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Right Care for Patients. The National Shared Decision Making Programme. One thing I have always found is that you have got to start with the customer experience and work backwards to the technology. Steve Jobs 1955-2011. I wanted to ask questions but did not feel fit to do so at the time.

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right care for patients

Right Care for Patients

The National Shared Decision Making Programme


One thing I have always found is that you have got to start with the customer experience and work backwards to the technology.

Steve Jobs 1955-2011


I wanted to ask questions but did not feel fit to do so at the time.

Being treated as a person.

Treat the person, not the condition!

No choice on treatments, even though I asked for the options!


Knowledge is power!

Need to know what to ask for. Get education.

More patient education for the GPs

Information is at the core of decision making - up to date information, new treatments and patient mentoring.

I wanted to know more about the kidneys not just the condition. Cannot make decisions unless I'm informed.

Dialysis or not? A comparative survival study of patients over 75 years with chronic kidney disease stage 5.

Whole Group High-Comorbidity

Murtagh et al. NDT 2007

patient choice advanced kidney disease
Patient ChoiceAdvanced Kidney Disease
  • The BOLDE Project (Brown E.A et al. 2010)

Part 1

- Older patients can successfully be dialysed using PD;

- Patients on PD perceived significantly less illness and treatment intrusion;

- After regression analysis, patients on PD and HD reported similar quality of life.

Part 2

-Patients want to be involved with

modality decision-making;

- The unit with the lowest use of PD

had the lowest patient involvement

in decision making.


Figure 2.6: Treatment modailty in prevalent RRT patients on 31/12/2009

UK Renal Registry 13th Annual Report

shared decision making
Shared Decision Making

Shared decision-making is a process which involves patients:

  • as active partners with their clinician;
  • in clarifying acceptable medical options;
  • and in choosing a preferred course of clinical care.
shared decision making in the nhs
Shared Decision Making in the NHS

‘The Government’s ambition is to achieve healthcare outcomes that are among the best in the world.’

‘This can only be achieved by involving patients in their own care, with decisions made in partnership with clinicians, rather than by clinicians alone.’

‘We want the principle of ‘shared decision-making’ to become the norm: no decision about me without me.’

why shared decision making
Why shared decision making?

The benefits are:

  • Improving patient satisfaction, experience, knowledge;
  • Helping patients make healthcare choices aligned with their personal needs, values and circumstances;
  • Improving clinical outcomes and safety;
  • Achieving the right intervention rate and reducing unwarranted practice variation;
  • Reducing cost and litigation costs.

Decision Aids reduce rates of discretionary surgery

RR=0.76 (0.6, 0.9)

O’Connor et al., Cochrane Library, 2009

national right care shared decision making programme governance structure draft

National Right Care Shared Decision Making ProgrammeGovernance Structure(draft)


Thank you

Management is doing things right; leadership is doing the right thingsPeter F Drucker