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Reasons of working with families of the mentally illMy journey of developing socially relevant and culturally specific knowledge Discussion and recommendations. Content of today's Presentation. Shift of views toward families of people with mental illnessesFamilies as a pathology in 1960s and parent blaming to Families as resources and full partners in psychosocial management from 1980s onwards.
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1. Utilizing Family Strengths and Family Resources at Multi-Levels: A Journey of Developing Contextually Relevant Knowledge for Family Centered Social Work in Hong Kong Joyce L. C. Ma
Professor & Chairperson
Department of Social Work
The Chinese University of Hong Kong
3. Shift of views toward families of people with mental illnesses
Families as a pathology in 1960s and parent blaming to
Families as resources and full partners in psychosocial management from 1980s onwards
Reasons of working with families of people with mental illnesses
4. Relationship between family expressed emotion and relapse confirmed at two year follow-up in an English study (Brown, Birley & Wing, 1972)
High emotional expressed families (HEE)
Low emotional expressed families (LEE)
Relationship between family atmosphere and relapse of schizophrenia
5. HEE families 58% relapse rate
LEE families 16% relapse rate
Emotional climate of the family
Criticism
Hostility
Emotional involvement
Warmth
Positive remarks
Contact hours less than 35 hours per week (Vaugh & Leff, 1976)
Relationship between family atmosphere and relapse of schizophrenia
6. Mexican-American families
Chandigarh, Northern India
90% LEE
Respond to the breakdown of family members
Tolerance
Sadness
Not anger
Not hostility as in the West
Cross-cultural applicability
7. Importance of socio-cultural context
Socially relevant and culturally-specific knowledge for Chinese families in Hong Kong
Insights of the study
8. Spillover effects of childhood disorders (e.g., autism, ADHD) on parents and families
Divorce rate is in the 80% range in families with children with autism spectrum disorder
Maternal depression common for mothers with ADHD
Mother with a child suffering from ADHD in a problem-solving context more controlling and hostile than mother with a normal child
Burden of Chinese families in caring people diagnosed with schizophrenia (Chan, 1993; Sun, 1994; Wong, 1991 & 2000)
Objective burden and subjective burden equally heavy
High psychosocial distress of caregivers
Family functioning less healthier (Sun, 1994)
Problems and difficulties experienced by families of the mentally ill
9. Burden of caregiving equally heavy for parents with young people suffering from eating disorders
United Kingdom (Treasure, Murphy, Szmukler, Todd, Gavan & Joyce, 2001)
Germany (Graap et al., 2008)
Hong Kong (Ma, 2008)
Family work done in the past
Mutual help groups for psychotic patients and their families (Ma, 1986)
Self-help groups across several social service agencies providing psychiatric rehabilitation (Ma, 1992)
Problems and difficulties experienced by families of the mentally ill
10. Insufficient studies on practice knowledge in utilizing family strengths and family resources
Heightened awareness on importance of involving father in mental health services but professional engagement of the father was limited
Knowledge gap
11. Family-centered service delivery, across disciplines and settings, recognizes the centrality of he family in the lives of individuals. It is guided by fully informed choices made by the family and focuses upon the strengths and capabilities of these families (Allen & Petr, 1996; p. 68) Definition of Family Centered Service Delivery
12. ?
A pig under the roof
Concept of Family in Traditional Chinese culture
13. ??
Looting of women in the evening
Meaning of Marriage in Ancient China
14. ?
A person kneeling down
Woman be submissive, subordinate and subjugate to men
Imbalance of power between men and women in Chinese families
Meaning of Woman in Ancient China
15. My journey began when I was a social worker in mental health services in a general hospital Continue developing the knowledge as a social work academics in the university
16. Adaptation of the Micuccis Model (1998) to the Chinese Context
Integrated four theoretical perspectives
Psychodynamic
Feminist psychodynamic
Socio-cultural
Family systems
Applicability of structural family therapy for Chinese young people suffering from anorexia nervosa in Hong Kong and Shenzhen
17. Isolation and conditional acceptance
Control versus genuine connection
Symptomatic cycle
Three processes interwoven with each other (Micucci, 1998)
Essential Family Processes in Families with ED
18. Focus on identifying constricting family process that has maintained the symptoms of ED
Ultimate goal
Assist the emaciated young person and the parents to interrupt the symptomatic cycle of interactions
Cultivate a holding environment for recovery
Treatment Principles
19. Redefining the problem and negotiating the contract
Encouraging parental collaboration
Addressing unresolved conflicts
Handling relapses
Supporting individual development and
Supporting the transformation (Micucci, 1998)
Treatment Steps
20. Enrichment of the cultural perspective
Definition of family, jia (?) for family assessment
Mainzi (??), face to identify hidden messages of the emaciated young person and to allow gracious exit of individual family member/s in refusing to deal with the family conflicts
Motivating and engaging the ambivalent young person in treatment
Working on other family problems (Ma, 2008)
Modification of the Model in a Chinese Context
21. Chinese emaciated children and adolescents benefited from family treatment and routine psychiatric treatment
Treatment effect changes on patients
Excessive concern over body shape
Personality characteristic of perfectionism
Change in the six dimensions of the level of psychological distress is statistically insignificant but clinically significant
Symptomatic to functional range (Ma & Lai, 2009)
Results of our study
22. Mean scores of our sample lower than the norms gathered by Shek (1995)
Marital quality poorer in terms of marital satisfaction than adjusted Chinese couple (Ma & Lai, 2009)
Change in parents marital quality
23. Family therapy beneficial
Create a social context for them to iron out their difficulties in coping with AN
Resolve disparity in refeeding the emaciated daughter
Provide strong emotional support
Instill hope (Ma & Lai, 2006)
Subjective experiences of the parents
24. Learn the pains and suffering of their parents as great as her own suffering
Emotional support
Parents
Siblings
Therapist (Ma & Lai, 2006)
Patients perspective
25. Mother-daughter conflicts
Coming back of the disengaged father and active involvement in the care of the emaciated young person
Triangulation of the young person into the couples conflict
Therapists intervention to assist the family to interrupt the symptomatic cycle
Change in parenting methods
Parents assisted patient to expand the scope of life
Patients recovery (Ma, in press) Path of changes in the eyes of a young person with AN and parents in Shenzhen
26. Family therapy applicable for young people with an ED
Outcome research
Hearing the voices of the young person and her families
Succeeded to develop ways to engage the previously uninvolved father in parenting and care of the young person with an eating disorder
Contributions of our studies
27. Identify the symptomatic cycles and shift the family attention from the symptom to the symptomatic cycles that have impeded the parents collaboration and the patients recovery
Foster the positive forces for change (e.g., active involvement of the father in parenting and care of the patient)
Help family to interrupt the symptomatic cycles
Support
Advice
Creation of the holding context to resolve the conflicts
Help parents to assist the patient to expand her scope of life
Contributions of our studies
28. Track the process of change to fill the knowledge gap
Shed light on the critical roles played by the therapist in treatment
Contributions of our studies
29. All in the same boat: A preliminary study of the program outcome of social network project in a deprived community in Hong Kong Tin Shui Wai, A City of Sorrow and Sadness
30. geographically isolated area
majority residents are new arrivals, low income, low educational level, underemployment and unemployment
weak social network
residents are not familiar with community resources
Tin Shui Wai
31. Collaboration between our centre
ELCHK, Tin Shui Wai Integrated Youth Service Center
Financially supported by a private fund
FAMILY AMBASSADOR PROJECT
32. To mobilize residents in the community, develop their potentials and capability as peer helpers and foster mutual help and support in the community to minimize social isolation and social exclusion
FAMILY AMBASSADOR PROJECTObjective
33. Training of the Family Ambassador
34. Promote the concept of family mental health and develop strength perspective of family
Share own family story and ways to face life adversities
Introduce the community resources to the residents
Mobilize the residents to utilize the community resources
Roles of the family ambassador
35. Closing Ceremony
36. 64 FAs registered and 61 (95%) FAs complete the project
FAs outreach 381 (average 6.24) friends, relatives and neighbors to promote the message of family mental health,
FAs outreach 270 (average 4.4) friends, relatives and neighbors to introduce and mobilize them to use community resources
Project efficacy
37. 58 FAs give written feedback after the completion of the project:
49 FAs(85%) like to be family ambassador
51 FAs(88%) more involve in community and concern the needs of others
54 FAs (93%) are willing to continue the service
Service efficacy
38. Focus group was held in January 2008.
9 FAs participated the meeting
The results showed that the project has positive impacts to individual, family and community.
Service efficacy
39. Individual Level
Positive thinking
Optimistic
Feel blessed
Positive self-image
Improve self-confidence (Ma, Wong & Cheng, 2009)
Participants feedback
40. Applicability of Multi-Family Groups in Hong Kong The practice team of our center
41. Implemented since March 2008 to presence
Qualitative Research
Pre and post in-depth interview to gather the experiences of the participant families
Review of the group process
Documentation of family responses toward different types of activities and skills
Total 23 families attended the multiple family group, 5 groups were conducted (1 for adolescents with school problem, 2 for children with learning problems, 2 for children with ADHD)
Model development
42. Content of the group ?
Frequency ?
Composition
Clientele specific
Problem specific
Types of group activities
Process versus content
Intervention efficacy
Issues addressed in model development
43. Commonality across the three projects
Family-centered practice
recognizes the centrality of he family in the lives of individuals
Guided by the fully informed choices made by the family and
Focuses upon the strengths and capabilities of these families (Allen & Petr, 1996; p. 68)
Positive feedback and appreciation from the families
Discussion
44. Flexible use of research methods
Hearing voices of the service users
Pre- and post-treatment individual and conjoint interviews
Review of the treatment videotapes with consent
Focus group interviews
Reflective thinking and synthesis of practice knowledge
Peer discussion
Conference presentation
Academic writing Discussion
45. Navigating upstream to face the barriers of family work
A lack of physical space in which to meet the families
No mandate to provide family care (i.e., lack of reward or recognition for family work)
Long working hours of Hong Kong low-income families
Dominant discourse of parent-blaming in general and mother-blaming in particular
Lack of professional competence and confidence Discussion
46. Venues for continued professional sharing and discussion on family work
Supportive agency policy
Family centered service model
Physical space
Incentives and reward for good family practice
Staff training, professional development and supervision
Flexible office hours
Recommendations
47. END OF PRESENTATION THANK YOU VERY MUCH