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gloria-mendoza

ITALIAN DBA GROUP - PowerPoint PPT Presentation

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ITALIAN DBA GROUP
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  1. ITALIAN DBA GROUP GRUPPO DI SOSTEGNO DBA ITALIA ONLUS ISTITUTO PIEMONTESE RICERCA DBA

  2. OUR STRUCTURE TWO ENTITIES FOR ONE GOAL

  3. OUR MISSION • TO BE A SUPPORT FOR FAMILY AND PATIENTS; • SUPPORT DBA RESEARCH PROJECT (INTERNAL OR co-financing the universities) • SUPPORT THE DBA ITALIAN REGISTRY

  4. RESOURCES MANAGEMENT

  5. RESOURCES MANAGEMENT

  6. CHARITABLE CONTRIBUTIONS

  7. REGISTRO ITALIANO AIEOPAnemia di Diamond-Blackfan Paola Quarello

  8. 1938 - 2012 Dr. Diamond Dr. Blackfan Descrizione DBA 1938 Verona maggio 2012

  9. 1938 - 2012 Identificazione RPS19 1999 Verona maggio 2012

  10. 1938 - 2012 97 PAZIENTI REGISTRO ITALIANO DBA 2003 Verona maggio 2012

  11. 1938 - 2012 REGISTRO AIEOP DBA ONLINE 150 PAZIENTI 2007 Verona maggio 2012

  12. 1938 - 2012 199 PAZIENTI Aggiornamento REGISTRO AIEOP DBA ONLINE 2012 Verona maggio 2012

  13. REGISTRI GRAN BRETAGNA 106 pz REPUBBLICA CECA 35 pz USA 420 pz FRANCIA 303 pz GERMANIA 214 pz Verona maggio 2012

  14. AGGIORNAMENTO 2012 Verona maggio, 2012

  15. TERAPIA Verona maggio 2012

  16. ANALISI MOLECOLARE Verona maggio 2012

  17. Thank you