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Understanding Parkinsons Disease

This resource delves into Parkinson's Disease, covering its main symptoms, non-motor symptoms, treatments, and available resources. With insights on living with a spouse who has PD, it sheds light on the progressive neurological condition. Learn about the impact of dopamine loss, various symptoms affecting movement and daily life, and ways to manage the disease. Discover key contacts, treatment options, and coping strategies for both patients and caregivers.

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Understanding Parkinsons Disease

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  1. Understanding Parkinsons Disease Fiona Wheeler

  2. ParkinsonsDiseaseEveryone different .

  3. Parkinsons Disease Briefly …… What it is Main symptoms, Non-motor symptoms Treatments Resources and help Life with my husband & PD

  4. . Progressive fluctuating neurological condition Person not being difficult or not trying

  5. . • One in 500 people • Most diagnosed between 55-74 • 127,000 cases in UK* • All ethnic groups • One in 20 diagnosed under age of 40

  6. , • Dopamine-producing cells lost, part of brain controlling movement • Cause unknown • No cure • Rarely directly inherited

  7. Lack of dopamine Movement Non-motor symptoms Can affect cognition, behaviour and mood

  8. . • Slow movement • Rigidity • Tremor • Postural instability

  9. Some symptoms . . Pain Handwriting Constipation Incontinence Depression Dementia Excessive tiredness Sleep disorders Anxiety • Speech, communication • Posture • Balance • Motor freezing • Lack of facial expression • Swallowing • Excess saliva, drooling

  10. Resources • GP • Neurologist/geriatrician@ interest in PD • Parkinsons nurse specialist • Social services • Physiotherapist, occupational therapist, dietician, speech and language therapist • Carers organisations

  11. Parkinsons UK • Parkinsons UK website, factsheets, info • Local advisor • Helpline, expert information, • Campaign, research, • Local groups support, • Professionals network • Excellence network – training

  12. Treatments • Drugs • (Surgery – suitable for some people) • Treatments to improve quality of life • Do not alter course of PD • Effective for some time

  13. Drugs • Complex, • Small changes. • Don’t stop suddenly. • Regular specialist review • Side effects • Late stages - problems swallowing – ?? help needed

  14. Dementia, cognitive impairment, hallucinations 1) Delayed reaction 2) Cognitive impairment, 3) Dementia (40% eventually) 4) Hallucinations

  15. Depression ….. “My legs are so weak, pain, weakness. I don’t always have all my marbles, I can’t communicate.’’

  16. Thank you fionawheeler@btinternet.com

  17. Neuropsychiatric problems 1 • Nocturnal non-motor symptoms • REM sleep behaviour disorder • Restless legs • Anxiety disorders • Apathy • Depression • Excessive daytime sleepiness

  18. Neuropsychiatric problems 2Autonomic disturbance • Psychosis and visual hallucinations • Dementia • Sensory disturbance & pain • Sensory type pains, from motor fluctuations, rigidity etc. • Bladder • Postural hypotension and more

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