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Dental Care for Children and Youth with Special Health Care Needs AAPD Conference Children and Adults with Special Health Care Needs November 17-18, 2006, Chicago Betsy Anderson, Family Voices V OICES FAMILY National Network of Families & Friends http://www.familyvoices.org

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Dental Care for Children and Youth with Special Health Care Needs


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dental care for children and youth with special health care needs

Dental Care for Children and Youth with Special Health Care Needs

AAPD Conference

Children and Adults with Special Health Care Needs

November 17-18, 2006, Chicago

Betsy Anderson, Family Voices

slide2

V

OICES

FAMILY

  • National Network of Families & Friendshttp://www.familyvoices.org
  • Family to Family Health Information Centers (35!)
  • Meetings and Workshops
  • Research and Data
  • Networking and Partnerships
slide3

Complements the Bright Futures Guidelines for Health Supervision of Infants, Children and Adolescents

Bright Futures Materials:

  • The Family Pocket Guide is a quick reference that contains:
    • How to choose and work with your health care provider
    • What to expect as your child grows
    • What will happen at health visits from birth to age 21
    • Color-coded by age
    • Various tip sheets in the appendix for all ages
dental health issues for children

www.brightfuturesforfamilies.org

Dental Health Issues for Children

Thoughts

for families

·

Dental

health is more than teeth

it also includes

mouth, face,

nutrition, speech, chewing, swallow

-

ing,

appearance, well being, and confidence.

·

Ideas about dental

health and what can be

done may be different from when

you

were

growing up. New dental procedures

such as

seal

ants

, cosmetic treatments,

and

pain

man

-

age

ment have

been added and

improved.

·

Ex

periences and beliefs about dental

care

v

ary

from

country

to country

.

·

Cost and cover

age

can be

barriers to

good dental

care

High costs of care

­

Lack of information about how to get services covered

­

F

amilies

with coverage

may face red tape and delays

in

determining

­

what is

covered,

pre

-

approvals, and

co

-

pays.

P

rovider

s may be hard to fin

d,

especially for those with Medicaid or certain

·

dental plans.

·

Family

-

centered care

exists

in some

, but not all,

dental practices

. Needed is

:

Understanding

of

families’ roles in day to day care

­

and special situations

I

nformation

especially for

families

and children

­

S

upport for children and families

­

·

Communication and coordination among child

health providers

-

dentists, pediatricians,

and

other

caregivers

is needed.

·

Dental care is not typically part of regular health

insurance

,

convey

ing

a confusin

g message.

________________

________________________________________________________________________

·

·

·

2340 Alamo SE, Suite 102,

Albuquerque, NM 87106

Telephone 505

-

872

-

4774

Fax 505

-

872

-

4780

Toll

·

·

Free: 1

-

888

-

835

-

5669

E

-

mail: kidshealth@familyvoices.org

Internet:

http://www.familyvoices.org

Dental Health Issues for Children
dental health issues for children with special healthcare needs

Dental Health Issues for

Children

with

Special Health Care Needs

Thoughts

for

families

All of the issues mentioned

on the previous page

may

also a

pply

for children with special needs. T

hese issues

may be “heightened.”

Additional c

on

cerns

may include:

·

N

eed for a

ccessibility, modification, accommodation. Dental offices

and

practices

should comply

with Americans

with Disabilities Act standards

.

·

Staff attitudes and comfort caring for children with special needs

·

Staff training to addr

ess information, support, and specific treatments for

children with special needs.

·

Medications

a child is taking

may cause increases in cavities and plaque.

·

Appropriate recommendations for anesthesia

. Some children may need

anesthesia for

treatments and

procedures that

others

do not

. In other cases,

children with special needs may be inappropriately anesthetized.

·

C

onsideration that c

osts for treatment, equipment and supplies

will likely be

in

addition to other health care costs families face.

·

Under ma

naged care, some procedures may be denied, thus requiring

families to appeal in order for children to receive needed services.

·

Families will need to

c

oordinat

e

dental appointments and care with other

health care

services

and therapies

child

ren

receive

.

·

C

ommunication and coordination with children’s other health care

professionals in order to provide quality, family

-

centered care.

·

Children and families

benefit from

dental

health professionals

who

act as

advocates for children’s

dental

and other health

ca

re and services

!

Note that for some

children with special needs, there are no special

dental

health issues!

Our thanks to Bright Futures at Georgetown University for graphics

Supported by

G97

MCO 4453

from the

Maternal and Child Health Bureau, Division of Child, Adolescent and Family Health

Health R

esources and Services Ad

ministration,

Department of Health and Human Services

Dental Health Issues for Children with Special Healthcare Needs
family roles and partnerships
Family Roles and Partnerships:

Families are their children’s first and best advocates, providing and overseeing

their children’s health and development.

family roles and partnerships7
Family Roles and Partnerships:
  • Obstacles
  • Initially - no where to go but up – families
  • were not seen as partners or providers
  • Successes
  • Roles for families at many levels
  • MCHB and other champions!
  • Concept of family-centered, community- based, coordinated, culturally competent care
  • Concepts now selling points
  • Partnerships at many levels
care and services
Care and Services

Raising children is important, hard work –24 hours a day.

slide9

Care and Services:

  • Obstacles
  • Few services, giant gaps in service
  • Lack of parent presence
  • From limited care to fragmented care
  • Care in specialty settings – primary care
  • not comfortable or confident in their roles
  • Successes
  • Innovation, technology, techniques
  • Success in education (IDEA) prompted changes
  • Each specialty “bloomed”
  • Family roles have become more diverse
  • Family roles are recognized and supported
information and data
Information and Data

Children’s health happens in many settings – home, school, community.

Families are the links between caregivers and settings.

information and data11
Information and Data:
  • Obstacles
  • limited to non-existent
  • not family friendly
  • not matched to family roles
successes

Information and Data:

Successes
  • Tremendous progress
  • Internet dissemination
  • Oral Health Data

- Nat’l Survey CSHCN (2001)

- Nat’l Survey of Children’s Health (2003)

- Family Voices: provision of oral health info has doubled, 2005-2006

  • MCHB Performance Measures National and State Measures
financing
Financing

Your child’s health care providers want to help you raise healthy children.

Children’s regular health and dental visits are excellent times to get this help.

financing14
Financing:
  • Obstacles
  • Early on - seldom mentioned
  • Soon after and ongoing - major health
  • and economic consequence for the entire country
  • Successes
  • Katie Beckett waivers (1982); children assisted by technology
  • SCHIP (1997 – being reauthorized ‘07)
  • Increase in understanding of issues
  • Increase in advocates
recommendations resources
Recommendations & Resources

There are lots of right and good ways to raise healthy children.

maternal and child health bureau
Maternal and Child Health Bureau

6 Critical Indicators of Progress

  • Medical Home
  • Insurance Coverage
  • Screening
  • Organization of Services
  • Family Roles
  • Transition to Adulthood

Promoting the Oral Health of CSHCN

  • In Support of the National Agenda
important initiatives advancing the agenda
Important Initiatives Advancing the Agenda
  • National Maternal and Child

Oral Health Resource Center

  • ASTDD – State forums and plans
  • Children’s Dental Health Project
  • AAP – PROHD Project
  • And others!
family centered care
Family-Centered Care
  • Recommendations
  • Be intentional – extend FCC to oral health practitioners
  • Recognize families as primary care providers and models for their children
  • Involve families in program, policy, and practice areas – work with families to define roles
care and services19
Care and Services
  • Recommendations
  • Create “virtual teams” to bring together those involved in a child’s care
  • Emphasize health and wellness for CSHCN
  • Build on Dental/Medical Homes and Bright Futures
  • Quality Care - define & discuss with families
information and data20
Information and Data:
  • Recommendations
  • Participate in and help shape national, state and local initiatives
  • Provide more specific and accessible data on
    • insured/uninsured
    • co-pays
    • out-of-pocket expenses for families
financing21
Financing:
  • Recommendations
  • Express and define financing needs that partners can support
  • Put teeth and gums back into the child! Integrate health and dental health
  • Work broadly for good health for all
slide22

V

OICES

FAMILY

  • Resources & Initiatives
  • Family-to-Family Health Information Centers
  • FV topical call on oral health (June ’07)
  • Work w/partners to identify best oral health info for families (spring ’07)
  • Family Voices Health and Wellness Survey (current) http://go.tufts.edu/familymatters
slide23

Finally

  • Build a community of champions for dental health

Be advocates! Be out there! Be visible!

  • Recent APHA Conference

If you find your life’s passion,

you’ll never work again.

health promotion works families matter raising healthy children is everybody s business
Health promotion works!Families matter!Raising healthy children is everybody’s business!