Privacy Rule, covered entities may disclose protected health information to public health authorities

" . . . authorized by law to collect or receive such information for the purpose of…public health surveillance, public health investigations, and public health interventions . . . "

funding support
Funding Support
  • Funding is available to compensate hospitals for costs associated with data transmission
  • Examples of reimbursable costs:
    • Data standard interfaces (e.g., HL7)
    • Data formatting, mapping, coding
    • Necessary hardware/software components
    • Incremental internal IT support costs
  • Funds available via IT contractors and subcontractors to support needs of hospital
biosense key principles
BioSense Key Principles
  • Sharing, sharing, sharing – what can / should public health do with already existing clinical, community health data
  • Not buying data -- rather, CDC is mitigating costs for hospitals able to provide it
  • Using PHIN standards for vocabulary, messaging, and security
  • Balancing the need for broad coverage and supporting interoperability standards --- Progressing from sentinel hospital approach to wide-spread implementation
biosense real time clinical connections situational awareness use case scenarios
BioSense Real-time Clinical Connections - Situational Awareness Use Case Scenarios

Confirm existence of an event

  • Environmental signal
  • Suspect illness
  • Intelligence warning

Monitor ongoing event and effectiveness of response

  • Ascertain size of event
  • Ascertain rate of spread
  • Track efficacy of response efforts
  • Monitor for adverse events
for additional information

For Additional Information

Web: www.cdc.gov/phin/biosense

Email: BioSenseHelp@cdc.gov

Phone: 404-639-7600

Lynn Steele

404-639-7142

LSteele@cdc.gov