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CALL Care Project. Supportive Care of the Dying: A Coalition for Compassionate Care www.careofdying.org. Current Sphere of Influence. Started in 1994 in Oregon Funded by system member dues and small grants 14 Committed Systems / Organizations Health Care Presence in 49 state.

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call care project

CALL Care Project

Supportive Care of the Dying: A Coalition for Compassionate Care

www.careofdying.org

current sphere of influence
Current Sphere of Influence
  • Started in 1994 in Oregon
  • Funded by system member dues and small grants
  • 14 Committed Systems / Organizations
  • Health Care Presence in 49 state
project as natural evolution
Project as Natural Evolution
  • Living and Healing During Life Threatening Illness
  • Organizational Assessment
  • AICC training
purpose
Purpose
  • Demonstrate a continuity of care and quality improvement model building on strengths of the organization and community
  • Evaluate the program effectiveness from the individual, bereaved family and system perspectives
comprehensive
Comprehensive
  • Physical, emotional, spiritual and relationship focus
  • Patients and families
  • Various life - threatening disease diagnoses
adaptable
Adaptable
  • Flexible over time for person and caregiver
  • Link services
  • Develop services which are currently unavailable
  • Accessible within a variety of funding or reimbursement strategies
longitudinal
Longitudinal
  • Progressive life threatening illness
  • Life expectancy may be unknown
  • Services available across a variety of care delivery sites - without disruption
life affirming
Life - Affirming
  • Focus on goals
  • Assist the person and caregiver to live fully
  • Re - assess as illness limits life
timeline funding for each site
Timeline / Funding for each site
  • 18 month project
    • Started August 2001
    • Completion February 2003
  • Site Grant Funds
    • To be used for Project Coordinator
    • Cannot be used for Clinical Care salary
    • $25,000 combined RWJF and Coalition
12 sites
12 sites
  • Differing cultural and demographic characteristics
  • Promote knowledge transfer within and between health systems
  • Project sponsored by Mission Leaders and approved by CEO
start up challenges
Start - Up Challenges
  • Organization ownership change
  • Local IRB review and standards
  • Personnel changes
  • Operations level support
positive experiences
Positive Experiences
  • Expand views of palliative care services
  • Links stronger in community
  • Focus on out patient services / specialty clinics
  • System leaders championing the initiative
participants 30 50
Diagnosis

Cancer / Oncology patients

CHF / Cardiac Disease patients classification of stage III or IV

COPD / Respiratory Failure

Dementia

Inclusion Criteria

Any stage IV stage cancer

Ejection Fraction of < 25 or NY state Heart Association

O2 needed in order to perform ADLs and / or Karnofsky score of <50

Stage > 6 on FAST functional scale or not eating

Participants(30-50)
products
Products
  • Establish longitudinal benchmark data recognizing successful practices
  • Produce a record of the development of site specific projects and learnings
  • Compare learnings across sites
outcomes
Outcomes
  • Improved experiences for patient and family caregiver
  • Cost effective linkages and services
  • Reimbursable services
  • Ongoing models developed locally
  • Knowledge transfer
system versus individuals
System versus Individuals
  • Healthcare professionals experience the system and individuals
  • Patients and families experience the individual and the system
goal for care
Goal for Care
  • “I am completely satisfied with the care….I am at peace with my fate…..My favorite quote is “do not worry about tomorrow, God is already there.”
  • “”Death is not a failure; for me a failure would be to be unable to support the patients and family in the dying process.”