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Consistency and Quality of Care 2nd Pan-European Conference on Haemoglobinopathies Berlin, 13-14 March 2010 Michael A

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Consistency and Quality of Care 2nd Pan-European Conference on Haemoglobinopathies Berlin, 13-14 March 2010 Michael A

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    13. ‘271 hours per month are spent on blood transfusions, chelation, other medical appointments, travel time, phoning’ Compagno LM et al Ann NY Acad Sci, 2005 Transfusion times to suite education and work Shortening waiting time Increasing communication time

    15. A module for each specialty: Demographics & patient data Transfusions Iron overload and chelation Cardiology Endocrinology Hepatology Infections Drug reactions

    22. Haemoglobin disorders are rare in the indigenous population of N Europe Immigrants introduce a new problem which host countries are often unprepared to deal with New immigrants often of low socio-economic level making poor use of service

    23. Language and cultural barriers in counseling etc Patients are scattered, often with poor access to expert centres

    24. Summary

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