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Unique Respite Care Opportunities: Established Programs and Ways to Create Your Own

Unique Respite Care Opportunities: Established Programs and Ways to Create Your Own. George Palmer, Frontline Ministries Gayle Chesley, Ph.D., The Children's Hospital of Philadelphia. Overview. Respite care definition Considerations for a Respite Care Program

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Unique Respite Care Opportunities: Established Programs and Ways to Create Your Own

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  1. Unique Respite Care Opportunities: Established Programs andWays to Create Your Own George Palmer, Frontline Ministries Gayle Chesley, Ph.D., The Children's Hospital of Philadelphia

  2. Overview • Respite care definition • Considerations for a Respite Care Program • Development of Two Respite Programs: • FrontLine Traumatic Brain Injury Retreats • Camp Cranium • Your ideas

  3. Respite Care • Short-term, temporary relief for caregivers • Another person or group assumes caregiving responsibilities for a period of time • A change from typical-care arrangements • Can be inside or outside of the home

  4. Respite Care Program Development • Consider: • Program goals • Target population • Location • Programming • Fundraising

  5. Example 1: FrontLine Traumatic Brain Injury Retreats • Program goals • Target population • Location • Programming • Fundraising

  6. Example 1: FrontLine Traumatic Brain Injury Retreats • Program goals • Providing rest, relaxation and renewal for survivors and family members. • Providing opportunity for networking. Target population • Survivors, families and friends, spouses, parents, and siblings.

  7. Example 1: FrontLine Traumatic Brain Injury Retreats • Location • Camps, private properties, hotels. (be creative) Programming • “Simple” is good for the family. • Massage therapy, good food prepared for the guest! • The “break” in the daily grind is what we focus on. Fundraising • Local Business, churches, friends and family

  8. Example 2: Camp Cranium • Program goals: 1. An enjoyable, safe experience for children with brain injury to gain independence away from caregivers 2. A break for caregivers from everyday care demands • Target population: Camp is open to children 6 – 17 with any type of acquired brain injury; must be medically stable

  9. Example 2: Camp Cranium • Location: Central Pennsylvania- Millville Camp Victory • Programming: Juggling needs of campers, parents, and therapists

  10. Example 2: Camp Cranium • Fundraising: • Events, mailings, and website • Lessons learned: • Most challenging aspect of respite care development • Needs to be a yearlong process • Best done with a team rather than a lone individual

  11. Conclusion • If opportunities for respite in your area are lacking, it is possible to create your own program! • Be prepared for hardwork, roadblocks, and unanticipated challenges • Build a team who is committed to the goal

  12. Your Ideas • Please share with the group: • Your knowledge of any existing respite care programs in Pennsylvania and beyond • Your ideas for needed respite programs

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