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A Nursing Perspective on Improving Outcomes for Patients With Hemophilia

A Nursing Perspective on Improving Outcomes for Patients With Hemophilia. Program Goals . Introduction. Newly Diagnosed Hemophilia A in an Infant. Meeting Patients and Family Members “Where They Are At”. Comprehensive Care at Hemophilia Treatment Centers Multidisciplinary Care Team Members.

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A Nursing Perspective on Improving Outcomes for Patients With Hemophilia

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  1. A Nursing Perspective on Improving Outcomes for Patients With Hemophilia

  2. Program Goals

  3. Introduction

  4. Newly Diagnosed Hemophilia A in an Infant

  5. Meeting Patients and Family Members “Where They Are At”

  6. Comprehensive Care at Hemophilia Treatment CentersMultidisciplinary Care Team Members

  7. Meeting Patients and Family Members “Where They Are At” (cont)

  8. Source of Medical Care and Mortality

  9. Prophylaxis and “On-Demand” TherapyDefinitions

  10. Meeting Patients and Family Members “Where They Are At” (cont)

  11. Transitioning From Adolescence to Adulthood

  12. Transition in the Setting of Hemophilia

  13. Some “Red Flags” for Nonadherence to Factor Prophylaxis

  14. Bleeds: Patient Education

  15. Adherence to ProphylaxisAssociated Factors

  16. Meeting Patients and Family Members “Where They Are At” (cont)

  17. Conclusions

  18. Abbreviations

  19. References

  20. References (cont)

  21. References (cont)

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