1 / 7

Partnerships in Lupus Care: The New Horizon

MEDICINE OF THE HIGHEST ORDER. Partnerships in Lupus Care: The New Horizon . Jennifer H. Anolik, MD, PhD Associate Professor of Medicine Division of Allergy, Immunology & Rheumatology University of Rochester Medical Center 2010. Patient-Centered Care. WHAT:

corina
Download Presentation

Partnerships in Lupus Care: The New Horizon

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. MEDICINE OF THE HIGHEST ORDER Partnerships in Lupus Care: The New Horizon Jennifer H. Anolik, MD, PhD Associate Professor of Medicine Division of Allergy, Immunology & Rheumatology University of Rochester Medical Center 2010

  2. Patient-Centered Care • WHAT: • Patient centered care is ‘respectful of and responsive to individual patient preferences, needs, and values, and ensuring that patient values guide all clinical decisions’ • Fosters interactions between clinicians, patients, and families • Aims to improve clinical practice by building caring relationships that bridge demographic, social, and economic differences between clinicians and patients • WHY: • Improved care • Improved well-being • Addressing disparities Epstein, Fiscella et al. Why The Nation Needs A Policy Push On Patient-Centered Health Care Health Affairs 2010

  3. The Physician-Patient Disconnect • Doctor-assessed disease outcomes may not reflect patients’ perspectives on their health • Doctors place emphasis on laboratory parameters and traditional measures of disease activity • Patients tend to place more emphasis on their function. • The majority of patients with chronic diseases including lupus cite biopsychosocial factors as the biggest impacts on their health Friedman, Alarcon et al. 1999; Hale, Treharne et al. 2006; Ward, Lotstein et al. 1999)

  4. Disease Activity Measures

  5. Patient centered health outcomes • Lupus Specific Health Outcomes Measure • Lupus Quality of Life measure – 8 domains • LupusPRO- additional domains: Lupus Symptoms; Cognition; Lupus Medications; Procreation; Physical Function; Pain- Vitality; Emotional function; Body Image; Desires- Goals; Support system; Coping; Satisfaction with Lupus Care • Recent data demonstrating responsiveness to changes in patient health status Jolly, M., A. S. Pickard, et al. ‘Lupus-specific health outcome measure for US patients: the LupusQoL-US version.’ 2010 Ann Rheum Dis 69(1): 29-33.

  6. Evidence for the benefits of patient-centered health care in lupus • Failure to access care has been linked to young age, low self-efficacy and lack of social support in lupus patients and worse health care outcomes • Patients can successfully learn to increase social support networks and self-efficacy strategies. Improved fatigue too!! • Patient-centered treatment and support plans (guided care models) impact outcomes in both lupus and other chronic disease Karlson, Daltroy et al. 1997; Karlson, Liang et al. 2004; Epstein, Fiscella et al. ; Aliotta, Grieve et al. 2008

  7. Implementation in the Lupus Clinic • HYPOTHESIS: • The better lupus patients understand their disease, participate in their care, and have their concerns met, the more compliant they will be with medical follow-up and the better their overall health status and well-being will be. • IMPLEMENTATION: • 1) Lupus Nurse Care Coordinator • 2) Patient Mentor-Liason Program in collaboration with the Lupus Foundation of Genesee Valley Epstein, Fiscella et al. ; Pierce, Asick et al. 2009; Funnell 2010

More Related