Shared Support, Inc .

1. Dream, Reach, Contribute Shared Support, Inc. sharing ideas and solutions

2. Shared Support, Inc. a person centered organization Family Supporters Friends Community House supers Health care pros Specialists Areadirectors clinical executive operations

3. Our Ultimate Measure of Success “…our ultimate measure of success… we succeed when people reach their outcomes.  This keeps us working and making continuous changes in our practices to achieve our mission.” Christine Martin, Shared Support, Inc., COO

4. Introductions • Who we are … • Who is here? Melina Fatsiou-Cowan

5. The Question Exercise

6. Why Did We Do This? • Listening is modeled • Did you feel listened to? • Facilitation is modeled • Being purposeful and planful about organizing about gathering information about what is important to people – is essential • Point out that “these” are outcomes – it’s not so hard

7. Committed to People in Reaching their Dreams is Our Mission • All of us dream and have own personal vision for a good life. • One person or system cannot adequately support a person with a disability. • Self Determination - A person with his or her circle chooses, controls, creates and makes positive change. • Choice, authority, control, responsibility and advocacy are the values and rights of all citizens. • People may need support to exercise these rights – we can assist in that development for people.

8. The Alignment Outcome Goal Goal Goal service support service support service support The Outcome determines the goals, supports and services – not the other way around!!

9. OutcomesDo: • Provide “Tangible results of goals that reflect the desired quality of life as identified by the person.” Code of Maryland Regulations (COMAR) • Provide opportunities for people to achieve valued social roles • Describe future direction and plans • Describe dreams • Describe/define what individuals want in their lives

10. OutcomesDo Not… • Have services and/or supports in the statement • Describe behavior management plans • Reflect ONLY the family or service provider’s values • State action steps to something more • Talk about skill building,

11. What is Reflected in Your Personal Outcomes? • Your Values • Expression of Your Fundamental Rights • Your own Determination • A comparison of your present life to what you really want • Specific Information about “Who” you are and what you want that helps to clarify your necessary supports and plans

12. Values Search • What is the most important thing in your life…. • We get our values from our family and our experiences • What we know to be true for us • Planning with important people in our lives and in special places to us helps us be true to our own values • Planning and assessment tools help us clarify what we know about ourselves and our values

13. Fundamental Rights • What do state regs and the constitution have in common? • Life, Liberty and the Pursuit of Happiness • What are the fundamental rights all American’s are privileged to? • Planning helps people with disability related barriers express and enjoy these rights that are often denied to them

14. Self-Determination Principles • Freedom: To exercise the same rights as all citizens and to make decisions about their own lives. • Authority: To have control over the funds needed for support. • Support: The organization of resources for support, as determined by the person. • Responsibility: The wise use of funds. The usual obligations of all American citizens. • Confirmation - Of the important leadership that self advocates must hold in a newly designed system • Center for Self Determination

15. Nothing About Me Without Me!

16. Listening in Circles

17. Not Being Able to Speak is Not the Same as Having Nothing to Say!

18. Communication is Many Things • Words, tone of voice, gesture, posture, facial expression = you don’t have to “intend” to communicate. • Communication is typically judged by behavior not intent. Words 10% Body language 60% Tone of Voice 30% Donnel King, 2002

19. FIRST SEEK TO UNDERSTAND AND THEN BE UNDERSTOOD..(Covey,1990) • Listen first, you will hear the concerns and values that you share with the other person • SEEK WIN:WIN: • Can we invite the person who is opposing our view to join us to seek a solution where they win and we win? • What are the other options? Win:lose? I will not come if I am going to lose. Lose:win? They will not come is they are going to lose. Lose:lose? No deal is still an option after we have sought win:win. What’s a compromise? TOOLBOX

20. People With or Without Disabilities How Do We All Communicate? • How do our outcomes, dreams, hopes, likes, dislikes, etc differ? • How does our approach differ? • Do people have a means of communication? • How do we help people communicate? • Maps • Boards • Assistive Technology • Facilitated Communication…

21. Listening to Families, Their Critical Role, Family Dynamics • The family is the most influential group of people in the person’s life. • The family usually knows the person the best. • They share history and current challenges. • You may find that everyone wants to meet the needs of their family member – people may need support in doing so. • They are motivated only by what is best for the person “When you drink the water, remember the spring” Chinese Proverb

22. Good Listening Guidelines • Stop talking. You cannot be listening if you are talking (even to yourself!). • Be open; put the talker at ease. • Remove distractions. Don’t doodle or watch T.V. • Concentrate on what is being said. Listen to understand • Empathize with the talker. Try to put yourself in his/her place so that you see his/her point of view. • Avoid the temptation to interrupt. • Ask questions that stimulate the person to talk. • Don’t over-react to highly charged or emotional words. Look for the meaning behind those words. • Stop talking. This is the first and last because all other guidelines depend on it. TOOLBOX

23. Meeting Ground Rules • Respect everyone’s ideas • Everyone has a voice but the focus person’s is the loudest • Brainstorming is essential • Creativity is a must • No 3rd party conversations • If hidden agendas are discovered – you will be asked to leave TOOLBOX

24. Bad Listening Habits – Why Do Things Go Wrong? • Agendas (hidden and not so) • Judging • Avoiding the person’s concerns • Solving problems Foster, 2000

25. People First Language = Action! • To ensure Inclusion, Freedom & Respect for all people, we must use People First Language • People first language puts the person before the disability & it describes what a person has, not what a person is. • Attitudes are the biggest barrier Kathie Snow, 2004

26. People with disabilities (or disability labels). He has a cognitive disability (label). She has autism (or an autism label). She uses a wheelchair/mobility chair. Communicates with her eyes/device/etc. Person The handicapped or disabled. He's mentally retarded. She's autistic. She's wheelchair bound/ in a / confined to a wheelchair. Is non-verbal. Client People First Language – Try This! BAD GOOD Kathie Snow, 2004

27. Listening and Learning about the person you support

28. The BIG Question Why is the person doing what he or she is doing, when he or she is doing it, to get the outcome he or she gets? Or, What’s working or not? And Why?? Listen Ask Questions, and listen some more!

29. What Do We Think S/he Means?

30. What Do We Think S/he Means? TOOLBOX

31. We Value Everyone’s GiftsA Person Centered Plan • Everyone has something great about them: • A Skill • A Talent • A Personality Trait • A Person Directed Plan should describe a capacity description of every person we support. Focus on what people CAN DO. Take the time to learn about WHO the person is and develop supports to help them contribute what’s great about them in the community where they live. Developing a capacity description is the first step in the person centered planning process- Positive Reputation-tool box

32. Who Is Sean? • Sean is an artist. • Sean takes enormous pride in his physical capabilities. • Sean is intelligent. • Sean is proud, he earns and saves money. • Sean is a teacher – he teaches sign language to people he knows. • People love Sean and care for him.

33. More… • Sean signs his name Simmons, Sean Edward or Edward. If it’s extremely important that it be first and last name then mention it – otherwise, no need to correct it. • Sean likes to teach people how to sign. Ask Sean how to sign certain things – he has more to teach about himself and his perspective than anyone and any class. He likes to have “The Word of the Day”. Learn it and teach someone you know. • Sean is extremely proud of his earnings through his work at the hospital and savings. We are having difficulty getting money from his rep payee that is owed him. Sean will be his own rep payee.

34. Who IS…? TOOLBOX

35. Sean’s Relationships Sean is a Teacher Jason – owner oGereoma Borealis Cab driver #44 – Friendly Cab April - owner Mulberry Arts Studio Liz – sign language instructor DHHS Georgie Ed, Cindy, AllenStudents James, brother Juan Friends and Family Social/Community People UDS Shared Support First Baptist, Deaf community Valley Green Lakeside Summit Quest Barnstormers D ean David – support staff JoAnne – support staff Wilmer – roommate Angie – service coord. Frank – Director Heather – EARS John - psychologist Paid Support People

36. Relationship Map Service Providers & Health Professionals Social / Civic Community Life Paid Staff Friends Family Beth Mount, 2003 TOOLBOX

37. Places Sean Goes Community Café Aroma Borealis – hang out, 1st Fridays Umbrella Works – my apartment is there UDS, board member EARS, 2 days a week Lancaster base ball stadium- Season pass holder – 22 games! ST. Peters, Catholic Church AT least 5 community teaching opps. Nursing Homes Shools Camps, Churches Human Services World

38. Places I Go Community Human Services World TOOLBOX

39. Baseball Meeting new people Hanging out with people that are deaf Teaching people the word of the day Oranges – allergic! Diets Not having any work at workshop What are Sean’s Favorite Things? What Things Doesn’t Sean Like?

40. What are Your Favorite Things? What Things Don’t You Like? TOOLBOX

41. What Makes Your Best Day? • Your Best Day? • Your Best Week? • Your Best Month? • Your Best Year? TOOLBOX

42. Sean-Social Roles &/or Paid Employment

43. Social Roles &/or Paid Employment TOOLBOX

44. 10 Things to Do to Support Someone with Challenging Behavior • Get to know the person – spend time with the person • Remember ALL behavior is meaningful • Help the person to develop a support plan • Develop a support plan for the person’s supports • Don’t assume anything

45. 10 Things to Do to Support Someone with Challenging Behavior 6) Relationships make all the difference 7) Help the person develop a positive identity 8) Instead of ultimatums give choices 9) Help the person have more fun 10) Establish a good working relationship with the person’s health care physician

46. Who his staff are Who his roommate is Where he lives Where he works When to do what he wants to do Work schedule When to go into work (this is in the process of changing) Social schedule - sometimes Choices Sean Makes for Himself Choice and Control Map Choices People Make for Him

47. Choices I Make for Myself Choice and Control Map Choices People Make for Me TOOLBOX

48. When Sean is upset he uses sign language to communicate his feelings – supporters must know sign language. Being involved in things that he likes to do: artwork, researching, reading, using the computer. Sean does not like to be bored. Being involved with people. Sean enjoys people around him and doing things with others. Sean is interested in meeting people. Not knowing sign language Bothering Sean in his room when he goes there to relax when he is upset Not helping Sean keep his printed calendar in order Changing the schedule in anyway without Sean’s input, ok or knowledge Speaking other languages in front of Sean and not explaining what you are talking about What Make Sense to Sean What Doesn’t Make Sense to Sean

49. What Make Sense What Doesn’t Make Sense TOOLBOX

50. Help People Direct their Lives • Listen to Who they are • Help them lead their meetings • Understand their behavior, Be Positive • Don’t Ignore people. You wouldn’t be here without them!