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Private and Public Partnerships Developed to Improve Services for Children with Special Health Care Needs (CSHCN). Presentation to 3rd International Conference on Patient and Family Centered Care Monday, July 30, 2007 by Marcia O’Malley Executive Director, Family TIES of Nevada

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Presentation Transcript
slide1

Private and Public Partnerships Developed to Improve Services for Children with Special Health Care Needs (CSHCN)

Presentation to

3rd International Conference on

Patient and Family Centered Care

Monday, July 30, 2007

by

Marcia O’Malley

Executive Director, Family TIES of Nevada

Debra Wagler

Health Program Manager, Nevada State Health Division

nevada partners
MISSION

Nevada State Health Division

promotes and protects the health of

all Nevadans and visitors to the state through its leadership in public health and enforcement of laws and regulations pertaining to public health.

MISSION

To increase the hope, confidence,

and independence of people with

disabilities and chronic health

conditions of all ages and their

circle of support through training,

information, emotional support,

and advocacy.

Nevada Partners
nevada s services landscape
Nevada’s Services Landscape
  • Early Intervention Services
  • Public School Districts
  • Public Health Agencies
  • Community Service Organizations
  • Physicians and other

medical service providers

  • Mental Health Service Providers
  • Public Assistance Agencies
slide4
Gaps
  • Pediatric Specialists
  • Mental Health Providers
  • Respite care
  • Child care
  • Dentists that accept Medicaid
  • Very few services in remote areas of the state
slide5
Why?
  • Tremendous population growth
  • 24.9% change between 2000 and 2006
  • Distribution of the population
slide6
Why?
  • Lack of resources
  • Medicaid reimbursement process is cumbersome
  • Some caregivers have unrealistic expectations
  • Transient families
  • High turnover in education and medical professionals
  • Staff are overwhelmed
  • Language and cultural barriers
survival of the fittest
Survival of the Fittest

Partnering

is a necessity to

meeting the needs!

meaningful involvement
Meaningful Involvement
  • Recruited for the Genetics Subcomittee
  • Assisted with needs assessments
  • Participated on hiring committees and RFP review panels
real choice systems change grantees
Real Choice Systems Change Grantees
  • Office of Disability Services

Personal Care Assistance

  • Medicaid

HIWAA (Money Follows the Person)

  • Family TIES of Nevada

Family to Family Health Information and Education Center

  • Nevada Bureau of Family Health Services

Systems Change for CSHCN

  • Nevada Division of Aging Services

Aging and Disability Resource Center

medical home initiative
Medical Home Initiative
  • Family Centered Organizations
    • Nevada PEP (Parent Training Information Center)
    • Family TIES of Nevada
    • Northern Nevada Center for Independent Living
  • State Agencies: Title V, Medicaid,
    • Community Health Nurses
  • Medical providers
    • Hospital Associations
    • FQHC
    • Tribal clinics
  • University Departments
    • School of Social work and nursing school
    • Epidemiology
    • Office of Rural Health
health insurance coverage
Statewide Governing Council

Regional Coalitions (Northern & Southern Nevada)

Provides assistance and

resources in the areas of:

Medicaid

Medicare

Private Insurance

The Uninsured

Health Insurance Coverage
early period screening detection and treatment
Early Period Screening, Detection, and Treatment
  • Community-based Organizations
    • Nevada PEP (Parent Training Information Center)
    • Family TIES of Nevada
    • Head Start
    • Great Basin Primary Care Association
  • State Agencies: Title V, Medicaid, DCFS, Welfare, Early Intervention Services, WIC
    • Community Health Nurses
    • Governor’s Council on Developmental Disabilities (SPAC)
  • Public
    • FQHC
    • Tribal clinic staff
    • Inter Tribal Council Network
    • Nevada Public Health Foundation
  • Private
    • Managed Care Organizations
    • Physicians
what worked

What worked?

What didn’t?

information referral
STRENGTHS

Statewide collaboration

Cross promotion and referral

Draws on assets of each partner

CHALLENGES

Requires cross training of all front line staff

Resource databases need to have current listings

Information & Referral
real choice systems change grantees1
STRENGTHS

Statewide collaboration on a management level

Shared resources

CHALLENGES

Less involvement and support from state admin

Lack of sustainability plan

Real Choice Systems Change Grantees
medical home initiative1
STRENGTHS

Topic of Interest

Organizations identify benefit of participating

Cross referring

Shared tracking and monitoring system

CHALLENGES

Status of medical home in Nevada

Lack of resources

Lack of education and awareness

Medical Home Initiative
health insurance coverage1
STRENGTHS

Topic of Interest

Organizations identify benefit of participating

Cross referring

CHALLENGES

Growing, transient population

Lack of resources

Lack of education and awareness

Health Insurance Coverage
early period screening detection and treatment1
STRENGTHS

Resources are available

Organizations identify benefit of participating

Cross referring

CHALLENGES

Staff turnover

Keeping EPSDT a priority

Maintaining a statewide network

Early Period Screening, Detection, and Treatment
common elements for success
Common Elements for Success
  • A common goal!
  • Meaningfully involvement!
  • Everyone gets something out of it!
contact
Marcia O’Malley

Executive Director,

Family TIES of Nevada

Toll-Free:

866-326-8437

Email:

momalley@familytiesnv.org

Website:

www.familytiesnv.org

Debra Wagler

Health Program Manager

Systems Change for CSHCN,

Bureau of Family Health Services,

Nevada State Health Division

Phone:

775-684-3479

Email:

dwagler@health.nv.gov

Website:

health.nv.gov/cshcn/CSHCN

Contact