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Global Advocacy Agenda: Process To Date
Objective A global consultative process under the umbrella of Positive Health, Dignity and Prevention designed to contribute to redefining the Global Advocacy Agenda for PLHIV with the three themes of: • Access to Treatment, Prevention, Care and Support • Human Rights • Community Mobilization and Activism
Phased Process • 6 week process (May-June 2012), including: • E-survey (3-21 May 2012) • E-consultation (23 May to 17 June 2012) • LIVING 2012 Summit 19-20 July
E-survey • Respondents were requested to selectsix issues which are important for them and their community, and they think should be explored further in the e-consultation • Respondents were also asked to provide their perspectives on missing information and other concerns, and the importance of these as advocacy priorities. Additional comments received : • Access to PTCS (n=156) • Human Rights (n=65) • Community Mobilization and Activism (n=45) • Total (n=266) • Survey in English, French, Russian and Spanish
E-survey Demographics • 712 people registered • Gender: over twice as many male as female respondents (485 compared to 220) as well as 7 transgender • Age group: • 71.2% aged 25-49 years • 24% were 50 years of age and older • 4.8% were 15-24 years of age • Length of time living with HIV: 31.6% 16 years or more, 26.7% 10-15 years and approximately 20% 1-4 years or 5-9 years • Region: Europe: 36.8%, n=262 Africa: 22.3%, n=159 Latin America: 15.5%, n=110 North America: 13.8%,n=98 Asia Pacific: 9.1%, n=65 Caribbean: 1.1%, n=8
Results: Access to Prevention, Treatment, Care and Support • Increasing access to ARV drugs for all those who need them (n=490) • Diagnostics (viral load and CD4) (n=288) • Socio-economic support (n=285) • Psychosocial care (n=269) • Treatment as Prevention (n=260) • Treatment literacy (n=253)
Results: Human Rights • Criminalization of transmission, exposure and non disclosure (n=401) • S&D in the community (n=389) • Rights to confidentiality and privacy (n=386) • S&D in the workplace (n=332) • S&D in health care setting (n=330) • Restrictions on entry, stay and residency (n=317)
Results: Community Mobilization and Activism • Funding for the HIV response (n=482) • Involvement of PLHIV in policy and decision-making (n=444) • PLHIV involvement in service delivery (n=419) • Local and national level advocacy (holding governments accountable) (n=388) • New science and research (n=372) • Capacity building for networks of PLHIV (n=369)
E-consultation • Based on the e-survey and in consultation with GNP+, a moderated e-consultation process • Hosted by NAM • Provide a platform for people living with HIV to participate and have their voice heard in the development of the GAA, irrespective of whether attending LIVING 2012 or not • English, French and Spanish(+ Google for translation into additional languages)
E-consultation Results • PTCS: 147 responses, 65 respondents • HR: 94 responses, 35 respondents • ComMob and Act : 80 responses, 24 respondents • Totals: 321 responses, 124 respondents
Outcomes • The results of the e-survey and e-consultation are compiled in: • Three Thematic Papers • Summary of Findings • Informed the development of the LIVING 2012 agenda • Will contribute to redefining the Global Advocacy Agenda
LIVING 2012 Summit • Held 19-20 July 2012 • Discusssions around 3 themes covering: • What are the issues • Role(s) of people living with HIV • What are the main advocacy asks • Mix of plenary sessions and group work • Discussions in English, French, Russian and Spanish • Highlights of these will be presented in the following three presentations
Process going forward • Global Advocacy Agenda aims to bring PLHIV movement together • No prioritization of issues as will lead to ‘silo-ization’ • Will look for areas of consensus. Highlight where we agree. • Where disagree will look for common language and principles i.e. gender, violence, criminalization • Different lenses: age, region, gender, key populations • Will send out data for validation and input from participants prior to developing Global Advocacy Agenda. • The consolidated findings of the e-consultation process and LIVING 2012 Summit will be complied in the LIVING 2012 Report.