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Addressing barriers in treating heart failure patients: Introducing the new

Addressing barriers in treating heart failure patients: Introducing the new World Heart Federation Roadmap for Heart Failure Presenter: João Pedro Ferreira, MD, PhD University of Lorraine, Nancy Hospital, France University of Glasgow, Scotland University of Porto, Portugal 2 September 2019.

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Addressing barriers in treating heart failure patients: Introducing the new

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  1. Addressing barriers in treating heart failure patients: Introducing the new World Heart Federation Roadmap for Heart Failure Presenter: João Pedro Ferreira, MD, PhD University of Lorraine, Nancy Hospital, France University of Glasgow, Scotland University of Porto, Portugal 2 September 2019

  2. The World Heart Federation 200+ members The only CVD organization in official relations with WHO

  3. The WHF mission connect and co-ordinate the diverse cardiovascular community translate science into policy to influence agencies, governments and policymakers catalyse and stimulate the exchange of information, ideas, practices across all borders to achieve heart health for everyone, everywhere

  4. The reality of heart failure 26 million people live with heart failure world wide. Mortality rates remain high for heart failure patients Awareness of symptoms and general public awareness about heart failure can dramatically improve early detection and diagnosis Sources: www.who.int/cardiovascular_diseases/en/: WHF key facts website IDF Atlas 2017 http://diabetesatlas.org/resources/2017-atlas.html

  5. Improving quality of life forheart failure patients A large scale global effort is needed to: • raise awareness of heart failure among the general public • improve early diagnosis and outcomes for patients • improve adherence to medication among patients • support disease management and integrated care models

  6. World Heart Federation Roadmap for Heart Failure Gini coefficient: 0 (0%) indicates absolute income equality and 1 (100%) absolute income inequality Income and inequality interplay (“MACE”) Ferreira JP, Zannad F et al. Accepted AHJ (EMPHASIS, EPHESUS and EXAMINE) Dewan P, Ferreira JP, McMurray JV et al. Income Inequality and Outcomes in Heart Failure: A Global Between-Country Analysis. JACC-HF 2018. (PARADIGM and ATMOSPHERE)

  7. World Heart Federation Roadmap for Heart Failure Tromp J, Ferreira JP, Lam C et al. Heart failure around the world. EJHF 2019 Dewan P, McMurray JV et al. HFrEF. comparison of patient characteristics and clinical outcomes within Asia and between Asia, Europe and the Americas. EJHF 2019

  8. What is a Roadmap? • A key reference document, outlining a vision of an ideal pathway of care for heart failure patients, roadblocks along this pathway and evidence-informed solutions and examples from practice • This roadmap aims to make the case for urgent action to reduce the burden of heart failure The Roadmap can be used: • to assist leaders in cardiovascular health to assess needs and gaps in their communities as a first line approach • as a framework to assess priority areas along an ideal pathway of patient care • to identify roadblocks along this pathway and look towards examples of evidence based solutions that could be relevant in different contexts

  9. What is a Roadmap and for whom? An integrated approach to patient care

  10. Development of the Roadmap • Authors: Joao P. Ferreira, Sarah Kraus, Sharon Mitchell, Pablo Perel, Daniel Pineiro, Ovidiu Chioncel, Roberto Colque, Rudolf de Boer, Juan Esteban Gomez-Mesa, Hugo Grancelli, Carolyn S.P. Lam, Antoni Martinez-Rubio, John J.V. McMurray, Alexandre Mebazza, Clyde Yancy, FaiezZannad, Karen Sliwa • Survey to WHF members who shared comments and examples of national interventions, with 146 responses across all continents.

  11. Most Common Causes of Heart Failure Around the World

  12. An ideal pathway of care for heart failure patients • The ideal pathway will have specific barriers relevant to different contexts around the world • It is not an expectation for health systems to follow, but rather a framework to consider barriers along the pathway of care

  13. Dissemination • Published in Global Heart, the official journal of the World Heart Federation, Glob Heart 2019;14:197-214 • Summary brochure for  • Policy makers • Patient groups • Media • Visit WHF booth PO3 at ESC Plaza 

  14. Implementation Facilitation of national stakeholder discussions through Roundtables Facilitation of national scorecards Planning & research of evidence informed solutions by creating a global network Providing a toolkit for implementation of solutions

  15. Patient voices “A lot of people with heart failure think that’s the end of their lives, as soon as they get a diagnosis. I did at first, I thought, that’s it.” “With heart failure it’s very unknown, people just don’t know what it is.” Source: Pumping Marvellous website. Accessed 1 July

  16. Behind every statistic is a personal journey… … each one fraught by challenges too often caused by a lack of resources, inefficient health systems, or lack of education

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