1 / 22

Supported by

Bon Voyage! Travelling with a bleeding disorder. Supported by. purpose. Travelling is often an adventure filled with challenges, especially for people with bleeding disorders.

mboyles
Download Presentation

Supported by

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. Bon Voyage! Travelling with a bleeding disorder Supported by

  2. purpose Travelling is often an adventure filled with challenges, especially for people with bleeding disorders. With the right planning these challenges can usually be overcome. The goal of this module is to help people with bleeding disorders reduce the risks of travel so they can enjoy their adventure to its fullest.

  3. bon voyage! travelling with a bleeding disorder Travel challenges Travel insurance information to carry preparations with your treatment team transporting clotting factor concentrates special needs infusing en route Top 10 travelling tips

  4. travel challenges challenges for travellers with bleeding disorders Getting through airport security and border crossings with factor products, needles and syringes. Packing bulky clotting factor concentrates. • Ensuring you carry medical information. • Knowing where to find medical care. • Arranging for special travel needs. • Obtaining travel insurance. challenges

  5. travel insurance • Strongly recommended outside Canada! Pre-existing conditions may be covered unless, in the last 3 to 6 months, you… consulted a physician (other than for a regular checkup); were hospitalized; were prescribed or received a new treatment or medication; were prescribed a change to an existing treatment or medication. insurance… benefits…

  6. travel insurance When applying for insurance, always tell the truth about your bleeding disorder. Failure to provide all health information will void any claim. benefits… insurance

  7. information to carry medical information • FactorFirst or TreatFirst cards • MedicAlert bracelet or necklace • Letter of authorization from HTC to carry concentrates, needles and syringes, contact information for HTC. The letter, written in English, should include: • Name of patient • Description of medical disorder • Contact information for HTC • Name of physician • Type of medication • Types of supplies • Types of implants that might set off security alarms information to carry… benefits…

  8. information to carry htcs around the world It is essential to have a list of all the hemophilia treatment centres (HTCs) on your itinerary. The World Federation of Hemophilia publishes an annual list of the HTCs in over 100 countries. www.wfh.org information to carry… benefits…

  9. information to carry emergency contact information • Emergency contacts at home • Your treatment centre contact information • Contact information for treatment centres on your route • Travel insurance provider information • Health insurance provider information Use the CHS Travel Card! information to carry benefits…

  10. preparations with treatment team some of the questions you need to ask: • Should I take a dose of factor before boarding the plane? • Should I change my prophylaxis schedule or temporarily adopt a prophylaxis regime? • How many doses of my treatment (factor concentrate, desmopressin or antifibrinolytic) should I take? • How should I pack and store my medications? • How should I keep my infusion records while travelling? • Do I need to carry prescriptions for these medications? preparations… benefits…

  11. preparations with treatment team • Should I bring analgesics with me and, if so, which ones? • Should I bring a First Aid kit with me and, if so, what should I put in it? • Do I need to see a travel clinic for vaccinations? • Should I contact the HTC at my destination before leaving home? • Should I sign a Release of Medical Records form at my HTC so my records can be forwarded to another health care facility if needed? • What should I do in an emergency? benefits… preparations…

  12. preparations with treatment team The Canadian Association of Nurses in Hemophilia Care (CANHC) has published a booklet called Planning Travel: A Guide for People with Bleeding Disorders benefits… preparations…

  13. transporting clotting factor concentrates • Check the package insert (or product monograph) for precise temperature storage instructions. • NEVER leave factor in the car in the hot sun! • NEVER put factor in your checked baggage! • If bulky, re-package vials, needles and syringes in special carrying case. • NEVER let the security agent touch your supplies without clean gloves. transporting factor… benefits… preparations…

  14. transporting clotting factor concentrates airport security • Carry a personalized letter. • Know the latest airport security rules. • Ensure the medication is properly labelled. • Declare medication separately from other liquids. transporting factor benefits…

  15. special needs mobility assistance If you expect to need assistance at any airport on your itinerary, contact your airline, when possible at least 24 hours in advance. Beware! Quality of service varies. special needs… benefits…

  16. special needs special seating on planes By contacting your airline, it is possible to request a seat: • with movable armrests • close to the washrooms and exits • with extra legroom express/priority lines See www.seatguru.com Airport security and even some tourist attractions have express/priority lines for people with mobility limitations. Just ask! special needs benefits…

  17. infusing en route • If you need to infuse on a train or plane, ask for a place where you have sufficient room and can concentrate. • In an airport, if you cannot find a quiet, suitable location to infuse, ask for help in finding a First Aid station. • If none of these suggestions work, find a table (as secluded as possible), lay out your supplies and give your infusion. There is no reason to be shy! infusing en route… benefits…

  18. infusing en route what to do with “sharps” • It is critical that “sharps”, that is, needles, be disposed of safely after use. • If you don’t have a “sharps” container, carefully replace the plastic guards on the needles and store them together inside another secure container. If your trip is short, bring them home to dispose of. • If your trip is longer, find a medical facility that will accept to dispose of them for you. Some airports have “sharps” containers in washrooms. • Vials and syringes can be discarded in the regular waste disposal. infusing en route…

  19. infusing en route keeping infusion records It is just as important to keep good infusion records while travelling as when at home. If you use a paper-based infusion record, take your forms along with you. If you use an electronic or Web-based device, and can’t take it with you, make your own paper log. Record: Date and time of infusion Lot number Number of units infused Reason for infusion: Bleed (indicate site), prophylaxis or immune tolerance induction therapy. benefits… infusing en route

  20. top 10 travelling tips 1. Discuss your travel plans with your treatment team. 2. Carry a personalized letter from your treatment centre describing what supplies you have and why you must carry them with you. 3. Carry an up-to-date FactorFirst or TreatFirst card. 4. Wear a MedicAlert necklace or bracelet. 5. Have a list of all the hemophilia treatment centres on your itinerary. 6. Carry several copies of your emergency contact information. 7. Obtain travel insurance, if possible. 8. Check the package insert (or product monograph) for precise instructions on the storage conditions of the product you use. 9. Never keep your medication in your checked luggage! Always keep it with you. 10. Keep good infusion records while travelling. travelling tips benefits…

  21. acknowledgements The CHS would like to acknowledge those people who contributed to the development of Navigating the emergency department. Clare Cecchini National Program Manager, Canadian Hemophilia Society (retired) Mylene D’Fana Vice-President, Canadian Hemophilia Society Deb Gue, RN Nurse Coordinator, Hemophilia Program, Adult Division, St. Paul’s Hospital, Vancouver, BC Alex Little Calgary, AB David Page National Executive Director, Canadian Hemophilia Society Nora Schwetz, RN Nurse Coordinator, Bleeding Disorders Program, Health Sciences Centre, Winnipeg, MB (retired)

  22. Bon Voyage! Travelling with a bleeding disorder Navigating the emergency department Charting your course Home care: The road to independence Destination fitness Roadmap for managing pain Supported by

More Related