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Learn about the National Physical and Sensory Disability Database (NPSDD) and the Measure of Activity and Participation (MAP) for improved service planning and development. Explore how MAP benefits data collection, employment insights, and future developments.
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NPSDD and the measure of activity and participation (MAP): employment data Sarah Craig and Anne Doyle, Health Research Board.
Structure of presentation • Introduction to the National Physical and Sensory Disability Database (NPSDD) • Outline of information collected • Overview of the Measure of Activity and Participation (MAP) • Benefits of MAP • Data on employment and participation • Future developments
The NPSDD • Established in 2002 as a service planning tool • Managed by HRB for the DOH • Captures information on current and future need for specialist disability services • Circa 25,000 people
Purpose of NPSDD • Improve accuracy of planning data • Guide future service development • Registration Criteria: • Have a persistent physical and/or sensory or speech/language disability • Less than 66 years of age • Receiving or requiring specialised health and personal social services • Have consented to being on the database
Service user details Therapeutic/rehabilitation services Personal assistance and support Technical aids and appliances Type of disability (physical, visual, hearing, speech and language) Diagnosis Measure of activity and participation (added in 2004) >16 years only 12,444 respondents (2010 data) What is collected?
Measure of Activity and Participation (MAP) • Three broad areas based on WHO’s ICF: • Barriers & challenges • Participation • Extent of restriction • WHODAS II • Difficulties experienced in day to day living
Barriers and challenges • Physical environment • Services, support and information • People’s attitudes • Transport • Laws and entitlements • Income • Climate/weather
Participation restriction • Education and training • Employment • Community/family life • Shopping • Leisure/sports • Services
WHODAS II • WHO Disability Assessment Schedule II • Concentrating • Learning a new task • Standing/walking/washing/getting dressed • Day to day work/school • Community life/dealing with people • Emotional impact of disability
Benefits of MAP • Distinguishes different levels of functioning which may be better indicator of health care needs than diagnosis • Holistic view of disability – ICF • Could assist with move to individualised budgets
Benefits of MAP ctd. • Move away from impairment-based interventions • Determines impact of service on functioning/participation • Facilitates communication across disciplines (e.g therapists)
MAP and comprehensive employment strategy • Remove disincentives and benefit traps, and make work pay • Ensure that people with disabilities are equipped to compete for today’s and tomorrow’s jobs • Improve retention in employment • Ensure that programmes of education, training and employment meet the needs of all people with disabilities
Linking MAP data to service interventions • MAP provides scope to monitor impact of services on participation in employment • Possibility to track over time • Greater focus on outcome of the interventions
The future? • Capture of data for those <16 years • Work to ensure that all cases on the NPSDD are up-to-date • Mainstream use of MAP (e.g. HSE Service Plan)
Questions? Thank you scraig@hrb.ie www.hrb.ie