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The Northern Ireland Longitudinal Study (NILS) a new tool for health (and other) researchers

The Northern Ireland Longitudinal Study (NILS) a new tool for health (and other) researchers. Dermot O’Reilly Department of Epidemiology & Public Health Queen’s University Belfast. Core datasets. 2001 Census CSA Health Cards (CHI) Births Deaths NI Cancer Registration Future census data.

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The Northern Ireland Longitudinal Study (NILS) a new tool for health (and other) researchers

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  1. The Northern Ireland Longitudinal Study (NILS) a new tool for health (and other) researchers Dermot O’Reilly Department of Epidemiology & Public Health Queen’s University Belfast

  2. Core datasets • 2001 Census • CSA Health Cards (CHI) • Births • Deaths • NI Cancer Registration • Future census data the NILS

  3. Additional possibilities • via Health & Care Number? • Hospital • Community care • Social services • Child health • Social Security Data • U/E, low income, disability etc.

  4. Benefits of NILS • Data is of high quality • No burden on respondents • Non-response attrition not an issue • Large (and representative) dataset enabling analysis of sub-groups • Covers communal and private households • Security of access allows analysis of fine level data • Gets better over time • Enables ‘life-course’ analysis

  5. NILS… Possible Linkages & Analyses a b c Census 1 Census 2

  6. Some possible studies Currently… • Survival rates in a partner following death of spouse. • Is deprivation important for older people? • Is marriage or living alone that is worst? • Relationship between measures of self-reported ill-health and mortality • Where do older people go when they are ill? Carers: Nursing & residential homes: • Admissions (causes, directions, variations) • Deaths ?monitoring

  7. Some possible studies cont’d Use of services (in the future, possibly): • Through hospital system: • Uptake of services in year preceding death… variations over time and according to age. • Through SOSCARE: • Through prescriptions database…unlimited

  8. Morbidity and mortality of unpaid carers in the community Aims: • To describe the self-reported health status of carers in Northern Ireland by the amount of time spent caring; • To examine their mortality experience over the subsequent four years

  9. Findings • 163,340 carers aged 16+ (14.1% of pop.) • Characteristics similar to elsewhere in UK • Self-reported health • Lower levels of LLTI • Higher levels of poor GH

  10. Probability of death adjusted for confounders ***P<0.001; **P<0.01; *P<0.05

  11. Determinants of admission Nursing/Residential home of older people in NI 2001 2005 N/R home • 2001 CENSUS • Demography • SES • HH composition • Carers • Health status • Area characteristics N.I.L.S • CSA • Address change • HH change

  12. Nursing & residential homes: Mortality study Results: • 10,512 residents • 3,404 (50%) residential; 7,108 (65%) nursing • Mortality higher • in privately owned homes (HR 1.22 (1.09, 1.36)) • In homes <20 residents (HR 1.20 (1.08, 1.35))

  13. Finished Any questions?

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