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Privacy and Confidentiality: Implications for Data Exchange

Privacy and Confidentiality: Implications for Data Exchange. August 11, 2011. Gene Flango, PhD Executive Director, National Center for State Courts National Resource Center for Child Welfare Data & Technology. Goal. Consensus is to improve outcomes for children in foster care

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Privacy and Confidentiality: Implications for Data Exchange

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  1. Privacy and Confidentiality: Implications for Data Exchange August 11, 2011 Gene Flango, PhD Executive Director, National Center for State Courts National Resource Center for Child Welfare Data & Technology

  2. Goal Consensus is to improve outcomes for children in foster care • What does improve outcomes mean? ASFA goals of Safety, Permanency and Well-Being What is success? • Performance Measures focused on Outcomes

  3. Child Welfare Performance Measures • Child and Family Service Reviews, PIP plans for improvement • Required data are produced from SACWIS or equivalent systems

  4. Shared Goals Courts are also involved in improving safety, permanency and well-being of children • Safety, permanency and well-being are SHARED GOALS and performance measures must be combined to be relevant • ABA, NCSC, NCJFCJ developed measures and released Toolkit in 2009

  5. Data Exchange • New measures required modifying or upgrading court information systems • Calculating joint performance measures requires data exchange between courts and child welfare agencies

  6. Advantages of Electronic Data Exchange More efficient and cost effective but results in more timely, complete and accurate information because it: • Eliminates duplicate data entry for both courts and child welfare agencies • Improves accuracy of information since each contributes data needed by their own system and data is entered only once • Requires MOU’s and technical protocols for exchange be developed—NIEM conformant

  7. 2010 Survey Under auspices of National Resource Center on Legal and Judicial Issues, NCSC did a survey to determine the extent to which key court performance measures were being used - • Connecticut, Delaware, NewYork, and Pennsylvania reported using ALL 9 key performance measures statewide • Idaho, Kentucky, NewJersey, SouthCarolina, Utah, and WestVirginia reported using 8 of the nine statewide

  8. What’s Next? Well-Being CFSR Well-Being Outcomes: • Families have enhanced capacity to provide for their children’s needs • Children receive appropriate services to meet their educational needs • Children receive adequate services to meet their physical and mental health needs

  9. Court Well-Being Measurement Areas • Physical Well-Being Emotional Well-Being • Mental Health • Maintaining Permanent Relationships • Transition to Adulthood • Enhanced Family Capacity • Educational Well-Being

  10. Well-Being Well-being measures require that the number of collaborative partners be expanded to include medical professionals, mental health agencies and schools

  11. Key Obstacles to Data Exchange Concerns over privacy and confidentiality increase • Initially, Ex parte issues—electronic records not accessible to all • Now, concerns related to medical and educational outcomes • HIPPA • FERPA • SAMHSA

  12. Implications Performance Measures Systems Implications SACWIS Data Exchange—court and agency Ex parte Data Exchange—court, agency, schools, medical Heightened concerns over privacy • CSFR • Toolkit • Well Being

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