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Empowering Communities: Insights from AIDS 2022

A report from the AIDS 2022 conference highlights the essential role of communities in HIV/AIDS prevention and care. Key learnings include the innovative leadership, impactful services, evidence generation, and calls for inclusive practices. Addressing challenges like adequate compensation for community workers and meaningful inclusion of diverse populations are crucial for sustainable progress in the fight against HIV/AIDS.

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Empowering Communities: Insights from AIDS 2022

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  1. aids2022.org #AIDS2022 29 July – 2 August · Montreal & virtual Kelly Safreed-Harmon Rapporteur report back session Community, Leadership, Global Village and Youth Programme Activities

  2. Conflict of interest disclosure I have no relevant financial relationships with ineligible companies to disclose. 29 July – 2 August · Montreal & virtual aids2022.org #AIDS2022

  3. Our Team Anushiya Karunanithy Elie Ballan Ines Alaoui Kelly Safreed-Harmon Nicolas Ritter Tatum Le Partnership & HIV-HCV Special Initiatives Manager at the Malaysian AIDS Council (Malaysia) Youth and Community Leadership Officer with UNAIDS RST in MENA (Jordan) Advocacy Officer at AIDES’ on drug prices and access to therapeutic innovation (France) Public Health Communication, Community and Activism Manager of Coalition PLUS (Mauritius) Senior Policy Analyst at the Centre for Communicable Diseases and Infection Control of the Public Health Agency of Canada (Canada) Communications Consultant and Researcher (Spain) 29 July – 2 August · Montreal & virtual aids2022.org #AIDS2022

  4. Our challenge (and everyone’s loss)

  5. Key learnings/insights from communities Leadership Services Evidence Inclusion 29 July – 2 August · Montreal & virtual aids2022.org #AIDS2022

  6. Leadership ● Human rights and equity lens drives how communities work ● Community networks and connections are strong, ambitious and diverse ● Communities respond rapidly to emerging threats ● Communities are innovative and creative in finding new solutions to unexpected problems ● Community-based leadership and monitoring has proven more effective in advocacy and service planning and delivery – stigma-free and trusted ● Communities are often ahead of the rest of us sounding alarms ○ UNAIDS targets not being met ○ COVID-19 challenges ○ Monkeypox 29 July – 2 August · Montreal & virtual aids2022.org #AIDS2022

  7. Services ● Communities are hard at work delivering trusted, high-quality, innovative services, often as volunteers or very underpaid staff … WHICH IS A PROBLEM! ● Community service providers need and deserve appropriate compensation and career paths ● Community-based organizations need to be sustainable to continue their vital work ● Programs address social determinants for HIV prevention and care (holistic global approach) ● Community-based services reach those furthest behind, address their needs more adequately, and provide stigma-free services which are often free of charge 29 July – 2 August · Montreal & virtual aids2022.org #AIDS2022

  8. Evidence ● Communities generate high-quality and unique evidence ● Communities are co-creators, co-authors and collaborators in research on community members ● Community programming and advocacy is grounded in evidence and sharing of proven best practices ● Community-led monitoring fills gaps and drives accountability ● Communities engaged as long-term partners in clinical research provide accurate insights on life experiences and receptiveness of cures and vaccines 29 July – 2 August · Montreal & virtual aids2022.org #AIDS2022

  9. Inclusion ● Our communities – plural! – demand meaningful inclusion ○ People of all ages who are living with HIV ○ Indigenous Peoples ○ Trans people of all genders (trans women, trans men and non-binary people) ○ Gay, bi+ and queer men (cis and trans) ○ Men who have sex with men ○ People who use drugs and their sexual partners ○ People with disabilities ○ Sex workers (female, male and trans) and their clients and sexual partners ○ Women (cis and trans) from high-prevalence countries ○ Young people, including adolescent girls and young women ○ People in incarcerated settings and other detention centers ○ Immigrants, refugees and displaced people ○ People in conflict settings ○ People in disaster settings (famine, earthquake, drought) 29 July – 2 August · Montreal & virtual aids2022.org #AIDS2022

  10. Inclusion ● Tokenistic inclusion perpetuates stigma and erasure ● Naming “key populations” without specificity is dehumanizing and leaves people behind ● Communities must address their own issues around inclusiveness 29 July – 2 August · Montreal & virtual aids2022.org #AIDS2022

  11. Moving forward… 29 July – 2 August · Montreal & virtual aids2022.org #AIDS2022

  12. What do communities need? ● Communities need an end to AIDS conferences in countries with racist visa restrictions ● Communities need resources, recognition, respect, partnerships, meaningful engagement and leverage ● Unpacking “nothing about us without us” – ○ Engagement is not enough ○ Participation is not enough ○ A seat at the table is not enough ○ Capacity-building is not enough ○ Communities need and demand capacity- sharing, ownership and co-creation 29 July – 2 August · Montreal & virtual aids2022.org #AIDS2022

  13. Follow communities Thank you

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