Elisabetta iannelli ecpc secretary warsaw november 27th 2005
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Elisabetta Iannelli ECPC Secretary Warsaw, November 27th 2005. Patients Rights & Advocacy Discrimination. Who may be involved?. Cancer patients Chronic cancer patients Survivors Relatives Everyone (genetic tests). All ages are involved. Children Young people Adults Elder.

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Elisabetta iannelli ecpc secretary warsaw november 27th 2005

Elisabetta Iannelli

ECPC Secretary

Warsaw, November 27th 2005

Patients Rights & AdvocacyDiscrimination


Who may be involved
Who may be involved?

  • Cancer patients

  • Chronic cancer patients

  • Survivors

  • Relatives

  • Everyone (genetic tests)


All ages are involved
All ages are involved

  • Children

  • Young people

  • Adults

  • Elder


Different ages different problems
Different ages….different problems...


Current contexts of discrimination
Current contexts of discrimination

  • Education

  • Employment

  • Insurance

  • Mortgages and loans

  • Adoption

  • Health care

  • Home rents



In formation
(In)formation!

  • To raise awareness on anyone’s own rights and avoid being discriminated

  • To promote among the others a culture of integration towards cancer patients and their relatives


Education
Education

  • Ensure the right to study during therapies (tutors, updating courses, in hospital training)

  • Promote school and university re/integration after therapies

  • Avoid student’s exclusion


Employment 1 2
Employment 1/2

  • Ensure access to work (reserved quota)

  • Promote adequate work conditions

  • Paid sick leave when necessary

  • Ensure re-qualification after a leave


Employment 2 2
Employment 2/2

  • Avoid mobbing (de-qualification, denial of training and career opportunities)

  • Allow switch to part-time and reverse

  • Limit dismissal


Employment relatives
Employment(relatives)

  • Avoid mobbing (de-qualification, denial of training and career opportunities)

  • Permit leave for assistance to relatives


Insurance
Insurance

  • Health insurance and life insurance

    • prevent deny of coverage

    • avoid premium rise


Mortgages and loans
Mortgages and loans

  • Promote access to financial facilities

  • Lower interest rates

  • Favour de-taxation


Adoption
Adoption

  • Avoid prejudice against cancer survivors

  • Respect the dignity of persons

  • Equality of chances and procedures


Health care
Health care

  • Common quality standards of care all over Europe (diagnostics, therapies, new drugs, rehabilitation)

  • Reduce the need of travelling for care

  • In case of need, set forth travelling and guesting facilities

  • Care of the aged


Home rents
Home rents

  • Avoid prejudice

  • Set forth tax reductions to increase the market

  • Prevent ejection


Thank you all elisabetta iannelli
THANK YOU ALL! ELISABETTA IANNELLI

Vice-president of AIMaC (Italian Association of Cancer Patients, Relatives and Friends) www.aimac.it

Secretary of FAVO (Italian Federation of the Volunteers Associations in Oncology) www.favo.it

Secretary of ECPC (European Cancer Patients’ Coalition) www.ecpc-online.org


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