Delaware Lifespan Respite Care Network

1. When you need a break Delaware LifespanRespite Care Network Using Data to Support an Innovative Respite Network November, 2011

2. Presenters • Dr. Barbara Snyder • Project Manager, Delaware Lifespan Respite Care Network • Director of Corp/Fdn. Relations, Easter Seals DE & MD’s E. Shore • Janet Harper-Wooley • Senior SW/Case Manager, Division of Service for Aging and Adults with Physical Disabilities Delaware Lifespan Respite Network www.delrespite.org

3. Program Overview: • Delaware Lifespan Respite Care Network • How We Got Started: • What We Do: Help Family Caregivers • Find Respite Care • Fund Respite Care • Where You Can Find Us • www.delrespite.org Delaware Lifespan Respite Network www.delrespite.org

4. Introduction/Overview of Data Collection • Why Use Data • How Do You Get Started • Data Collection Points for DLRCN • How We Use Data • Lessons Learned – Tips to Take Home Delaware Lifespan Respite Network www.delrespite.org

5. Why Use Data • Program Development/Modification • Customer Satisfaction • Program Outcomes • Accountability Delaware Lifespan Respite Network www.delrespite.org

6. How Do You Get Started • What is the Question you want to answer? • Who do you need to ask? • What is the best way to ask? • How will you use the information you gather? Delaware Lifespan Respite Network www.delrespite.org

7. What were the Questions We Wanted to Answer Pre-Service Delivery • How great is the need for respite care? • Are current programs meeting the need for respite care? Delaware Lifespan Respite Network www.delrespite.org

8. Who are We Going to Ask? Delaware Lifespan Respite Network www.delrespite.org

9. What is the best way to get information? • Quantitative • Qualitative Delaware Lifespan Respite Network www.delrespite.org

10. Data Collection Points for DLRCN • Pre-Service Deliver – • Focus Group – U of DE Task Force • Two surveys – Family Caregivers & Providers • Focus Groups – Coalition members • Annually – • Application for Financial Assistance • Customer Satisfaction Survey • Financial Accounting Delaware Lifespan Respite Network www.delrespite.org

11. How We Use the Data • Program Development/Modification • Customer Satisfaction • Program Outcomes • Accountability Delaware Lifespan Respite Network www.delrespite.org

12. Program Modification • Participant Profile – • Use by • county • age • disability Delaware Lifespan Respite Network www.delrespite.org

13. County Statistics • Co. Fin. Asst. Recipients Genl. Pop. • N Castle 70.6% 60% • Kent 14.7% 18% • Sussex 9.6% 21% Delaware Lifespan Respite Network www.delrespite.org

14. Delaware Lifespan Respite Network www.delrespite.org

15. Program Modification • Financial Assistance Application: • Need a provider? 59.6% No • 40.4% Yes Delaware Lifespan Respite Network www.delrespite.org

16. Program Outcomes Did your respite time make you feel more refreshed and less stressed? Results: 2009 Yes No 91.7% 8.3% 2010 5-Point Likert Scale Very Somewhat Not at All 51.9% 25.9% 18.5% 3.7% 0.0% Delaware Lifespan Respite Network www.delrespite.org

17. For Whom – funders, key stakeholders • What – • Outputs • Outcomes • Use of dollars Accountability Delaware Lifespan Respite Network www.delrespite.org

18. Do it • Make it simple • Make changes • Share what you learn Lessons Learned – Tips to Take Home Delaware Lifespan Respite Network www.delrespite.org

19. Where you can go for resources • www.delrespite.org • History tab – reports that include data • Give me a business card, and I’ll email: • Initial family caregiver/provider surveys • Customer satisfaction survey • Financial Assistance application Delaware Lifespan Respite Network www.delrespite.org

20. Practice Activity Delaware Lifespan Respite Network www.delrespite.org

21. Thank You Delaware Caregiver Support Coalition Contact me at: Barb Snyder Easter Seals DE & MD’s E. Shore bsnyder@esdel.org 302-324-4444