1 / 13

Information sharing: how professionals can work more effectively with carers

Information sharing: how professionals can work more effectively with carers. Vanessa Pinfold, Head of Research Valerie Minns, Rethink Trustee and carer. Summary. Sharing perspectives Research Training What next – spreading positive practices. Caring partnerships.

wilton
Download Presentation

Information sharing: how professionals can work more effectively with carers

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript


  1. Information sharing: how professionals can work more effectively with carers Vanessa Pinfold, Head of Research Valerie Minns, Rethink Trustee and carer

  2. Summary Sharing perspectives • Research • Training What next – spreading positive practices

  3. Caring partnerships Positive information practices involve: • Service users • Carers • Mental health professionals Built upon: • Trust, respect, understanding • Open and honest communication

  4. “The brick wall”: use of patient confidentiality

  5. Complexity • I don’t want my carer involved – nothing should be shared without my prior approval • I need information to help me care effectively and safely - how can I be supportive and plan for the whole family without being included in decision making? • Who is the carer? Its not always easy to tell who is the most appropriate family member or friend to involve. Balancing patient wishes vs. rights of carer Consequences: exclusion, frustration, poorer outcomes ….

  6. Pointers for good practice Research in 2004 Rethink and Institute of Psychiatry Funded by DoH

  7. Main findings • Complex area, no blue print solutions • Importance of clinical judgement and knowledge of SU and support network • Lack of staff confidences and training • Policies and strategies are useful when developed by SU and carers • Important of consent process • Carers can be supported through information sharing withoutbreaking “patient confidences”

  8. Towards valuing carers • Organisational changes required e.g. • Strong policy framework • Carer resources – education, info packs, carer assessments, respite, family education • Individual professionals e.g. • Involve families • Communicate with families • Sign post to alternative sources of support • Use advance statements, collect and update informed consent regularly

  9. Framework (A) non-consent • Explore decision with service user • Explain carers need to know • Discuss consequences of not sharing • Assess capacity and risk • Provide supportive explanations to carers • Signpost to other sources of support • Use a carers assessment to identify support requirements

  10. Cultural shift in attitudes and practices

  11. Training in the North By Valerie Minns

  12. Our next steps .. • Carers leading change • Campaigns to raise profile of carers • Training with professionals to improve confidences of working with carers through information sharing • Setting up carers programme in MHRN – mental health research network

More Related