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Living with Ovarian Cancer: How Palliative Care Can Help

Living with Ovarian Cancer: How Palliative Care Can Help. Elizabeth Loggers, MD, PhD Medical Director, Supportive and Palliative Care Seattle Cancer Care Alliance Associate Member Fred Hutchinson Cancer Research Center. No disclosures. HAVE YOU EXPERIENCED PALLIATIVE CARE?.

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Living with Ovarian Cancer: How Palliative Care Can Help

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  1. Living with Ovarian Cancer: How Palliative Care Can Help Elizabeth Loggers, MD, PhD Medical Director, Supportive and Palliative Care Seattle Cancer Care Alliance Associate Member Fred Hutchinson Cancer Research Center

  2. No disclosures

  3. HAVE YOU EXPERIENCED PALLIATIVE CARE?

  4. WHO Definition of Palliative Care National cancer control programmes: policies and managerial guidelines, 2nd ed. Geneva, World Health Organization, 2002. • Palliative care is an approach that improves the quality of life of patients and their families facing the problem associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocial and spiritual.Palliative care: • provides relief from pain and other distressing symptoms; • affirms life and regards dying as a normal process; • intends neither to hasten or postpone death; • integrates the psychological and spiritual aspects of patient care; • offers a support system to help patients live as actively as possible until death; • offers a support system to help the family cope during the patient’s illness and in their own bereavement; • uses a team approach to address the needs of patients and their families, including bereavement counseling, if indicated; • will enhance quality of life, and may also positively influence the course of illness; • is applicable early in the course of illness, in conjunction with other therapies that are intended to prolong life, such as chemotherapy or radiation therapy, and includes those investigations needed to better understand and manage distressing clinical complications.

  5. Palliative Care: Bridge Repair https://youtu.be/lDHhg76tMHc?t=43 https://youtu.be/lDHhg76tMHc https://getpalliativecare.org/palliative-care-bridge/

  6. 5 Randomized Trials including Cancer Patients Higginson IJ, e al. Cancer J. 2010; 16(5):423-435 Parikh, N Engl J Med 369;24 December 12, 2013 • No harm in any trial • Better patient understanding • Improved satisfaction, communication • More advance directives • Better symptom control and quality of life • Lower costs • Higher quality of EOL care • Fewer readmissions, ED and ICU use; longer hospice LOS; increase in home death • Better survival

  7. Early Palliative Care for Lung Cancer Temel, et al. NEJM. 2010; 363:733-742.

  8. Society for Gynecologic Oncology Clinical Practice Recommendations “Do not delay basic level palliative care for women with advanced or relapsed gynecologic cancer, do refer to a palliative care specialist when needed....” Rimel BJ, et al, Gynecologic Oncology 137 (2015) 280-284.

  9. Palliative Care and Ovarian Cancer

  10. Palliative Care and Ovarian Cancer • Whole-person care • Quality of life • Goal setting • Active listening, clarifying what is important • Understanding the natural disease trajectory (can be a chronic illness) • Mood • Coping • Including caregiver, family support • Dependent children • Advance care planning • Prognostication, “translating” medical facts • Document completion

  11. Palliative Care and Ovarian Cancer • Whole-person care • Symptoms from disease or its treatment • Fatigue • Bloating • Abdominal pain • Early satiety and poor appetite • Nausea, vomiting • Constipation, diarrhea • Urinary changes • Insomnia • Peripheral neuropathy • Shortness of breath • Malignant bowel obstruction (medical management)

  12. Hospice versus Palliative Care • Palliative Care is the “umbrella” term • Care can be provided at any point in illness – concurrent with aggressive and curative treatments • Hospice is a subset of Palliative Care • Interdisciplinary care provided in the last six months of life • Patient must forgo treatments with curative intent

  13. Hospice Includes: • Interdisciplinary care • Medical care • Counseling • Spiritual care • Volunteer services • Bereavement services • Medical appliances and supplies • Drugs for symptom and pain relief • Short-term inpatient, residential and/or respite care • Homemaker/home health aide • http://www.nhpco.org

  14. Primary Hospice Admission Diagnosis National Hospice and Palliative Care, Facts and Figures on Hospice Care, 2019

  15. Hospice Care • 48.2% of hospice patients died at “home” in 2017 • Hospice can also be provided in nursing facilities, adult family homes, etc National Hospice and Palliative Care, Facts and Figures on Hospice Care, 2019

  16. Hospice Myths • Hospice pays for all medical care • Hospice provides: • a place to live • 24-hr, in-person care • You can’t see your primary care or oncologist • Once you join hospice, you can’t stop • Everyone has a morphine drip

  17. What Could Palliative Care Do For You?

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