Who’s Caring For Caregivers?

1. Who’s Caring For Caregivers? Models of Care & Service Delivery

2. Disclaimer The content of this presentation is in keeping, to the best of my knowledge and understanding, with the abstract submitted and the Canadian Coalition of Senior’s Mental Health and its standards.

3. Dr. Marjorie Moulton • Began her career in allopathic medicine & psychology • Earned her doctorate in Oriental Medicine • Taught at Oshio College of Acupuncture and Herbology • Registered Acupuncturist for 12 years Picture inserted at right.

4. A Very Personal Story • Between 1911 & 1920 • 5 brothers where born to Ammerintha Jane Moulton • Ammie was diagnosed with senility • 3 of her 5 boys also had dementia

5. Three Had Dementia! • Picture inserted here.

6. Arthur Rusty Moulton This photo was taken at Rusty’s 80th birthday and his 25th wedding anniversary with June Fuller Moulton one month before he passed away. Picture inserted at right.

7. Coping… • In her struggle to cope after the loss of her husband • Author June Fuller Moulton wrote • We Rage, We Weep: A Rural Caregiver’s Experience Coping with Alzheimer’s Disease • Detailing her care giving journey with Rusty

8. The Book • We Rage, We Weep was a self published work copy written in 2000. • Picture inserted at right.

9. Death & Rebirth • Arthur (Rusty) Moulton lost his battle with Alzheimer Disease August 18,1995 • The Foundation was born from the Moulton family’s personal experience with this devastating disease

10. My Dad & I • This photo was taken in May 1995. The last one my dad and I would ever pose for. • Picture inserted at right.

11. Caring For Caregivers-The Book • We Rage (the book) has gained acclaim across North America • Its unique rural backdrop sets it apart from other dementia material

12. Rural Life Taken in 1988 it is now suspected by the family that my father suffered from AD even then. • Picture inserted at right.

13. The Caregiver Aging, Care giving and End-of-Life Special Resource Issue - … caregiver coping with dementia you should read this book. • Caregiver photo inserted at right.

14. Alzheimer Society’s Contact Alzheimer Society Newsletter, Contact • … a very special book… • …recommends it to others who are faced with similar challenges. • Photo of Contact inserted at right.

15. Alzheimer Insight Alzheimer Society of Washington, USA Newsletter • …touching and revealing… • …interesting for anyone caring for a person with dementia • Photo of Insight inserted at right.

16. UNBC Required reading for UNBC’s Disability Issues course • …an excellent teaching tool… • intended for Critical Issues in Aging course as well • Copy of letter inserted at right.

17. BC Book World Soup with a Fork Review • …down-to-earth directions and solace for relatives… • Photo of BC Book World inserted at right.

18. Book Reviews “A compelling memoir!” “…touching and revealing…” “…solid, practical advise!” “…thought provoking!” “…a book full of insight!” “Bring tissues!”

19. More Praise “An easy read, and one you won’t soon forget!” “…an incredible journey!” “…a small volume that packs a wallop!” “…this book is exceptional…” “…from the heart!”

20. The Book’s Mission • It has touched the lives of may caregivers • And their families – • Given them hope, • Comfort that they are not alone!

21. Testimonials “I got comfort and advice…” “I appreciated your… expressions of the disease.” “…beneficial and truly enlightening.” “Wow. It was wonderful.” “A very touching story…” “I admire your strength and courage.” “There isn’t a child, wife or husband that shouldn’t read it” “Thank you.”

22. The Foundation • We Rage, We Weep Alzheimer Foundation seeks also to • Make a real difference • Ensuring no caregiver feels alone, isolated or without adequate financial resources • By ‘easing the financial burden of care giving – one family at a time’

23. The Foundation’s Mission • The Foundation’s purpose is to supply grant funding to those caregivers who experience economic hardship in theircare-giving role • Financial assistance may be given for any necessary service or supply not currently available through statutory funding thus complimenting existing community programs

24. Our First Program • Assistance is always provided by or through qualified service providers • Enter Project Lifesaver

25. Project Lifesaver International • Photo of Project Lifesaver inserted here.

26. A Lifesaving Program • Project Lifesaver is a wander prevention program • Integrates law enforcement, search and rescue, people with Alzheimer Disease or related dementia and their caregivers • It includes training, technology and education  • Proven to save lives • Those conducting a search save time, money and staffing

27. Project Lifesaver Partners • We Rage, We Weep Alzheimer Foundation • ElderSafe Support Services • Search & Rescue Society of British Columbia • Locator Systems Corp • Victoria Society for Children with Autism

28. Life-threatening Behaviour • Wandering is the most life-threatening behaviour associated with people who have Alzheimer Disease or related dementia • A caregiver’s deepest fear • 59% of persons with dementia wander • 79% of those will do so repeatedly • The survival rate of a person with cognitive impairment, in good physical condition, missing up to 24 hours is 50% • After 24 hours, they will usually be severely injured or dead

29. A National Concern • Ottawa Citizen – • “people who wander putting unneeded burden on system, though no fault of their own. • This stress will grow exponentially as our population ages.”

30. How Does Project Lifesaver Work? • Project Lifesaver is a public safety program • Uses electronic tracking equipment to locate citizens who wander. • Operates within 600 communities throughout North America • 8,000-10,000 active users • Since 1999 over 1500 searches have been performed • 100% success rate • Average find time less than 30 minutes

31. Project Lifesaver Equipment • Photos of Project Lifesaver equipment inserted here.

32. Fitting Our Mandate • To enroll in Project Lifesaver there is a one-time fee of $500 • Monthly maintenance costs for a home visit, battery and strap change is $30/month • Those in need but unable to pay may apply to the Foundation for financial assistance • Making the program accessible to all

33. Why? Beyond the Personal • 1 in 13 Canadians over age 65 has Alzheimer Disease • 25% of caregivers experience economic hardship • 90% are ineligible for tax credits or monetary assistance • Caregivers assume 75-85% of financial responsibility • Annual cost of care giving, $10,000-$37,000 • 63,480 British Columbians have dementia • 67% (or 42,500 people) have Alzheimer Disease • 13,640 more develop the disease every year

34. The Home Front • Victoria, BC (home to Foundation) – • Highest proportion of very elderly – over 80 – in Canada • The age where dementia rates increase dramatically to 20% vs. 5% of those over 65 • In Canada – 4 million are over 65 and 1.3 million are over 80 • The future is frightening for those concerned with AD

35. A Plea • The dedication in June’s book reads – “To those researchers who are looking diligently for the cause of, and cure for, this devastating disease; all of us who have ‘been there’ appreciate your efforts but – Please hurry!”

36. Dementia’s Devastating Effect… As winter approached the last winter we spent at Rolling Meadows, the hay on which our livestock depended still lay in the field. For me, this photograph will forever symbolize the debilitating impact AD had on my husband.

37. A Picture… • Picture inserted here.

38. …On a Family For me personally, the impact of AD on my father is epitomized in this photo.

39. …Worth a Thousand Words • Picture inserted here.

40. Thank You You can make a real difference too! $5.00 from the sale of each - We Rage, We Weep: A Rural Caregiver’sExperience Coping with Alzheimer’s Disease Goes to support the Foundation’s efforts.

41. Who’s Caring For Caregivers? We Rage, We WeepAlzheimer Foundation Easing the financial burden of care giving - one family at a time www.werageweweep.com Registered Charity BN: 80814 2277 RR0001