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Annual Spring Meeting April 26, 2016

Join us for the Pediatric Heart Transplant Summit featuring worldwide experts sharing insights on pediatric heart failure, April 26, 2016. Learn from didactic lectures and workshops. iPHFR 2015 registry aims to advance treatment. Get involved now!

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Annual Spring Meeting April 26, 2016

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  1. Annual Spring MeetingApril 26, 2016

  2. Save the Date Pediatric Heart Transplant Summit 2017 • An exchange of worldwide scientific and clinical expertise • Local, national, and international speakers • Didactic lectures and small group workshops for all members of the Transplant Team • A unique opportunity to focus on Pediatric Heart Transplantation • More detailed information available online: http://www.seattlechildrens.org/healthcare-professionals/education/cme/calendar

  3. International Pediatric Heart Failure Registry iPHFR iPHFR 2015

  4. Why a Registry? Following the completion of the Pediatric Heart Failure Guidelines, it was recognized that to move the Pediatric Heart Failure field forward an international registry was required. iPHFR 2015

  5. Objective To collect and analyze clinically relevant data on pediatric heart failure patients to better understand the natural history as well as response to current and future disease treatment regimes. iPHFR 2015

  6. iPHFR Patient Destinations iPHFR 2015

  7. Current Status • Inaugural year for the iPHFR • Data elements finalized and data fields programmed • January 4, 2016: Database launched and center enrollment commenced

  8. Centers Enrolled / Activated(as of April 20, 2016)

  9. IRB Submitted(that we know of…)

  10. IRB in progress(that we know of…)

  11. Centers that have expressed interest(that we know of…)

  12. Steering Committee • Anne Dipchand (Chair) • Richard Kirk • Chris Almond • Christina VanderPluym • Angela Lorts • Yuk Law • Elfi Pahl • Estela Azeka • Robert Gajarski • Scott Auerbach • Warren Zuckerman • Leah Edwards (UNOS) iPHFR 2015

  13. iPHFR Invitation iPHFR 2015

  14. Institutional enrollment information available at... www.ishlt.org/registries iPHFR 2015

  15. Questions? anne.dipchand@sickkids.ca iPHFR 2015

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