1 / 4

The Newborn Screening Clearinghouse

Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children September 22, 2011. The Newborn Screening Clearinghouse. Key Questions for SACHDNC.

Download Presentation

The Newborn Screening Clearinghouse

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript


  1. Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children September 22, 2011 The Newborn Screening Clearinghouse

  2. Key Questions for SACHDNC • Recommended Universal Screening Panel (RUSP) and other conditions: How should these be included in educational efforts? What is the proper language to represent all states: required, detected, mandated, etc.? • Terminology: What terminology should be the reference point? RUSP, NLM, ACMG, state-specific? • Key messages: Are we looking for awareness or informed decision making?

  3. www.BabysFirstTest.org This is Baby’s First Test

  4. Sharon F. Terry, MA (Principal Investigator) Natasha Bonhomme (Project Director) Natasha@babysfirsttest.org Questions?

More Related