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Parental Engagement and Confidence. National Network of Parent Carer Forums ‘Our Strength is our Shared Experience’. Context NNPCF Next steps. 1. Context. Unique journey of parent carers.

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parental engagement and confidence

Parental Engagement and Confidence

National Network of Parent Carer Forums

‘Our Strength is our Shared Experience’




Next steps


Unique journey of parent carers

  • Early Stage: anxiety and effort to secure diagnosis; shock and feelings of helplessness; denial; guilt; crisis as life will now be different; eagerness to put child in hands of expert; isolation.
  • Middle Stage: coping with conflicting advice; realising things cannot always be fixed; noticing unsustainable physical and emotional effort; ; emergence of chronic sorrow; navigating service systems; exposure to disability discrimination and lack of opportunities.
  • Later Stage: reframing ‘normality’; drawing on range of expertise; developing confidence; connecting with other families; advocating for services.
nnpcf reminder shared values
NNPCF : reminder shared values
  • Open to all parent carers
  • Pan disability- Across all disabilities and conditions/spectrums
  • Children/young people aged 0-25 years
  • All sectors of community (BME, faiths, LGBT and other minorities)
  • Issues across service boundaries (health, education, social care, and leisure)
  • Urban and rural

Who are we?

  • A network of 151 local forums into 9 regions
  • Steering group of 9 regional representatives
  • Up to 3 non regional
  • Democratic process begins this term
  • Transition period and wise use of a scarce resource
    • Expectation that additional commissioned work is resourced (rates agreed this week)
    • Basic funding through Parent Participation Strategic Partner Contact a Family: Sue North, PP Director

What we do?

  • Network 151 local forums into 9 regions
  • Use a solution focussed approach
  • Provide a national focus for parent participation
  • Model and grow participation at all levels
  • Build good practise resources
  • Three way communication – updates (local, regional, national)
  • Contribute with partners to building a participative community!

Top 10 tips!

  • What works and makes a difference
    • Meaningful parent carer participation; from planning through to implementation and beyond
    • Holistic and whole family
    • Build on good practice; share where involvement has made a difference
    • Invest in parent carer training and support
    • Honest and transparent communication using clear and simple language
    • Joined up planning, delivery and monitoring
    • Information and people with insider knowledge
    • Proactive; being prevention minded, building resilience
    • Responsive services; will listen and respond
    • Solution focussed: skilled network of parent carers working in partnership with skilled, creative practitioners and commissioners

Next Steps

  • Good practise Parent Carer Participation
  • All pathfinders and grant holders
  • Linking between grant holders
  • All levels
  • Across service boundaries
  • Fair and safe (governance and policies)
  • Sustainable practise