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WORLD PSORIASIS DAY 29th October 2010

WORLD PSORIASIS DAY 29th October 2010. Chile Colombia El Salvador. ASSOCIATIONS. México Venezuela Argentina. Puerto Rico Ecuador Panamá. ASSOCIATIONS. UNAPSO, União Nacional das Associações de Brasil Amazonas (Brasil) São Paulo (Brasil) Rio de Janeiro (Brasil). Bahia (Brasil)

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WORLD PSORIASIS DAY 29th October 2010

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  1. WORLD PSORIASIS DAY 29th October 2010

  2. Día Mundial de la Psoriasis 2010 Chile Colombia El Salvador ASSOCIATIONS • México • Venezuela • Argentina • Puerto Rico • Ecuador • Panamá

  3. ASSOCIATIONS • UNAPSO, União Nacional das Associações de Brasil • Amazonas (Brasil) • São Paulo (Brasil) • Rio de Janeiro (Brasil) • Bahia (Brasil) • Ceará (Brasil) • Brasília(Brasil) • RG do Sul (Brasil)

  4. SNAPSHOT LATINAPSO had for WPD 2020 : • 39 urban actions (56% more than in 2009) • 60 TV apperarances (50% more than in 2009) • 70 radio appearances (27% more than in 2009) • 103 notes and interviews on written press and internet (34% more than in 2009)

  5. SNAPSHOT

  6. URBAN ACTIONS All Associations in LATINAPSO together prepared 39 urban actions for WPD (56% more than last year) on 19 cities • Argentina: Córdoba, Santa Fe, Tucumán, Buenos Aires, Mar del Plata • Brasil: Brasilia, Fortaleza, Porto Alegre, Rio de Janeiro, Salvador de Bahia, São Paulo • Colombia: Cali, Manizales y Medellín • Ecuador: Quito • El Salvador: San Salvador • Panamá: Ciudad de Panamá • Puerto Rico: San José • Venezuela: Caracas

  7. URBAN ACTIONS • Live music with delivery of leaflets and T-shirts, in Salvador de Bahia (Brasil), • Public party with traditional music and theatre in Quito (Ecuador) • Events for doctors, patients, families and press in Salvador de Bahia, as well as conference-talks at public hospitals in Fortaleza, Argentina, • Street parade and patining on bare feet in Medellín, Manizales y Cali (Colombia). • Awareness walk in Fortaleza (Brasil), Quito (Ecuador) and Panamá.

  8. URBAN ACTIONS • Information stands for the distribution of informative material and medical advice in the city center in Porto Alegre (Brazil) in Rio de Janeiro (Brazil) • Delivery of free information at bus stops in San Salvador (El Salvador) • Educational meeting, press conference at open air, in front of the beach in Puerto Rico • Inline skating in group in Buenos Aires and Mar del Plata (Argentina)

  9. MEDIA All together, Associations member of Latinapso were present on: • 49 TV channels • 45 radios • 34 newspapers • 18 internet sites (excluding Associations` websites and Latinapso website)

  10. TELEVISION All together LATINAPSOAssociations were 60 times on TV (50% more than previous year) in 49 channels of Latin America: • Argentina: América, América 24, TN, Canal 26, Canal 7, Crónica, Metro, canal local de Santa Fe, Canal 8, Canal 10, Canal 5 Supercanal, Canal 12 CCC, Canal de Cable San Cayetano • Brasil: Tv Globo , Tv Bandeirantes,Tr Rit, TV Diário, TV Verdes Mares, TV União, TV Cidade, RBS TV, TV Educativa, TV Urbana, TV Senado • Colombia: Caracol TV, Telepacífico, Televida, Canal 8 • Ecuador: RTS , Gama TV, TC Televisión, Hoy TV • El Salvador: Canal 2, Canal 4, Canal 10 (Televisión Nacional), Canal 8 • Panamá: Telemetro, Canal 23, Canales de Cable, TVN, RPC, Hossana • Puerto Rico: Wapa TV, Tele ORO • Venezuela: Publi Tips, Venevisión, Venezolana de Televisión, Televen

  11. RADIO All together LATINAPSOAssociations were 70 times on the Radio (27% more than previous year) in 45 stations of Latin America: • Argentina: AM: LU9 Radio Mar del Plata- FM: 98.5 Radio "Brisas“, LV7 Y LV12 en sus frecuencias AM y FM- Metropolitana FM, LT9 y FM sol sport, María Córdoba, Radio Rosario, Radio 2 Rosario, Cadena 3, Radio Del Plata, Radio10, FM Millenium, Radio Palermo, • Brasil: Metrópole FM, Rádio Guaíba, Band News, Rádio ABC, Rádio Verdes Mares, Radio Globo,Radio Melícia da Imaculada,Radio Capital • Colombia: Caracol Radio, LA FM, Todelar, Red Sonora • Ecuador: EQUASHIRYS - IRFEYAL, QUITO, La Luna • El Salvador: Radio Luz, Radio María • México: Educación, Radio Centro, IMER • Panamá: RPC Radio, La Exitosa;KW Continente, Radio María, Fabulosa Stereo,Omega Stereo, Radio Nacional • Puerto Rico: Univision, WKAQ, Radio ORO, Radio Isla • Venezuela: JAZZ 95.5, Kuerpo Sano FM

  12. WRITTEN PRESS AND INTERNET All together LATINAPSOAssociations were named or interviewed 103 times on written press and internet (34% more than previous year) in 34 newspapers and 18 sites of Latin America:

  13. OTHER ACTIVITIES There were as well: • 47 open conference-talks • 26 participation at Fairs and Congress • 26 interactive workshops for general public • 17 additional activities: presss conferences, presentation of videos and books about psoriasis, premiere of institutional videos of some Associations, posters and stickers stamping, days of free medical advice

  14. IDEAS FROM THE WORKSHOSP ABOUT WPD FROM 2nd MEETING OF LATINAPSO (May 2010) • All Associations said to have taken advantage of the ideas gathered at the Brainstorming sessionat the 2nd Meeting of LATINAPSO • Some Associations copied the slogans, other the ideas for urban actions (balloons, awareness walks) or activities for children • To be remarked: all Associations are aware of the need of effectively communicate their message, adapting it depending on the public (patients, doctos, industry, media, etc.)

  15. CHALLENGES FOR WPD 2011 • Associations point as challenges for next year: • Professional training for actions with governments (petitions, etc.) • Having lager budget for more urban actions • Interactive workshop for media at 3rd Meeting of Latinapso • Strategy of communication at Latinapso on the whole region • Begin in 2010 to prepare the WPD 2011

  16. SUMMARY OF ACTIVITIES Activities from all Associations member of Latinapso for WPD 2010 under the slogan: Childhood psoriasis, a challenge for all

  17. BRASIL – UNAPSOAsociación de Psoriasis de Brasil • Event in the Brazilian press Association, where there were presented films about the disease, with conferences of doctors and patients. • The president of UNAPSO BRAZIL gave a speech to present the newly created UNAPSO.

  18. BRASIL – ABRAPSEAsociación Brasiliense de Psoriasis • Information activitiy in coordination with the Secretariat of Assistência Médica Social – (Sams), Hospital Universitário de Brasília- HUB, Sociedade Brasileira de Dermatologia – SBD y Associação Brasiliense de Psoríase – (Abrapse). Place: Senado Federal (National Congress) • Release of the 4th edition of brochure “Combatendo a psoríase com informações” (Fighting psoriasis with information)

  19. BRASIL – ABRAPSEAsociación Brasiliense de Psoriasis

  20. BRASIL – ABAPPAsociación Bahiana de Portadores de Psoriasis • Urban action: Live music with delivery of leaflets and T-shirts • Public event for • Doctors • Patients, family and friends • Health Authorities • Press • SBD - Sociedade Brasileira de Dermatologia.

  21. BRASIL – ACEPPAsociación Cearense de Portadores de Psoriasis • Medical conference-talks • Awareness walk • Closing event at public hospital

  22. BRASIL – APAMAsociación de Psoriasis de Amazônia Educational event for patients and general public at Fundação Alfredo da Matta in Manaus city

  23. BRASIL – PSORISULAsociación de Psoriasis de Rio Grande do Sul • Conference-talk and free activities for patients • Awareness week for psoriasis patients • Free delivery of guide “Psoriasis, uma questão da pele” (Psoriasis, a matter of skin)

  24. BRASIL – PSORISULAsociación de Psoriasis de Rio Grande do Sul • Speech at Camara de Vereadores de Porto Alegre (local government)

  25. BRASIL – PSORIERJAsociación de Psoriasis de Rio de Janeiro • Information stand at Praça da Cinelândia in the city centre, with doctors and patients delivering educational brochures and leaflets for general public.

  26. BRASIL – AAPPAsociación de Apoyo a los Portadores de Psoriasis de São Paulo • Urban action with information and clowns at the city centre

  27. BRASIL – AAPPAsociación de Apoyo a los Portadores de Psoriasis de São Paulo

  28. COLOMBIA – FUNDAPSOFundación de Psoriasis de Colombia • Meetings for patients • Free conference-talks in three cities: Manizales, Medellín y Cali. • Activities for childen at hospitals • Urban actions: Street parade and patining on bare feet in Medellín, Manizales y Cali (Colombia) • Delivery of free gifts: T-shirts of Teddy bear and Teddy-bears

  29. COLOMBIA – FUNDAPSOFundación de Psoriasis de Colombia Urban actions: conference-talks and activities at children hospitals

  30. COLOMBIA – FUNDAPSOFundación de Psoriasis de Colombia Urban Actions: street parade and foot-painting

  31. COLOMBIA – FUNDAPSOFundación de Psoriasis de Colombia Premiere of insitutional video of FUNDAPSO http://www.youtube.com/watch?v=1GS8SyNoXbc&feature=player_embedded

  32. EL SALVADOR – PSONUVESPsoriasis Nueva Vida El Salvador • 8 educational and medical conference-talks • Ads and interviews on TV and radio • Urban actions • Closing event, with premiere of institutional video

  33. EL SALVADOR – PSONUVESPsoriasis Nueva Vida El Salvador

  34. EL SALVADOR – PSONUVESPsoriasis Nueva Vida El Salvador Institutional video: http://vimeo.com/16337198 Video of the event: http://www.youtube.com/watch?v=WI1SAo4Hodw&feature=player_embedded Inteviews for the WPD: http://www.youtube.com/watch?v=UU5M9jkJZck&feature=player_embedded

  35. PUERTO RICO – APAPPAsociación Puertorriqueña de Ayuda al Paciente de Psoriasis

  36. PUERTO RICO – APAPPAsociación Puertorriqueña de Ayuda al Paciente de Psoriasis • Free educational meeting • Objective: to educate about the disease, existing treatmente as well as offer tools for improving quality of live and overcome rejection towards social integration • Participation of dematologists and reumathologists

  37. PUERTO RICO – APAPPAsociación Puertorriqueña de Ayuda al Paciente de Psoriasis • Press conference and urban action at open air, at Ventana al Mar en San Juan

  38. PUERTO RICO – APAPPAsociación Puertorriqueña de Ayuda al Paciente de Psoriasis Report “The efectos of psoriasis”, on Wapa TV: http://www.wapa.tv/noticias/salud/los-efectos-de-la-psoriasis/20101114185450 Article about urban action of APAPP at Notisalud Wapa TV: http://wapa.tv/noticias/salud/dia-mundial-de-la-psoriasis/20101030181137 Día Mundial de la Psoriasis 2010

  39. MÉXICO – AMCPSOAsociación Mexicana contra la Psoriasis • 7th National Congress for Psoriasis patients and families • SIMPOSIUM ABOUT PSORIASIS, for healthcare professionals • Press conference

  40. MÉXICO – AMCPSOAsociación Mexicana contra la Psoriasis Simposium for healthcare professionals

  41. MÉXICO – AMCPSOAsociación Mexicana contra la Psoriasis Congress for psoriasis patients and families

  42. ECUADOR – FEPSOFundación Ecuatoriana de la Psoriasis • Conference-talks • Urban actions • Media • Closing public event

  43. ECUADOR – FEPSOFundación Ecuatoriana de la Psoriasis

  44. PANAMÁ – FPPFundación de Psoriasis de Panamá Drawing contest for children – 2nd prize at IFPA

  45. PANAMÁ – FPPFundación de Psoriasis de Panamá • Awareness walk

  46. VENEZUELA – AVEPSOAsociación Venezolana de Psoriasis • 29th October, 14:00h • Auditorium IPP at UCV • Open forum and conference-talk with two excelent specialists in child psoriasis and psoriasis arthritis • Free entrance

  47. ARGENTINA – AEPSOAsociación de Enfermos de Psoriasis • Children drawing contest • Urban actions in five cities • Conference-talks for patients, doctors and general public, in 5 cities • Petitions to government authorities • 58 appearances at media

  48. ARGENTINA – AEPSOAsociación de Enfermos de Psoriasis Petitions to authorities Drawing contest for children

  49. ARGENTINA – AEPSOAsociación de Enfermos de Psoriasis 4 “Do not let psoriasis tear us apart”

  50. ARGENTINA – AEPSOAsociación de Enfermos de Psoriasis Urban actions in five cities Santa Fe Córdoba Tucumán

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