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A tour of the MSRGN Website

Join Kristi Wees, MS Chem, as she takes you on a tour of the MSRGN website. Learn how to navigate the website and find valuable resources for geneticist professionals, consumers, families, patients, and individuals with genetic conditions. Don't miss out on this informative tour!

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A tour of the MSRGN Website

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  1. New &Improved! A tour of theMSRGNWebsite Kristi Wees MS Chem Interim Project Manager MSRGN Social Media Coordinator

  2. Hello! I am Kristi • Social Media Coordinator for MSRGN and MSGRC since 2012 • Interim Project Manager after Marilyn’s departure in November • BS Chemistry Penn State and MS in Chemistry UCLA • A mom to a daughter suspected of mitochondrial disease • A patient advocate for EmpoweredAdvocacy.com

  3. You can find it A LOT of ways: Mountainstatesgenetics.org Mountainstatesgenetics.com Msgrcc.org Msgrcc.com www.MountainStatesGenetics.org Place your screenshot here

  4. Building a website with MSRGN’s CUSTOMERS in mind… Geneticist Professionals Consumers Families Patients Individuals with a Genetic Condition MSRGN’s “Customers” Primary Care Physicians Professionals Public Health Professionals

  5. Navigation is KEY!Finding your way down the Mountain (even in Texas!)

  6. For Families • 1 Without them, MSRGN would not exist

  7. Drop Down Topic Format

  8. For Professionals • 2 Geneticist, Primary Care, Public Health

  9. 3 Categories of Professionals • Geneticist • Primary Care • Public Health • Per the grant guidance and performance measures it is important to attempt to count who comes to the site and capture who they are!

  10. Drop Down Topic Format

  11. Big concept: STATE PAGES This is where you all come in!

  12. State Team Pages- Arizona Example https://www.mountainstatesgenetics.org/about/state-teams/arizona/

  13. State team help needed! State Page Links The state page specific to YOUR state can be a place to list resources that help families answer scenarios 1 and 2 of the template. Topic Areas In the For Families and For Professionals section we can add topic areas with resource links that you may think are missing. Downloadable resources We have the ability to archive and have downloadable PDF and word and powerpoint documents on the site or on your page

  14. Time to put your THINKING CAPS on! Website Scavenger Hunt time! • Grab a Partner • 10 minutes on the clock! • 10 questions • Go! • Prize for the most points.

  15. Facebook • Update- 624 LIKES • Average weekly reach: 100-300 people • Articles about genetics • MSRGN links • Question of the Week starting soon! • Articles for families • Articles about children with genetic • Conditions • Using FB to reach the underserved

  16. 30,423 Total people reached by MSRGN post since June 1, 2017 Whoa! That’s a big number, aren’t you proud?

  17. Mobile friendly UPP project revealed certain underserved populations that have access to social media through smart phones Statistics show a portion of the population rely on smartphones (don’t have internet services at home). http://www.pewinternet.org/2015/04/01/us-smartphone-use-in-2015/

  18. Thanks! Any questions? You can find me at kwees@MountainStatesGenetics.org 281-831-3481

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