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Providing the evidence…..linking social care, housing support and health data Gillian Barclay & Ellen Lynch Scottish Government. Summary. Areas of Research Project Governance Privacy Impact Assessment Overview of the Data Linking Process. Areas of Research.

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Providing the evidence…..linking social care, housing support and health dataGillian Barclay &Ellen LynchScottish Government

summary
Summary
  • Areas of Research
  • Project Governance
  • Privacy Impact Assessment
  • Overview of the Data Linking Process
areas of research
Areas of Research
  • Improve our understanding of whether those who have had multiple unplanned admissions to hospital have a social care package in place
  • Improving the information on people with dementia
  • Tracking people with dementia over time to provide evidence of how their support packages change and if this impacts on emergency admissions.
  • Improving the information on people who have a mental health problem and on those who have died by probable suicide to see if and what support packages were in place.
project governance 1
Project governance (1)

Ministerial

Strategic Group for

Health & Community Care

Data Linking

Steering Group

Health & Community Care

Delivery Group

Linking Social Care, Housing & Health Data

Governance Group

Linking Social Care, Housing & Health Data

Operating Group

Linking Social Care, Housing & Health Data

Reference Group

project governance 2
Project governance (2)
  • Permission from the data controllers including data sharing agreements.
  • Support from the Information Commissioner’s Office.
  • Ethical approval (if deemed ‘research’ as opposed to ‘audit’ or ‘service evaluation’).
  • Approval from the CHI Advisory Group.
  • Approval from the Privacy Advisory Committee.
who are will be involved in developing the project
Who are/will be involved in developing the project?
  • Scottish Government – statisticians, data protection officers & policy
  • ISD Scotland/SHIP – analysts, data linking specialists, IT specialists, Caldicott Guardians
  • National Records of Scotland – Analysts
  • COSLA & ADSW representatives
  • Other local authority representatives – analysts, IT, data protection officers
  • Health board representatives
  • Social care & health service users
privacy impact assessment pia
Privacy Impact Assessment (PIA)
  • The Scottish Government is committed to using Privacy Impact Assessments to identify and address the potential privacy impacts of all new policy proposals, projects and programmes.
    • Identity Management and Privacy Principles
      • http://www.scotland.gov.uk/Publications/2010/12/PrivacyPrinciples
  • Linking social care, housing support & health data PIA
    • http://www.scotland.gov.uk/Topics/Statistics/Browse/Health/Datalinking/HealthSocialCareandHousin/HSCHPIA
    • Any comments on the PIA from local authorities to be received by 21st Oct, prior to Privacy Advisory Committee application.
    • Local authorities to confirm interest to participate by 21st Oct.
how we will link data
How we will link data?
  • Utilise the Scottish Health Informatics Programme (SHIP)/ISD Scotland
    • http://www.scot-ship.ac.uk/
  • Utilise Scotxed Unit, SG
    • Already collect the social care data from LAs for national statistical publications
    • This same social care data will be used in the data linking project
    • https://www.scotxed.net/default.aspx
data linking process overview stage 1
Data linking process overview (Stage 1)

SMR01

Personal identifiers,

Unique ID

Home care

Personal identifiers,

Unique ID

ISD’s

Data Indexing

Team

Prescribing

Personal identifiers,

Unique ID

data linking process overview stage 2
Data linking process overview (Stage 2)

SMR01

(UniqueID,

Encrypted

Linkage ID,

Project Code)

Data

Controller

(ISD)

ISD’s

Data

Indexing

Team

Home care

(UniqueID,

Encrypted

Linkage ID,

Project Code)

Data

Controller

(LA)

Prescribing

(UniqueID,

Encrypted

Linkage ID,

Project Code)

Data

Controller

(ISD)

Linkage Key

(used to decrypt

Linkage ID)

data linking process overview stage 3
Data linking process overview (Stage 3)

SMR01

(Project Code,

Encrypted

Linkage ID,

Attribute Data)

Data

Controller

(ISD)

Home Care

(Unique ID,

Project Code,

Encrypted

Linkage ID)

Home Care

(Project Code,

Encrypted

Linkage ID,

Attribute Data)

ScotXed

Unit,

SG

Data

Controller

(LA)

Prescribing

(Project Code,

Encrypted

Linkage ID,

Attribute Data)

Data

Controller

(ISD)

data linking process overview stage 3 cont
Data linking process overview (Stage 3 cont...)

SMR01

(Project Code,

Encrypted Linkage ID,

Attribute Data)

Linking

ISD’s Linking Team

LinkageAgent

Home Care

(Project Code,

Encrypted Linkage ID,

Attribute Data)

Linking

Area

Prescribing

(Project Code,

Encrypted Linkage ID,

Attribute Data)

Linkage Key

(Used to decrypt

Linkage ID)

data linking process overview stage 4
Data linking process overview (Stage 4)

Linking

ISD’s Linking Team

Linkage Agent

Linking Area

Safe Haven

Secure access area

Statistical

Disclosure

Control

SMR01 (Project Code,

Linkage ID, Attribute data)

Report

Analyst

Home Care (Project Code,

Linkage ID, Attribute data)

Prescribing (Project Code,

Linkage ID, Attribute data)

further information
Further information
  • http://www.scotland.gov.uk/Topics/Statistics/Browse/Health/Datalinking/HealthSocialCareandHousin
  • Ellen Lynch, Health Analytical Services, Scottish Government
    • SWStat@scotland.gsi.gov.uk
    • 0131 244 4093