Structured Data Capture (SDC) Public Health Tiger Team

1. Structured Data Capture (SDC) Public Health Tiger Team June 18th, 2013

2. Overview Items • Public Health Tiger Team • Use Cases • Criteria for Prioritization • Question and Answers • Next Week

3. Public Health Tiger Team wiki • http://wiki.siframework.org/Public+Health+Tiger+Team • Every Tuesday 2-3 pm • Dial In: +1-650-479-3208 • Access code: 665 131 907 • URL: https://siframework1.webex.com/siframework1/onstage/g.php?t=a&d=665131907 • **This info will not change.

4. EHR and SDC Model Example Types of Reporting Case Reporting (Pilot CDA) ELR 2.5.1 Immunization 2.5.1 EHR PH Cancer CDA Sample Types of Reporting Deliver data from form {FormatType, TBD} Form Request Form (CDISC RFDC) Quality Forms Repository Deliver Form Define Forms CDEs Meta Data Business Logic Research Public Health

5. Form Repository EHR Sample Types of Reporting Form Request Form (CDISC RFDC) Quality CDEs Metadata Business Logic Vocab, order, skip patterns Forms Repository Deliver Form Define Forms Research Public Health

6. Public Health Agency Case Notification (Pilot CDA) ELR 2.5.1 Immunization 2.5.1 Cancer CDA Deliver data from form {FormatType, TBD}

7. Applicable SDC Public Health User Story Reportable Condition User Story A Provider has identified a patient with a reportable condition.Using an existing EHR system, the Provider requests the reportable condition form electronically from the jurisdictional public health organization or entity. In the background, the EHR system sends information already collected about the patient to a forms manager. The Provider now sees the jurisdictional public health reportable condition form inside his or her own EHR/EMR system. Conveniently, most of the data are already pre-populated in this form.The Provider verifies the pre-populated data, adds any missing data, and then submits the form.The Provider receives a response that confirms that the report was submitted to Public Health electronically and received by the public health information system. 16

8. Building Upon PHRI Efforts Some user stories need to be consolidated into more generic use cases Common data elements great start, but may need some more work to consolidate and add metadata Consolidation important because of the concept of pre-population

9. Activities for Public Health Domain Criteria for prioritization Actual prioritization Review of Common Data Elements from PHRI Identification of future CDE tasks 19

10. NIH Definition for ‘Common Data Element’ NIH CDE Resource Portal defines ‘common data element’ CDE as: A data element that is common to multiple data sets across different studies • Emphasis is on the intentional use of CDEs to improve data quality and promote data sharing • Types of CDEs include: • Universal: CDEs that may be used in studies, regardless of the specific disease or condition • Domain-specific: CDEs that are designed and intended for use in studies of a particular topic, disease or condition, body system or classification • Required: CDEs that are required or expected, as a mater of institutional policy • Core: CDEs that are required or expected to be collected in particular classes of studies 22 Source: http://www.nlm.nih.gov/cde/glossary.html#cdedefinition

11. NIH Common Data Element (CDE) Resource Portal • http://cde.nih.gov • Provides single point-of-entry for information about NIH-supported CDE initiatives and CDE tools & resources • Enables browsing of descriptive summaries of the CDE initiatives and of the subject areas to which they apply • Links out to repositories containing the data elements themselves. • Version 1.0 launched in January 2013 • Contains information on 16 NIH-supported initiatives • Future enhancements: additional NIH and HHS initiatives, improved navigation 23

12. Other PHRI Use Cases TBD

13. Public Health Work Plan

14. Work plans

15. CDE and Form Template Identification Identify PHRi user stories to incorporate with SDC Conduct CDE Overview session Facilitate WG identification of CDE’s for PH reporting Facilitate WG identification of forms/templates for PH Reporting

16. Pilot Engagement Develop pilot engagement plan Develop Pilot Summary Document Monitor Pilot Progress

17. Overall SDC Engagement Participate in SDC All-Hands meetings Participate in SDC Technical SWG Meetings Present PH CDE to SDC Community

18. Thoughts, Comments, Questions? Contact: Jim (James) Daniel, ONC james.daniel@hhs.gov John M. Saindon, CDC uzn0@cdc.gov

19. Vital Statistics (NCHS) • Hospital care survey (NCHS) • Vaccine Adverse Event Reporting (VAERS) (HLN) • School/camp/day care physical form(HLN)