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Development of a new self-report instrument on participation and environment

Development of a new self-report instrument on participation and environment. With Ros Madden & Professor Anita Bundy. Danielle Cheeseman. Outline. 1) Review of literature 2) Development of YIPE 3) Study overview, results and future recommendations. 1) Review of literature.

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Development of a new self-report instrument on participation and environment

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  1. Development of a new self-report instrument on participation and environment With Ros Madden & Professor Anita Bundy DanielleCheeseman

  2. Outline • 1) Review of literature • 2) Development of YIPE • 3) Study overview, results and future recommendations

  3. 1) Review of literature • Self-report increasingly advocated1,2 • ICF provides a framework for the development of self-report instruments • ICF acknowledges the environment as a key contributor to participation3

  4. Review of literature ABSENCE OF INSTRUMENTS THAT ARE: Generic (vs. condition specific) Measure participation-environment relationship Self-report DEVELOPMENT OF YIPE

  5. 2) Development of YIPE • YIPE: Your Ideas About Participation and Environment • Generic, self-report instrument • Enables a person to record their own assessment of overall functioning • Developed from the Australian national data standards4 • Includes items from all “activities and participation” and “environmental factors” ICF chapters • Questions start with “satisfaction with participation” and move to related environmental factors

  6. Overview of study • Qualitative study • 10 people from disability organisations • Aim: examine the evidence for the content validity of the YIPE, including meaningfulness, acceptability and usefulness • 2 rounds of interviewing • YIPE revised and converted to computer format

  7. 3) Study results Benefits of the YIPE: • Empower service users • Develop person-centred goals • Useful being split into two related areas on participation and environment • Holistic approach • Assist with communication between health professionals • Content and format well accepted by participants • Useful assessment tool for preparation, during therapy, evaluation • Importance of self-report

  8. Quotes • “Well I thought that because it was self directed that it was very respectful of me and I liked that” • “I liked the fact that it was very open language and very non-judgmental. . . It's quite empowering in a way” • “A more full, rounded appreciation of a person's daily life” • “To really concentrate on what you really want to do. Otherwise you go in then they'll hit you with a questionnaire like this and off the cuff you're going to have to answer them. That could be you for the next 5 years, because that's what you said you wanted. But if you've got something that you can have a look at and prompt yourself to what you really want to do, yeah that'd be good.”

  9. Future research • Psychometric properties of the YIPE • Increasing sample size and diversity (people with cognitive impairments) • Obtaining the professional’s view • Trialling the YIPE at different stages in the therapy process • Trialling accessible formats of the YIPE (e.g., vision impairments)

  10. Summary • Lack of existing instruments that are self-report, generic and measure participation and its relationship to the environment • This has led to the development of a new self-report instrument, YIPE • Findings support the meaningfulness, acceptability and usefulness of the YIPE and its potential for promoting person-centred care and the empowerment of service users.

  11. References • 1. MacDonald C. Self-assessment models, practice and tools within disability support services [Internet]. New Zealand: Ministry of Health; 2010. Available from: http://www.moh.govt.nz/moh.nsf/Files/disability/$file/dss-self-assessment-models-practice-tools.pdf Accessed 2011 Aug 10 • 2. Griffiths P, Harris R, Ullman R. Self assessment of health and social care needs by older people: A multi-method systematic review of practices, accuracy, effectiveness and experience [Internet]. London: National Co-ordinating Centre for NHS Service Delivery and Organisation R&D (NCCSDO); 2005. Available from: http://www.sdo.nihr.ac.uk/files/project/30-final-report.pdf Accessed 2011 Aug 11 • 3. World Health Organization. International classification of functioning, disability, and health: ICF. Geneva: World Health Organization; 2001. • 4. National Community Services Data Committee. National community services data dictionary[Internet]. Version five. Cat. no. HWI 102.Canberra: Australian Institute of Health and Welfare. 2008. Available from: http://www.aihw.gov.au/publications/hwi/ncsddv5/ncsddv5.pdf Accessed 2011 Aug 26

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