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Reducing Disparities through Research and Translation

Explore disparities in healthcare for people with disabilities, strategies for reducing stigma, and the importance of inclusive practices. Learn about market segmentation and knowledge translation for effective outreach. Discover ways to measure and improve healthcare outcomes.

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Reducing Disparities through Research and Translation

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  1. Reducing Disparities through Research and Translation AHRQ 2011 Sue Swenson, DAS USED/OSERS sue.swenson@ed.gov

  2. People with Disabilities About 19% of Americans have functional limitations About 12% of Americans have a “severe” disability Source: DREDF, Improving Health and Access to Health Care for People with Disabilities, May 2009

  3. People Who Report Fair or Poor Health Asians - 8% Blacks - 18% American Indian/Alaska Native - 22% Hispanic - 23% People with Disability - 40% Source: “Health Disparities Chart Book on Disability and Racial and Ethnic Status in the United States,” IOD/UNH, 2011

  4. Questions of value • Is disability stigmatized? • “This is a good enough outcome.” • “Disability is not compatible with health.” • “Those people need to see someone who specializes in their disability.” • “People would rather die than live with disability.” • “It costs too much to include people with disabilities in my practice.” • “I have time limits.”

  5. Doctor = Teacher • The unspoken lesson: • If you can’t get to the doctor’s office, • If the office doesn’t take your insurance, • If you can’t get into the doctor’s office, • If you can’t get onto the examining table, • If you can’t access testing or treatment equipment, • If you can’t understand diagnostic questions, risks and instructions, • If you don’t have the community support you need to carry out recommendations,

  6. Doctor = Teacher • The unspoken lesson: • You don’t belong here. • Your health does not matter.

  7. The Marketing Discipline • Carve nature at its joints • Understand segments • Shared want, need, and way to pay • Shared information channels

  8. Segments • Racial minorities • Ethnic minorities • Multi-ethnic identity • Density/ urbanicity • Income/poverty • Lifestyle/values • Disability • Gender • Age

  9. Proprietary Market Research One example: Nielsen Claritas PRIZM There are 66 PRIZM segments

  10. Knowledge Translation: • Cross-cutting effort, like technology • F/T staff in a small office • pimjai.sudsawad@ed.gov • Invitational training

  11. NIDRR-funded Center on Knowledge Translation and Technology Transfer: KT4TT SUNY/Buffalo http://www.kt4tt.buffalo.edu

  12. Managing the learning curve • Competition as a source of innovation • Market share = learning curve • Segmentation is a marketing strategy – not a goal. • Can market penetration result from grant funding? • New funding mechanisms? • Part for-profit, part non-profit • Stanford Social Innovation Review • Is there a cross-government effort to look at this? • Could ICDR look at this?

  13. Ethics, Systems and Quality • Measure inputs, outputs, results, outcomes and impacts • For those you serve and those you should serve

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