DG CONNECT webinar on mhealth Tuesday 24 June 2014

1. DG CONNECT webinar on mhealth Tuesday 24 June 2014 Alexandra Wyke PatientView myhealthapps.net Email: alexwyke@patient-view.com my healthapps.net seeking to improve transparency … … supporting the public and patients in finding reliable and useful health apps

2. Promoting useful and reliable health apps: the contribution of myhealthapps.net DG CONNECT webinar on mhealth Tuesday 24 June 2014 “Ensuring that health and well-being apps are safe for consumers” Implications for the April 2014 Green Paper on mHealth my healthapps.net:seeking to improve transparency … … supporting the public and patients in finding reliable and useful health apps

3. myhealthapps.net combines two phenomena to promote the self-management of health and healthcare with the support of health apps m-Health technology Patient empowerment • The apps on my myhealthapps.net … • Have been nominated as “favourite” by patient groups and empowered consumers • Are extensively described to increase the transparency of each app (including the funding, the companies/people, and the research behind each app) • Are rated according to their usefulness to the public and patients (the myhealthapps.net scale was created after consultation with the public and patients) • Are identified as safe and trustworthy if approved by regulators (such as the FDA) or healthcare organisations (such as the UK’s NHS Library of Health Apps), or if created with input from appropriate healthcare professionals

4. In partnership with European Health Forum Gastein, GSK, Janssen, Novo Nordisk, O2/Telefonica, and the Vodafone Foundation • and in conjunction with NHS England, Knowledge Transfer Network (UK Government), and Mobile World Capital (tbc)

5. Health apps and similar tools are important because: Less than half of patients with a long-term illness … Highlights of an April 2014 EU-wide pilot study of the opinions of patients with long-term conditions (and their carers) • take exercise • have a social life • get enough sleep • cope with stress well • eat a healthy diet • or look for health information online

6. Health apps and similar tools are important because: Apps can promote self-care, providing round-the-clock support to the public and patients, when and where they need it

7. ● 40% of patients ● 31% of carers would like to receive online counselling and support … but do not ● 50% of patients ● 40% of carers would like to look at medical records online … but do not ● 40% of patients ● 30% of carers would like to communicate with doctors online … but do not ● 43% of patients ● 50% of carers find it difficult to take action on self-care

8. Implications for the Green Paper on mHealth —the perspectives of patients and carers • Transparency • Patients and carers need certainty that if health apps bring them into online contact with healthcare professionals, these individuals are trustworthy, and genuinely fully-medically qualified • —and are not salespeople. • Patient safety • For the sake of personal safety, patients and carers need certainty that their health apps are accurate, reliable and trustworthy tools which rely on only themost authoritative medical thinking. • Data protection • Patients need certainty that any personal medical data they upload to a health app will remain confidential • (though, if they choose, the data is also capable of being shared automatically with their doctor, nurse or carer • —and of being acted upon promptly).