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independent living: whose agenda

2. Independent Living: Whose Agenda?. Independent Living is everybody's agenda.The responsibility is ours to make Independent Living work, and to make it work wellThe term

Lucy
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independent living: whose agenda

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    1. 1 Independent Living: Whose Agenda? (from the past to the present, to our future)

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    3. 3 Independent Living: Whose Agenda? Independent Living is embedded in the ‘Personalisation Agenda.’ This agenda is exciting because it has Government COMMITMENT Today, it is vital that we leave this Conference committed to and owning the Personalisation and Independent Living Agenda, working to make these approaches a reality for many more young, adult disabled people and older people.

    4. 4 Independent Living: Whose Agenda? Not all professional people who work with different client groups understand the term ‘Independent Living.’ Many young disabled people and older people are not familiar with ‘Independent Living’ but they understand it in terms of the barriers they confront on a daily basis.

    5. 5 Independent Living: Whose Agenda? What are the main barriers? They are: Attitudinal Environmental Institutional PLUS Information and communication

    6. 6 Independent Living: Whose Agenda? Where has the ’Personalisation Agenda’ come from? It has come from Laws that are about: Prevention, Personalisation, Prioritisation. 2000 The NHS Plan: A plan for investment, a plan for reform (making changes) 2005 Independence, Well Being and Choice: Our vision for the future of social care for adults in England 2005 Improving the Life Chances of Disabled People 2006 Our Health, Our Care, Our Say (local involvement) 2006 Securing Good Care for Older People 2000 Putting People First 2008 Independent Living Review and Strategy 2000 Lord Darzi Report on NHS changes We owe a debt of gratitude to Alf Morris who campaigned for the rights of disabled people. Through his commitment the 1970 Chronically Sick and Disabled Persons’ Act was passed. This Act contains many elements of what is now called ‘Independent Living.’

    7. 7 Independent Living: Whose Agenda? One of the most positive pieces of legislation that has transformed the lives of many disabled and older people has been the 1996 NHS and Community Care (Direct Payments) Act. Much of this legislation was championed and written by disabled people.

    8. 8 Independent Living: Whose Agenda? So what will the Personalisation Agenda mean and achieve in the lives of disabled and older people? It will put people who require support at the very heart of planning and decision-making; Tailor support to peoples’ individual needs; Adopt new collaborative ways of working which provide opportunities for social inclusion; Early intervention and prevention that supports people in the way that is right for them; a change management style that commissions and delivers universal services such as transport, leisure, education, training, work experience, health, housing, community safety and access to information that are accessible to everyone. The personalisation agenda demands a huge cultural shift in the way people work together.

    9. 9 Independent Living: Whose Agenda? Following the Independent Living Review, the Office of Disability Issues has been working with a wide range of stakeholders to produce the Independent Living Strategy The Independent Living Strategy is critical to the cultural shift and new collaborative ways of working will transform the lives of people who require support. It is one of the goals of personalisation. Independent Living does not mean living on your own or doing everything by yourself. It means ‘having choice and control’ over the assistance you may need, and/or equipment that will make a difference to daily life. Independent living is about the right and entitlement to equal access to housing, transport, health, employment education, leisure, relationships and more …

    10. 10 Independent Living: Whose Agenda? There are many pieces of legislation that underpin Prevention Personalisation and Prioritisation. Here are some of those: 2000 The NHS Plan: A plan for investment, a plan for reform (making changes) 2005 Independence, Well Being and Choice: Our vision for the future of social care for adults in England 2005 Improving the Life Chances of Disabled People 2006 Our Health, Our Care, Our Say (local involvement) 2006 Securing Good Care for Older People 2007 Putting People First 2008 Independent Living Strategy 2008 Launch of the Darzi Report on NHS changes

    11. 11 Independent Living: Whose Agenda? Everybody who needs support can make choices. Most people know what they need to take control of their lives, without or with support. Some people may find it more difficult to make choices, and may only be able to make small choices and they will make a BIG difference. People who have a range of communication skills, or who will be trained in communication skills, will be required. People who may not be able to speak, may have limited hearing, sight or speech or can only communicate through touch or with some part of their body will be supported to make Considerable investment is required but the outcome will assist people to achieve INDEPENDENT LIVING

    12. 12 Independent Living: Whose Agenda Three other critical additions required to make Independent Living a reality are: 1. Independent advocacy 2. Independent brokerage: people with skills to support people with self-assessment and with knowledge about the options available to them; 3. User-led and user-controlled organisations of disabled people who can inform and support people to achieve Independent Living. The Department of Health is funding some Organisations to achieve the long-term aim of user- led, user-controlled organisations in every area of the country.

    13. 13 Independent Living: Whose Agenda? An option that will help people achieve Independent Living is: an individual budget. This will be offered when a person is entitled to receive support following a needs-led assessment. Individual budgets are different from direct payments because money can come from different pots. An individual budget might be made up from: Local authority adult social care Access to Work The Independent Living Fund Disabled Facilities Grant Supporting People for housing-related support Integrated community equipment services Pilots in different parts of the country have produced positive and creative outcomes for people.

    14. 14 Independent Living: Whose Agenda? Personalisation, Independent Living – they sound great! To support people to make choices and take control and enjoy daily life should be relatively easy to achieve … ?

    15. 15 Independent Living: Whose Agenda? So what are the challenges?

    16. 16 Independent Living: Whose Agenda? Investment is needed to: support professional people to deliver world-class commissioning through the acquisition of knowledge and skills; embed confidence in the workforce that Independent Living is the way forward and to ensure attitudinal and behavioural changes that will facilitate Independent Living; shift power bases and eventually dismantle them; help people who require support to become empowered; turn users into commissioners, thus dismantling old top-down structures; ensure user-led and user-controlled organisations are ‘fit for purpose’ by ensuring they receive appropriate and ongoing training and financial resources. CREATE INDEPENDENT ADVOCACY AND BROKERAGE SERVICES

    17. 17 Independent Living: Whose Agenda? This is a true example of how an individual budget transformed the life of an older person. An initial assessment stated Gladys needed a recliner armchair. After access to independent advocacy and brokerage services she used the Ł750 to buy a second-hand armchair for Ł250. She then bought airplane tickets to fly off to see relatives she had not seen for several years and with the rest of the money she paid for a Sky TV subscription to continue her love of opera from her armchair! Example slightly adapted from a recent presentation by Dame Denise Platt

    18. 18 Independent Living: Whose Agenda? The personalisation agenda, together with Putting People First and the Independent Living Strategy, will lead to new ways of working. This approach will change passive clients into active citizens welfare into wellbeing dependence into independence and interdependence People will have a life worth living!

    19. 19 Independent Living: Whose Agenda? How will the change be brought about? People who require support now and in the future, those who currently live in the community and those who live in residential setting will be at the heart of options and services. Everything will be: - co-produced - co-developed - co-evaluated

    20. 20 Independent Living: Whose Agenda? Whose Agenda: It is OUR agenda – yours and mine, working in partnership to achieve positive and fulfilled lives for those who need support. Will you sign up to change lives – for the better?

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