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IIMHL/IILD Exchange

Explore the complexities of families interacting with disability systems, addressing issues such as lack of service rights, navigating support systems, financial burdens, and the impact on family life. Learn about the dual role of parents as carers, the legal position of parents vis-a-vis adult children with ID, and ensuring families remain primary decision-makers. Discover the implications of medicalization of disability and societal prejudices faced. This resource emphasizes the importance of individualized services, avoiding over-dependence, and respecting family systems.

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IIMHL/IILD Exchange

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  1. IIMHL/IILD Exchange Issues for Families

  2. Where systems and services interact • Lack of a right to service in Disability Act • Legal position of parents vis a vis adult children with ID. • Difficulties of navigating the systems and finding the right supports – what the person needs v what’s available • Access to individual funding/control over supports

  3. Parents as Carers • Largely unpaid, usually women carers – this may suit the state • Dual role into adulthood • As parents age - need for residential/housing supports • Financial cost to parents and the family of caring for child/adult with a disability • Where individualized services exist - avoiding over dependence on parents/family.

  4. Service issues • Impact of services on family life – specific to disability, respecting the family system • Ensuring that families remain the primary decision makers regarding their child – avoiding over professionalization • Medicalization of disability

  5. Prejudice Assumptions in society about people with disabilities Access to local education, sports etc does not happen automatically

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