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Enhancing Early Childhood Access and Coordination for Neurodevelopmental Support

This initiative focuses on reducing disparities in access to supports for neurodevelopmental disorders, addressing affordability issues, and improving coordination for smoother transitions between services. Research on screening rates, age differences, and advising laws will inform recommendations for enhancing coordination and referral systems. Examination of existing specialty programs and collaborative opportunities will guide the development of effective transition services. Emphasis is placed on improving access to screening, diagnosis, and therapeutic services for children from less privileged backgrounds.

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Enhancing Early Childhood Access and Coordination for Neurodevelopmental Support

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  1. Birth to Five Sub-Committee • ACCESS:Disparities in access to supports due to differences in • awareness • availability • affordability COORDINATION:Multiple points of entry lead to • duplication of effort • inconsistent messages • confusion on the part of families

  2. IMPROVEDACCESS TO SCREENING: Delayed identification of children from less privileged backgrounds? TO DIAGNOSIS: Shortage of qualified diagnosticians –leads to delayed intervention TO THERAPEUTIC AND REHABILITATIVE SERVICES: Often too expensive; spotty insurance coverage; too few qualified personnel to meet demand. • STEPS TO DEVELOP RECOMMENDATIONS • Research the following topics: • Statistics on screening rate/ ages by region and race/ethnicity • How is EOHHS advising DOI on the interpretation of the ARICA law? • What autism specialty programs exist in the state currently to prepare professionals.

  3. ENHANCED COORDINATION INFORMATION AND REFERRAL • Single point of entry needed for information, referral and case management. TRANSITION Needs to be smoother for: • Family-based to school-based services • From Preschool to Kindergarten • STEPS TO DEVELOP RECOMMENDATIONS • Examine mission of Regional Autism Centers (DDS) and Autism Consortium (teaching hospitals) • Funding? Areas of overlap? Areas of specialization? Potential for collaboration? • MOU between DPH and DESE for appropriate transition services drafted but never signed or implemented. • What would it take to make this happen? • Should this be a model for other agencies?

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