Development of the Curriculum for Dementia Education (HEDN)

1. Development of the Curriculum for Dementia Education (HEDN) January 2014 HEE workshop Insert date here if needed

2. What is HEDN? The Higher Education for Dementia Network (HEDN) is an open network for those with an interest in, or are responsible for courses in dementia care, based within Universities in the UK (Higher Education Institutions). Who attends? Lecturers. Currently has members from 57 universities Why does it meet? • To share information and resources in shaping educational provision in dementia. • To network with colleagues. • To develop a systematic approach to Higher Education in Dementia. • To provide a forum on influencing national policy on dementia. • To share information on the provision of higher education courses in Dementia care. http://www.dementiauk.org/what-we-do/networks/hedn/

3. Dementia Curriculum (2003) • Models of Dementia • Ethics and Dementia • The Law and Dementia • Therapeutic Interventions • Core Capabilities • Pharmacology • Partnerships with Carers • Younger People with Dementia • Learning Disabilities & Dementia • Cultural Issues & Diversity • Holistic Health

4. HEDN Survey 2005 • Coverage of dementia in Mental Health Branch of pre-registration nursing programmes: • 3 – 54 hours (mean 14 hours) • Dependent on presence of lecturer with interest and experience in dementia care. • Coverage within Adult Branch: • 0 – 6 hours (mean 3 hours), with several HEIs having no coverage. • Post-registration courses available at all levels from single modules to Masters, but a deficit of courses at diploma/first degree level.

5. Development of Curriculum • Lay version of HEDN’s Dementia Curriculum developed following consultation with carers • Informal meetings held with people with dementia, asking what they would want those caring for them to be taught • Dementia Curriculum was modified as a result of these exercises.

6. Curriculum for Dementia Education (CfDE) 2007 • Understanding the experience of people with dementia • Creating partnerships with carers and families • Cultural and diversity issues • Appraising different ways of thinking about dementia • Key professional abilities • Understanding ethical issues in caring for people with dementia • Understanding legal aspects of working with people with dementia • Working with people in early stages of dementia • Assisting in daily life of people with dementia • Psychological therapies • Holistic health • Pharmacology for dementia

7. CfDE Consultation 2010 • In your view what are the most important items within the Dementia curriculum for health and social care professionals? • Are there any areas that have been missed out? • Any other comments/suggestions? • Circulated via Uniting Carers Dementia UK, Scottish Dementia working group and HEDN network • Advertised on Dementia UK website

8. Respondents to Consultation on CfDE 2010

9. Feedback on CfDE Most important • Understanding the experience of the person living with dementia • Working with people in early stages of dementia • Creating partnerships with carers and families • Understanding ethical issues • Supporting daily life for people with dementia • Person – centred care planning • Key professional abilities • Holistic health

10. Areas to be addressed • Developing attitudes and values • Understanding and developing communication skills • Biography and life stories • Care in different settings • Recognising needs and supporting carers • Evaluating/developing care Other comments: • Need to be skills/practice based • Involvement of people with dementia and family carers in delivery of education

11. HEDN Curriculum Refresh (2011) • Maintaining and building on the depth of the original curriculum Informed by: • National Dementia Strategies • Outcomes of HEDN Curriculum survey (2010) • NMC Standards (2010) • Workforce Development reports & action plan (2010) • QCF dementia units (Levels 2 & 3)

12. Value Base • Informed by a person centred approach which embraces the family, social context and relationships of the person • Values each person as unique and respects all perspectives • Committed to raising awareness, challenging stigma and improving quality of life

13. Differentiating between different levels

14. Example Learning outcomes • “Through our Eyes”- Understanding the experience of people withdementia • Rationale:People with dementia themselves have emphasised the need for professionals to be able to empathise with them “stand in our shoes”, and to create warm and genuine relationships with them.

15. Curriculum for UK Dementia Education (2013) • Introduction • Core Topics (Level 6) • Full Curriculum topics (Levels 5-7) • Literature review • Equality Impact Assessment • Content Index

18. Core Topic

19. Full Curriculum topic

20. Embedding the CfDE in pre-registration courses - Example Year 2 - 120 credits Year 1 - 120 credits Year 3 - 120 credits Adult branch Common Foundation Programme Child branch Mental Health branch Selected core topics + Selected core topics Selected core topics CfDE

21. Embedding the CfDE in pre-registration courses - Example Common Foundation Programme Adult branch 2. Identification of dementia 3. Understanding experience & communication 5. Equality, diversity, inclusion 10. Key professional abilities and collaborative working 1. Prevention 4. Partnerships with carers and families 6. Person-centred care, assessment and planning 7. Legal and ethical aspects 8. Holistic health and supporting daily life 9. End-of-life palliative care

22. Embedding the CfDE in pre-registration courses - Example Common Foundation Programme Child branch 2. Identification of dementia 3. Understanding experience & communication 5. Equality, diversity, inclusion 10. Key professional abilities and collaborative working 1. Prevention 4. Partnerships with carers and families 7. Legal and ethical aspects

23. Embedding the CfDE in pre-registration courses – A spiral curriculum Year 1 Fundamental Principles in Nursing Practice Principles of Professional Practice Clinical Practice 1 Developing Nursing Practice Clinical Practice 2 Year 2 Therapeutic Nursing Care Evidencing Professional Practice Clinical Practice 3 Developing Competency in Nursing Practice Clinical Practice 4 Year 3 Proficiency in Professional Nursing Practice Advancing Professional Practice Clinical Practice 5 Transition to Registered Nursing Practice Clinical Practice 6 Core themes: Diversity, ethical practice, professionalism, dementia etc

24. How the CfDE can help meet HEEs dementia mandate • Ensure a minimum standard/content for pre-registration programmes – professionals of future • Reduce need for NHS to provide dementia awareness training at induction or post employment • Ensure new nurses and other health professionals have the right skills when they enter practice to deliver safe, dignified, compassionate care • Raise profile of dementia care

25. Application and future of CfDE? • Link with HEE to support NHS Mandate (Tiers 1, 2 & 3) • Web-based version • Dissemination • Benchmark for HEI dementia programmes • HEDN Approval of programmes as meeting CfDE? • Ensuring quality of delivery given lack of widespread knowledge of dementia in HEI workforce