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PPC Capstone

This Capstone project by a PPC Nurse Practitioner Trainee focuses on Spinal Muscular Atrophy (SMA) and includes an Emaze presentation, clinical experiences, NBS committee meeting, family mentor experience, and teaching assistant role.

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PPC Capstone

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  1. PPC Capstone Emily Schumacher, BSN, RN PPC Nurse Practitioner Trainee

  2. Leadership Reflection • My definition: • Someone having a vision or goal to improve something, and motivating and inspiring others in the path of making that improvement • My strengths: • Achiever • Responsibility • Learner • Belief • Discipline • Conflict handling style: • Compromising • Change style preference: • Pragmatist with an originator orientation Competencies: self-reflection, communication, interdisciplinary team building

  3. Capstone Project • SMA: Past, Present, & Future • Emaze presentation with audio voiceover • 25 minutes long • Meant for use by PPC trainees, patients and families, providers, and other interdisciplinary team members • Focused on the genetics of SMA, drug trials, drugs available, interdisciplinary team management, and newborn screening • https://www.emaze.com/@AOORCOTFC/sma-past--future Competencies: interdisciplinary team building, family centered care, cultural competency, CYSHN, policy/legislation, ethics/professionalism blah

  4. Clinical Experiences • Shelly Eagen NP • Pulmonary - neuromuscular disorders • Dr. Meredith Schultz • Neurology • Interdisciplinary team • Nutrition, PT, Social work, RT • Kate Swenson NP • Pulmonary - asthma • DarciPfeil NP • Pulmonary – cystic fibrosis • Julie Slattery NP • Palliative care • Dr. Cami Matthews • Sleep medicine • Erin Marriott NP • Cardiology Competencies: interdisciplinary team buliding, family centered care, communication cultural competence, CYSHN, critical thinking, negotiation and conflict resolution

  5. NBS Committee Meeting • WI Department of Health Services WI Division of Public Health Umbrella Committee Meeting Newborn Screening Program • Spinal Muscular Atrophy Nomination • Presented by Dr. Schultz and Dr. Schroth • CureSMA funding opportunity for SMA NBS initiatives • December 2017 - Umbrella Committee recommended that SMA become part of the the routine NBS panel in Wisconsin • February 2018 - Advisory Committee to the Secretary of the WI Department of Health Services passed it • Currently, the Secretary is awaiting the formal proposal • If she passes it, then a plan will be created on how to rule and create the infrastructure needed to add SMA to the Wisconsin NBS panel • Total process will take 2-3 years                                         Competencies: interdisciplinary leadership, working with communities and system, CYSHN, policy/legislation, MCH knowledge base, ethics and professionalism

  6. Family Mentor Experience • 8 year old girl with SMA type 1 • Attended physical therapy evaluation • Spent afternoon at her home with family • Spent day with family for Spinraza injection Competencies: family centered care, cultural competence, CYSHN, self reflection, communication

  7. Teaching Assistant for N746 • N746: Interdisciplinary Care for Children with Special Health Care Needs • Mediated discussion forums • Content: • Life course story • Disparities • Family centered care • Interdisciplinary team roles • Resources for CYSHN • Culture competence • Finances and health insurance • Policy and legislation • Transition Competencies: interdisciplinary leadership, family centered care, MCH/Title V cultural competence, CYSHN, distance learning, policy/legislation, developing others through teaching and mentoring

  8. More highlights… • Ethical dilemmas - with Palliative Care and Shelly • Excellent discussion! • Policy and legislation tutorial • Washington DC Annual Meeting • Capitol Hill visits • Infant Mortality Collaborative Learning Day • Milwaukee Pipeline and LEND collaborative experience • Strong Baby Sanctuary and Blanket of Love programs Competencies: interdisciplinary leadership, cultural competence, CYSHN, MCH/Title V, working with communities and systems, developing others through teaching and mentoring

  9. Future Implications • Public health career possibilities • Meeting with MCH leaders • Policy involvement • Within community and larger level • Education career possibilities • Teaching, Clinical Preceptor • Resources available • Within community and larger level • CYSHN population • My passion!

  10. Thank you! Questions? blah

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